Hi--We have always known there is another teen at DS's school with CF. DS is the atypical kind (late dx; more effects on pancreas than lungs) and the other child has classic, dx at birth CF. DS is a year older and they have no classes together and rarely bump into each other.
However, they...
Hi--We have always known there is another teen at DS's school with CF. DS is the atypical kind (late dx; more effects on pancreas than lungs) and the other child has classic, dx at birth CF. DS is a year older and they have no classes together and rarely bump into each other.
However, they...
Hi--We have always known there is another teen at DS's school with CF. DS is the atypical kind (late dx; more effects on pancreas than lungs) and the other child has classic, dx at birth CF. DS is a year older and they have no classes together and rarely bump into each other.
<br />
<br...
Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital.
True? Adam was also asking if he would have his...
Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital.
True? Adam was also asking if he would have his...
Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital.
<br />
<br />True? Adam was also asking if he would...
Well, I just need a bit of a vent. DS is so overwhelmingly fatigued. He has only been to one day of school since last Wed. It takes a toll on him because he is such a school-lover. He is in his 10th day of cipro and seems to be getting worse in terms of the fatigue although he is finally...
Well, I just need a bit of a vent. DS is so overwhelmingly fatigued. He has only been to one day of school since last Wed. It takes a toll on him because he is such a school-lover. He is in his 10th day of cipro and seems to be getting worse in terms of the fatigue although he is finally...
Well, I just need a bit of a vent. DS is so overwhelmingly fatigued. He has only been to one day of school since last Wed. It takes a toll on him because he is such a school-lover. He is in his 10th day of cipro and seems to be getting worse in terms of the fatigue although he is finally...
Hi--
Just trying to figure out the logistics if DS is admitted next week after his bronchoscopy since this will be his first hospitalization for IVs.
I will need to stay in Baltimore with him--we are about 1.5 hours from Hopkins. Parents--do you stay in hotels, kid's rooms, or where?
Is it...
Hi--
Just trying to figure out the logistics if DS is admitted next week after his bronchoscopy since this will be his first hospitalization for IVs.
I will need to stay in Baltimore with him--we are about 1.5 hours from Hopkins. Parents--do you stay in hotels, kid's rooms, or where?
Is it...
Hi--
<br />
<br />Just trying to figure out the logistics if DS is admitted next week after his bronchoscopy since this will be his first hospitalization for IVs.
<br />
<br />I will need to stay in Baltimore with him--we are about 1.5 hours from Hopkins. Parents--do you stay in hotels, kid's...
WE are, for the first time, facing the possibility of IV meds next month after a bronchoscopy. When on home IVs, with a three times a day dose, can kids go to school? DS is in 10th grade--not sure what to expect if he needs to do the whole IV thing?
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.