Search results

  1. R

    What kind of job do you have?

    Hey thanks, we are in Los Angeles and the graffiti team is rapid response. Keep up the good work.
  2. R

    The earliest signs of infection?

    I call it the pseudomonas dance. PS has a life cycle and it grows, duplicates, dies and repeat. When we are not well it seems to grow. Our dance is to be able to fight it off and get it out when we can. We get sick and have to be hospitalized when it is way ahead and we have to beat it down. I...
  3. R

    Smoking Pot/RSO Oil

    Cannabinoids and Cystic Fibrosis: http://cannabis.cluster005.ovh.net/data/pdf/2002-01-2.pdf Cannabinoids and Cystic Fibrosis: A Novel Approach to Etiology and Therapy Ester Fride ABSTRACT. Cannabis stimulates appetite and food intake. This property has been exploited to...
  4. R

    Smoking Pot/RSO Oil

    http://phoenixtears.ca/
  5. R

    Smoking Pot/RSO Oil

    Raw cannabis http://www.youtube.com/watch?v=eRLVyGfGcZs
  6. R

    Waking Up in the Morning and CF

    We wake up dehydrated, in the normal course of respiration the body expels over a liter of water and that is just a normal person. I wake up and try to drink a big glass of water and some sea salt. Do my breather and get a cup of tea( which is a diuretic and need to take in more water).
  7. R

    CF careers-ultrasound or human resources

    Having always worked hard and gone to school and had a very successful career and now own my own business. Looking back I wish I did things different, I struggled and still do. We all want to work and need to work but our health is a huge problem we have to factor in. I think we think if we feel...
  8. R

    Cannabis Treatment for CF

    RAW Cannabis TheAmazing Health Benefits of Juicing Raw Cannabis (Marijuana) Leaves - So individuals whose systems arecompromised by autoimmune disorders, cellular dysfunction, chronicinflammation, cancer cells, and various other illnesses can derive a wide rangeof health-promoting benefits...
  9. R

    Cannabis Treatment for CF

    CF Cannabis Treatment - We want to feel better not high!. There is lots of info here and new research saying that there are numerous types of cannabinoids only one has psycho active properties, the rest have enormous health benefits. Please review and I would be curious what others felt good or...
  10. R

    Top Ten unusual things to bring to Hospital for an admission...

    1. Soft toilet paper 2. Power strip to plug in stuff. 3. Plastic Shopping bags for easy trash bags tied to bed and within easy reach. 4. Gummy bears 5. Baseball Cap to shield from early am lights 6.Clips to hold call button 7. Hand gripper to hold for blood draw. 8. List of all your meds 9.Hot...
  11. R

    diabetes anyone? helppppp

    First if you suspect it then you need to be proactive. Eating loads of sugar is bad for anyone. It is safe to assume that CF's we have glucose issues way before we are clinical. Top that off with a strong sense of denial on our parts and you are giving yourself a disadvantage. Get a cheap...
  12. R

    Need a Plan and Support (Total Treatment Slacker In Need of Reform!)

    Back to basics, once I get sick then get in hosp then it is back to basics. First step is to decide that you will take your care plan more seriously.Nebs, food, pills, treatments, eat, rest, exercise rinse and repeat. There is nothing easy dealing with CF. I have a excel spreadsheet that lists...
  13. R

    ADHD and Nutrition issues

    It seems that this is a common problem with younger cf kids. Is this so. Do you follow a gluten free dairy free diet for them? If ADHD is so prevalent amongst the regular population and the cause is hotly debated, but nutritionally is suspect, I would think CF kids are more prone to more adhd...
  14. R

    Weight Gain

    It is one of the hardest things with CF is to eat right and gain weight. I struggle everyday just to eat and maintain weight. If you have a g-tube you are ahead of the game. Ice cream might be high in calories but all dairy products increase sputum a lot. For those that struggle with GI problems...
  15. R

    Insulin and tube feeds

    Yeah you should see your cf doc and do a glucose tolerance test. Feeding Formulas are very high glycemic ( meaning will spike your blood sugars). It is not a big deal to start using insulin, it will help you convert some of that calories into weight. 16 hour tube feeds does not give your body a...
  16. R

    When to consider a G Tube

    They are young for a g-tube, it is going to be a 100% effort on your part.It will be hard to tell how they are feeling and adjusting to it. I have had a g-tube for over 25 years with alot of success but it is hard sometimes. I use it mainly now for bolus of things I would not eat like a salmon...
  17. R

    New eRapid - LOVE IT

    Call me old school but I like my pari neb versus the eflow! LIke someone said it takes longer to clean the device than it does to inhale. I figure I am doing my vest anyways what is the hurry? The concentration level is a good point, you could probable dilute with saline if need be.
  18. R

    GHPP/ Med coverage Help

    GHPP is sometimes slow to respond. I have had GHPP for almost 20 years. You just have to fax them and by mail. Sometimes clinic can call but they get the same. GHPP is short staffed there is only a few people working for the program. Just be patient and polite you'll get through. pS I have extra...
  19. R

    FYI- Bronchiectasis: breaking the cycle of inflammation and infection - Lancet

    Airway Clearance in Bronchiectasis: Breaking the Infection–Inflammation Cycle Rob G. Stirling, B.Sc. (Hons), M.B.B.Ch., Caroline H. Nicolson, Dip. Phty., Brenda M. Button, Dip. Phty., Ph.D. and John W. Wilson, M.B.B.S., Ph.D. + Author Affiliations The Alfred Hospital Melbourne, Victoria...
  20. R

    FYI- Bronchiectasis: breaking the cycle of inflammation and infection - Lancet

    The Role of Theophylline Plus Low-dose Formoterol-budesonide in Treatment of BronchiectasisVerified by: The First Affiliated Hospital of Guangzhou Medical University, January 2013 First Received: January 15, 2013 | Last Updated: January 17, 2013 Phase: Phase 4 | Start Date: July 2013 Overall...
Top