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  1. M

    3wk old Diagnosed 11/15

    Jeanne, Congratulations on the birth of your wonderful baby boy, Parker. I am so sorry to hear of his diagnosis, and imagine you must be experiencing grief, fear, shock, and a mixture of many other emotions right now. I can relate, as my son, Aidan, was diagnosed at three weeks of age...
  2. M

    3wk old Diagnosed 11/15

    Jeanne, Congratulations on the birth of your wonderful baby boy, Parker. I am so sorry to hear of his diagnosis, and imagine you must be experiencing grief, fear, shock, and a mixture of many other emotions right now. I can relate, as my son, Aidan, was diagnosed at three weeks of age...
  3. M

    3wk old Diagnosed 11/15

    Jeanne, <br /> <br />Congratulations on the birth of your wonderful baby boy, Parker. I am so sorry to hear of his diagnosis, and imagine you must be experiencing grief, fear, shock, and a mixture of many other emotions right now. I can relate, as my son, Aidan, was diagnosed at three weeks of...
  4. M

    3wk old Diagnosed 11/15

    Jeanne, Congratulations on the birth of your wonderful baby boy, Parker. I am so sorry to hear of his diagnosis, and imagine you must be experiencing grief, fear, shock, and a mixture of many other emotions right now. I can relate, as my son, Aidan, was diagnosed at three weeks of age...
  5. M

    3wk old Diagnosed 11/15

    Jeanne, Congratulations on the birth of your wonderful baby boy, Parker. I am so sorry to hear of his diagnosis, and imagine you must be experiencing grief, fear, shock, and a mixture of many other emotions right now. I can relate, as my son, Aidan, was diagnosed at three weeks of age...
  6. M

    3wk old Diagnosed 11/15

    Jeanne, <br /> <br />Congratulations on the birth of your wonderful baby boy, Parker. I am so sorry to hear of his diagnosis, and imagine you must be experiencing grief, fear, shock, and a mixture of many other emotions right now. I can relate, as my son, Aidan, was diagnosed at three weeks of...
  7. M

    Pulmozyme and Saline

    Hello, My son, Aidan, was diagnosed with CF at three weeks of age and is now 16 months old. He was hospitalized at 7 months due to bronchitis, had IV antibiotics for two weeks, and quickly got well. He sometimes has a dry cough, but other than this, no lung symptoms. We do CPT twice a day...
  8. M

    Pulmozyme and Saline

    Hello, My son, Aidan, was diagnosed with CF at three weeks of age and is now 16 months old. He was hospitalized at 7 months due to bronchitis, had IV antibiotics for two weeks, and quickly got well. He sometimes has a dry cough, but other than this, no lung symptoms. We do CPT twice a day...
  9. M

    Pulmozyme and Saline

    Hello, <br /> <br />My son, Aidan, was diagnosed with CF at three weeks of age and is now 16 months old. He was hospitalized at 7 months due to bronchitis, had IV antibiotics for two weeks, and quickly got well. He sometimes has a dry cough, but other than this, no lung symptoms. We do CPT...
  10. M

    Does the sweat chloride number tell you anything?

    Congratulations on your new baby, and welcome to the message board. I'm so sorry to hear about your baby's diagnosis; we were there just 15 months ago with our newborn son. His sweat chloride levels were "sky high," way beyond the cut-off levels, and his mutations are DDF508. They told us...
  11. M

    Does the sweat chloride number tell you anything?

    Congratulations on your new baby, and welcome to the message board. I'm so sorry to hear about your baby's diagnosis; we were there just 15 months ago with our newborn son. His sweat chloride levels were "sky high," way beyond the cut-off levels, and his mutations are DDF508. They told us...
  12. M

    Does the sweat chloride number tell you anything?

    Congratulations on your new baby, and welcome to the message board. I'm so sorry to hear about your baby's diagnosis; we were there just 15 months ago with our newborn son. His sweat chloride levels were "sky high," way beyond the cut-off levels, and his mutations are DDF508. They told us...
  13. M

    weight issues

    Hello, My son, Aidan, now age 15 months, was diagnosed with CF via newborn screening. He struggled with weight gain a great deal during his first six months, usually hanging around weight-for-length percentile of about 15% or so. During the second half of his first year, his weight-for-length...
  14. M

    weight issues

    Hello, My son, Aidan, now age 15 months, was diagnosed with CF via newborn screening. He struggled with weight gain a great deal during his first six months, usually hanging around weight-for-length percentile of about 15% or so. During the second half of his first year, his weight-for-length...
  15. M

    weight issues

    Hello, <br /> <br />My son, Aidan, now age 15 months, was diagnosed with CF via newborn screening. He struggled with weight gain a great deal during his first six months, usually hanging around weight-for-length percentile of about 15% or so. During the second half of his first year, his...
  16. M

    Flavoring Unflavored Pepteman Jr?

    The same thing happened to us a couple of months ago due to an insurance mix-up. We used the nutricia flavor packets and my son really liked the vanilla. Our CF clinic dietician helped us to order them.
  17. M

    Flavoring Unflavored Pepteman Jr?

    The same thing happened to us a couple of months ago due to an insurance mix-up. We used the nutricia flavor packets and my son really liked the vanilla. Our CF clinic dietician helped us to order them.
  18. M

    Flavoring Unflavored Pepteman Jr?

    The same thing happened to us a couple of months ago due to an insurance mix-up. We used the nutricia flavor packets and my son really liked the vanilla. Our CF clinic dietician helped us to order them.
  19. M

    THANK YOU for being here

    Dear fellow CF families, I wanted to say "thank you" to folks who responded to my post about six weeks concerning my son, 14 months old at the time, who was having difficulty gaining weight. Aidan is also allergic to dairy and soy, and we were struggling getting his weight up and his team was...
  20. M

    THANK YOU for being here

    Dear fellow CF families, I wanted to say "thank you" to folks who responded to my post about six weeks concerning my son, 14 months old at the time, who was having difficulty gaining weight. Aidan is also allergic to dairy and soy, and we were struggling getting his weight up and his team was...
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