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  1. M

    If anyone is interested...

    <br>The name of the test they did on my daughter's colon tissue that is positive for cf is intestinal current measurements or measurement of ion transport in rectal biopsies. I find it very interesting.
  2. M

    If anyone is interested...

    <br>The name of the test they did on my daughter's colon tissue that is positive for cf is intestinal current measurements or measurement of ion transport in rectal biopsies. I find it very interesting.
  3. M

    forgot this part of my question

    Both of my daughters have been on large doses of miralax but it doesn't work for them. Jasey has to take senna or ex-lax daily. She is now on 3 squares of ex-lax/day but was on 5 squares a day until she started enzymes. The enzymes have helped some. We tried to decrease her ex-lax to 2.5...
  4. M

    forgot this part of my question

    Both of my daughters have been on large doses of miralax but it doesn't work for them. Jasey has to take senna or ex-lax daily. She is now on 3 squares of ex-lax/day but was on 5 squares a day until she started enzymes. The enzymes have helped some. We tried to decrease her ex-lax to 2.5...
  5. M

    forgot this part of my question

    Both of my daughters have been on large doses of miralax but it doesn't work for them. Jasey has to take senna or ex-lax daily. She is now on 3 squares of ex-lax/day but was on 5 squares a day until she started enzymes. The enzymes have helped some. We tried to decrease her ex-lax to 2.5...
  6. M

    CF effects all aspects of your life?

    Melissa, good advice. I think I will try having a "worrying time". It takes over my life!!
  7. M

    CF effects all aspects of your life?

    Melissa, good advice. I think I will try having a "worrying time". It takes over my life!!
  8. M

    CF effects all aspects of your life?

    Melissa, good advice. I think I will try having a "worrying time". It takes over my life!!
  9. M

    When is it time?

    Ok...I'm just going to state my experience on this. My neice was 10 yrs old when she passed away from Luekemia. She had been in the hospital for an entire year and in ICU most of that time. She was on a ventilator for 12 weeks at one stretch. She was a very, very ill child. My sister wanted...
  10. M

    When is it time?

    Ok...I'm just going to state my experience on this. My neice was 10 yrs old when she passed away from Luekemia. She had been in the hospital for an entire year and in ICU most of that time. She was on a ventilator for 12 weeks at one stretch. She was a very, very ill child. My sister wanted...
  11. M

    When is it time?

    Ok...I'm just going to state my experience on this. My neice was 10 yrs old when she passed away from Luekemia. She had been in the hospital for an entire year and in ICU most of that time. She was on a ventilator for 12 weeks at one stretch. She was a very, very ill child. My sister wanted...
  12. M

    When is it time?

    Ok...I'm just going to state my experience on this. My neice was 10 yrs old when she passed away from Luekemia. She had been in the hospital for an entire year and in ICU most of that time. She was on a ventilator for 12 weeks at one stretch. She was a very, very ill child. My sister wanted...
  13. M

    When is it time?

    Ok...I'm just going to state my experience on this. My neice was 10 yrs old when she passed away from Luekemia. She had been in the hospital for an entire year and in ICU most of that time. She was on a ventilator for 12 weeks at one stretch. She was a very, very ill child. My sister wanted...
  14. M

    When is it time?

    Ok...I'm just going to state my experience on this. My neice was 10 yrs old when she passed away from Luekemia. She had been in the hospital for an entire year and in ICU most of that time. She was on a ventilator for 12 weeks at one stretch. She was a very, very ill child. My sister wanted...
  15. M

    Gastrointestional

    My daughter has battled constipation since birth, she is 5 yo and had 28 inches of bowel removed this past june. Miralax didn't work for us. The only thing that has worked is ex-lax or senna but since she started enzymes she has gone from 5 squares a day to 2.5. Good luck
  16. M

    Gastrointestional

    My daughter has battled constipation since birth, she is 5 yo and had 28 inches of bowel removed this past june. Miralax didn't work for us. The only thing that has worked is ex-lax or senna but since she started enzymes she has gone from 5 squares a day to 2.5. Good luck
  17. M

    Gastrointestional

    My daughter has battled constipation since birth, she is 5 yo and had 28 inches of bowel removed this past june. Miralax didn't work for us. The only thing that has worked is ex-lax or senna but since she started enzymes she has gone from 5 squares a day to 2.5. Good luck
  18. M

    atypical cf, cf related disorder, cf related metabolic disorder

    <br>Go to google and type in cystic fibrosis related metabolic syndrome and scrool down until you see the cf related metabolic syndrome title with vidstream underneath and javascript required out to side.  I was able to click on it and listen to the lecture and read the powerpoint.  Let me know...
  19. M

    atypical cf, cf related disorder, cf related metabolic disorder

    <br>Go to google and type in cystic fibrosis related metabolic syndrome and scrool down until you see the cf related metabolic syndrome title with vidstream underneath and javascript required out to side. I was able to click on it and listen to the lecture and read the powerpoint. Let me know...
  20. M

    atypical cf, cf related disorder, cf related metabolic disorder

    <br>Go to google and type in cystic fibrosis related metabolic syndrome and scrool down until you see the cf related metabolic syndrome title with vidstream underneath and javascript required out to side. I was able to click on it and listen to the lecture and read the powerpoint. Let me know...
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