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Beautifulsoul, We go to Pulmonary dept and see Dr. Clancy on C5. He is new there from Univ. of Alabama and has done a lot of research in CF. Who do you see? Maybe we could meet sometime. I've met up with lots of Moms and children now thru a GI support group on babycenter. Hariett, She did...

Beautifulsoul, We go to Pulmonary dept and see Dr. Clancy on C5. He is new there from Univ. of Alabama and has done a lot of research in CF. Who do you see? Maybe we could meet sometime. I've met up with lots of Moms and children now thru a GI support group on babycenter. Hariett, She did...

Beautifulsoul, We go to Pulmonary dept and see Dr. Clancy on C5. He is new there from Univ. of Alabama and has done a lot of research in CF. Who do you see? Maybe we could meet sometime. I've met up with lots of Moms and children now thru a GI support group on babycenter. <br /> <br...

Thanks for the replies. I will look up the journal. Her sweats were 41, 50 and 36. She had bronchitis, sinusitis, rsv, upper resp infections many times the first two yrs and ftt. now it's mainly ftt, constipation.I don't know what her mutations are but will ask at our next appt.  She has...

Thanks for the replies. I will look up the journal. Her sweats were 41, 50 and 36. She had bronchitis, sinusitis, rsv, upper resp infections many times the first two yrs and ftt. now it's mainly ftt, constipation.I don't know what her mutations are but will ask at our next appt. She has been...

<p>Thanks for the replies. I will look up the journal. Her sweats were 41, 50 and 36. She had bronchitis, sinusitis, rsv, upper resp infections many times the first two yrs and ftt. now it's mainly ftt, constipation.<p>I don't know what her mutations are but will ask at our next appt. She...

After reading thru the posts on atypical cf , I am very concerned for my 5yo daughter.  She is currently diagnosed as cystic fibrosis metabolic syndrome by a cf specialist in a cf accredited childrens hospital.  He is also one of the few cf docs that are testing colon tissue for cftr function. ...

After reading thru the posts on atypical cf , I am very concerned for my 5yodaughter. She is currently diagnosed as cystic fibrosis metabolic syndrome by a cf specialist in a cf accredited childrens hospital. He is also one of the few cf docs that are testing colon tissue for cftr function. My...

<p>After reading thru the posts on atypical cf , I am very concerned for my 5yodaughter. She is currently diagnosed as cystic fibrosis metabolic syndrome by a cf specialist in a cf accredited childrens hospital. He is also one of the few cf docs that are testing colon tissue for cftr function...

I will ask about the NAC pill. The mucus is soooo thick!! She can't go off the ex-lax. She was on miralax since infancy and it no longer works for her. She had bowel resection in June. Thanks everyone for advice!!!!

Thanks everyone!! I will ask about supplements. 18 before summer and 31 after summer doesn't sound quite good enough to me.

Thanks everyone!! I will ask about supplements. 18 before summer and 31 after summer doesn't sound quite good enough to me.

Thanks everyone!! I will ask about supplements. 18 before summer and 31 after summer doesn't sound quite good enough to me.

Thanks everyone for your replies. So 18 was definitely not high enough, but 31 might be ok. She should probably still be on vit d supplement especially since she's not out in the sun any more like she was for the summer.

Thanks everyone for your replies. So 18 was definitely not high enough, but 31 might be ok. She should probably still be on vit d supplement especially since she's not out in the sun any more like she was for the summer.

Thanks everyone for your replies. So 18 was definitely not high enough, but 31 might be ok. She should probably still be on vit d supplement especially since she's not out in the sun any more like she was for the summer.

<br>Just wondering what your kiddo's vitamin d levels are.  Jasey's were 18 at the beginning of summer and last month 31.  Is 31 borderline normal or just inside the normal range?

<br>Just wondering what your kiddo's vitamin d levels are. Jasey's were 18 at the beginning of summer and last month 31. Is 31 borderline normal or just inside the normal range?

<br>Just wondering what your kiddo's vitamin d levels are. Jasey's were 18 at the beginning of summer and last month 31. Is 31 borderline normal or just inside the normal range?

<br>I saw a thread where everyone was discussing low vitamin D.  At the beginning of summer, my daughter's vit D level was 18 and when they checked it a month ago it was 31.  What are everyone's levels?  Is 31 borderline normal?