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  1. M

    THANK YOU for being here

    Dear fellow CF families, <br /> <br />I wanted to say "thank you" to folks who responded to my post about six weeks concerning my son, 14 months old at the time, who was having difficulty gaining weight. Aidan is also allergic to dairy and soy, and we were struggling getting his weight up and...
  2. M

    Worried about clinic

    Hello, I just need to ask other parents: do you ever dread going to your child's clinic appointments? My 14-month-old son has been having trouble gaining weight, and his treatment team keep mentioning the g-tube. We have clinic next Wed., and I just keep thinking about it and dread going. I...
  3. M

    Worried about clinic

    Hello, I just need to ask other parents: do you ever dread going to your child's clinic appointments? My 14-month-old son has been having trouble gaining weight, and his treatment team keep mentioning the g-tube. We have clinic next Wed., and I just keep thinking about it and dread going. I...
  4. M

    Worried about clinic

    Hello, <br /> <br />I just need to ask other parents: do you ever dread going to your child's clinic appointments? My 14-month-old son has been having trouble gaining weight, and his treatment team keep mentioning the g-tube. We have clinic next Wed., and I just keep thinking about it and...
  5. M

    hollistic meds for 13 month old

    I have a fourteen-month-old son and I am also looking for some holistic supplements. I recently started using coconut oil (bought organic, unrefined coconut oil at Whole Foods). My clinic said this was fine to use, (not harmful), but seemed to not think it would help much. I've noticed it's...
  6. M

    hollistic meds for 13 month old

    I have a fourteen-month-old son and I am also looking for some holistic supplements. I recently started using coconut oil (bought organic, unrefined coconut oil at Whole Foods). My clinic said this was fine to use, (not harmful), but seemed to not think it would help much. I've noticed it's...
  7. M

    hollistic meds for 13 month old

    I have a fourteen-month-old son and I am also looking for some holistic supplements. I recently started using coconut oil (bought organic, unrefined coconut oil at Whole Foods). My clinic said this was fine to use, (not harmful), but seemed to not think it would help much. I've noticed it's...
  8. M

    Toddler may need g-tube

    These are all good suggestions. I am not oppossed to my son getting a g-tube if he really needs one; I just don't feel certain we've really explored the alternatives yet. Also, from other parents I've talked to, their kids were much smaller and not growing as well when the g-tube was...
  9. M

    Toddler may need g-tube

    These are all good suggestions. I am not oppossed to my son getting a g-tube if he really needs one; I just don't feel certain we've really explored the alternatives yet. Also, from other parents I've talked to, their kids were much smaller and not growing as well when the g-tube was...
  10. M

    Toddler may need g-tube

    These are all good suggestions. I am not oppossed to my son getting a g-tube if he really needs one; I just don't feel certain we've really explored the alternatives yet. Also, from other parents I've talked to, their kids were much smaller and not growing as well when the g-tube was...
  11. M

    Toddler may need g-tube

    Hello, My 14-month-old son, who was diagnosed with CF at 3 weeks of age, has been having weight issues from the start. For the past several months, he has been at the 25% percentile for weight and the 50% percentile for height. His CF center treatment team keeps mentioning that they think he...
  12. M

    Toddler may need g-tube

    Hello, My 14-month-old son, who was diagnosed with CF at 3 weeks of age, has been having weight issues from the start. For the past several months, he has been at the 25% percentile for weight and the 50% percentile for height. His CF center treatment team keeps mentioning that they think he...
  13. M

    Toddler may need g-tube

    Hello, <br /> <br />My 14-month-old son, who was diagnosed with CF at 3 weeks of age, has been having weight issues from the start. For the past several months, he has been at the 25% percentile for weight and the 50% percentile for height. His CF center treatment team keeps mentioning that...
  14. M

    Anyone have problems with Cigna denying a claim for synagis ?

    I'm sorry to hear you are having this problem with Cigna. Unfortunately, I had the same problem with my son, also with Cigna. When Aidan was four months old, our primary care pediatrician tried to get Cigna to approve him for the Synagis vaccine. They denied, and our CF Center treatment team...
  15. M

    Anyone have problems with Cigna denying a claim for synagis ?

    I'm sorry to hear you are having this problem with Cigna. Unfortunately, I had the same problem with my son, also with Cigna. When Aidan was four months old, our primary care pediatrician tried to get Cigna to approve him for the Synagis vaccine. They denied, and our CF Center treatment team...
  16. M

    Anyone have problems with Cigna denying a claim for synagis ?

    I'm sorry to hear you are having this problem with Cigna. Unfortunately, I had the same problem with my son, also with Cigna. When Aidan was four months old, our primary care pediatrician tried to get Cigna to approve him for the Synagis vaccine. They denied, and our CF Center treatment team...
  17. M

    Anyone have problems with Cigna denying a claim for synagis ?

    I'm sorry to hear you are having this problem with Cigna. Unfortunately, I had the same problem with my son, also with Cigna. When Aidan was four months old, our primary care pediatrician tried to get Cigna to approve him for the Synagis vaccine. They denied, and our CF Center treatment team...
  18. M

    Anyone have problems with Cigna denying a claim for synagis ?

    I'm sorry to hear you are having this problem with Cigna. Unfortunately, I had the same problem with my son, also with Cigna. When Aidan was four months old, our primary care pediatrician tried to get Cigna to approve him for the Synagis vaccine. They denied, and our CF Center treatment team...
  19. M

    Synergist Vaccine

    My 4-month-old son's primary care pediatrician recommended that our son receive the Synergist shot for RSV prevention during the fall/winter months this year; however, we have just learned that our insurance will not pay for the shot (and it will cost us $500.00 per shot if we self-pay). I...
  20. M

    Synergist Vaccine

    My 4-month-old son's primary care pediatrician recommended that our son receive the Synergist shot for RSV prevention during the fall/winter months this year; however, we have just learned that our insurance will not pay for the shot (and it will cost us $500.00 per shot if we self-pay). I...
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