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I still take Zythromax. I mentioned the study to my doctor (and I wish I was listening with better ears that day) because he said that it only affected a VERY limited number of people - maybe even that it almost wasn't statistically significant....I'll have to ask him again what he said. I'll...

I still take Zythromax. I mentioned the study to my doctor (and I wish I was listening with better ears that day) because he said that it only affected a VERY limited number of people - maybe even that it almost wasn't statistically significant....I'll have to ask him again what he said. I'll...

Hey! So I had MAC when I was about 25 years old. My lung function decreased probably from 70 to 50% over the course of a year or two, I was always tired, my hair was falling out, I was losing weight. The doc couldn't figure out why tune-ups just didn't seem to be working, so they eventually...

Hey! So I had MAC when I was about 25 years old. My lung function decreased probably from 70 to 50% over the course of a year or two, I was always tired, my hair was falling out, I was losing weight. The doc couldn't figure out why tune-ups just didn't seem to be working, so they eventually...

Hey! So I had MAC when I was about 25 years old. My lung function decreased probably from 70 to 50% over the course of a year or two, I was always tired, my hair was falling out, I was losing weight. The doc couldn't figure out why tune-ups just didn't seem to be working, so they eventually...

Good advice, Peter! Another thing, at my hospital, they only assign ONE CF patient per shift to the RT, so they are NOT overly aching from having to do manual CPT on a bagillion patients in one day. I'm sorry, but manual CPT is part of the RT job - if you don't like it, don't be in RT line...

Good advice, Peter! Another thing, at my hospital, they only assign ONE CF patient per shift to the RT, so they are NOT overly aching from having to do manual CPT on a bagillion patients in one day. I'm sorry, but manual CPT is part of the RT job - if you don't like it, don't be in RT line...

Good advice, Peter! <br /> <br />Another thing, at my hospital, they only assign ONE CF patient per shift to the RT, so they are NOT overly aching from having to do manual CPT on a bagillion patients in one day. I'm sorry, but manual CPT is part of the RT job - if you don't like it, don't be...

Absolutely agree. I have requested that certain RT's are not to service me b/c their CPT is not up to par. I have spoken to the respitory manager. I have complained to my doctor. The only thing you can do is advocate for yourself and keep speaking up and up until you get what you know you...

Absolutely agree. I have requested that certain RT's are not to service me b/c their CPT is not up to par. I have spoken to the respitory manager. I have complained to my doctor. The only thing you can do is advocate for yourself and keep speaking up and up until you get what you know you...

Absolutely agree. I have requested that certain RT's are not to service me b/c their CPT is not up to par. I have spoken to the respitory manager. I have complained to my doctor. The only thing you can do is advocate for yourself and keep speaking up and up until you get what you know you...

Thank you. Good luck on your decision. May I ask what your current FEV/health status is?

Thank you. Good luck on your decision. May I ask what your current FEV/health status is?

Thank you. Good luck on your decision. May I ask what your current FEV/health status is?

Hello! I am currently listed, but I remember when I was healthy always saying I would NEVER consider a transplant....but here I am. The deciding factor is I want to do ANYTHING to live. I have such a wonderful husband and life that I want to do anything I can to stay here as long as possible...

Hello! I am currently listed, but I remember when I was healthy always saying I would NEVER consider a transplant....but here I am. The deciding factor is I want to do ANYTHING to live. I have such a wonderful husband and life that I want to do anything I can to stay here as long as possible...

Hello! <br />I am currently listed, but I remember when I was healthy always saying I would NEVER consider a transplant....but here I am. The deciding factor is I want to do ANYTHING to live. I have such a wonderful husband and life that I want to do anything I can to stay here as long as...

Do you have a dog? Sleep and hug your pup! That's what I do (more cuddly than my hubby HAHA!!)

Do you have a dog? Sleep and hug your pup! That's what I do (more cuddly than my hubby HAHA!!)

Do you have a dog? Sleep and hug your pup! That's what I do (more cuddly than my hubby HAHA!!)