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  1. M

    Throat culture results

    nevermind, dr said it was normal...
  2. M

    Throat culture results

    <br>I can get online and view Jasey's tests results. Her throat culture results were posted today. I don't know if I should be concerned or not. I don't know what is normal. Can anyone tell me anything about this result?Results: moderate haemophilus influenzae; beta lactamase negativeThanks for...
  3. M

    Throat culture results

    <br>I can get online and view Jasey's tests results. Her throat culture results were posted today. I don't know if I should be concerned or not. I don't know what is normal. Can anyone tell me anything about this result?Results: moderate haemophilus influenzae; beta lactamase negativeThanks for...
  4. M

    Throat culture results

    <br>I can get online and view Jasey's tests results. Her throat culture results were posted today. I don't know if I should be concerned or not. I don't know what is normal. Can anyone tell me anything about this result?Results: moderate haemophilus influenzae; beta lactamase negativeThanks for...
  5. M

    quirky poop question

    My daughter is mild PI and is chronically constipated. The only thing that has really helped her is enzymes. She had bowel resection in June where they removed 28 inches of her colon and still was constipated. Some of hers floats, some sinks, use to look like cotton. Now it looks a little...
  6. M

    quirky poop question

    My daughter is mild PI and is chronically constipated. The only thing that has really helped her is enzymes. She had bowel resection in June where they removed 28 inches of her colon and still was constipated. Some of hers floats, some sinks, use to look like cotton. Now it looks a little...
  7. M

    quirky poop question

    My daughter is mild PI and is chronically constipated. The only thing that has really helped her is enzymes. She had bowel resection in June where they removed 28 inches of her colon and still was constipated. Some of hers floats, some sinks, use to look like cotton. Now it looks a little...
  8. M

    CF Culture Results

    We were told a week or more for final results for throat culture.
  9. M

    CF Culture Results

    We were told a week or more for final results for throat culture.
  10. M

    CF Culture Results

    We were told a week or more for final results for throat culture.
  11. M

    CF appt...Jasey gained on enzymes

    <br>Jasey gained 2lbs from being on enzymes.  She has never gained that much in that amount of time.  They increased her enzymes in hopes that she will gain more and that we will be able to decrease the ex-lax even more.  He thinks she is mild PI.  He also thinks that the decreased cftr function...
  12. M

    CF appt...Jasey gained on enzymes

    <br>Jasey gained 2lbs from being on enzymes. She has never gained that much in that amount of time. They increased her enzymes in hopes that she will gain more and that we will be able to decrease the ex-lax even more. He thinks she is mild PI. He also thinks that the decreased cftr function is...
  13. M

    CF appt...Jasey gained on enzymes

    <br>Jasey gained 2lbs from being on enzymes. She has never gained that much in that amount of time. They increased her enzymes in hopes that she will gain more and that we will be able to decrease the ex-lax even more. He thinks she is mild PI. He also thinks that the decreased cftr function is...
  14. M

    Post Traumatic Stress in parents of kids with CF

    Great job!! I'm definitely hyper-viligent and my hubby definitely avoids everything! Now having probs with our other daugher. Was told by ped that the last letter she rec'd indicated that Jasey does have cf. We see the cf specialist tomorrow.
  15. M

    Post Traumatic Stress in parents of kids with CF

    Great job!! I'm definitely hyper-viligent and my hubby definitely avoids everything! Now having probs with our other daugher. Was told by ped that the last letter she rec'd indicated that Jasey does have cf. We see the cf specialist tomorrow.
  16. M

    Post Traumatic Stress in parents of kids with CF

    Great job!! I'm definitely hyper-viligent and my hubby definitely avoids everything! Now having probs with our other daugher. Was told by ped that the last letter she rec'd indicated that Jasey does have cf. We see the cf specialist tomorrow.
  17. M

    daughter diagnosed at 4. d508 and n1303

    wow! Thanks for sharing. Good luck and keep us updated.
  18. M

    daughter diagnosed at 4. d508 and n1303

    wow! Thanks for sharing. Good luck and keep us updated.
  19. M

    daughter diagnosed at 4. d508 and n1303

    wow! Thanks for sharing. Good luck and keep us updated.
  20. M

    If anyone is interested...

    <br>The name of the test they did on my daughter's colon tissue that is positive for cf is intestinal current measurements or measurement of ion transport in rectal biopsies.  I find it very interesting. 
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