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    how tall are you?how much do you weigh?

    DS, 15 years old, 6'1" 142 lbs up from 122 a year ago
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    Two CFers in same musical

    Hi--We have always known there is another teen at DS's school with CF. DS is the atypical kind (late dx; more effects on pancreas than lungs) and the other child has classic, dx at birth CF. DS is a year older and they have no classes together and rarely bump into each other. However, they...
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    Two CFers in same musical

    Hi--We have always known there is another teen at DS's school with CF. DS is the atypical kind (late dx; more effects on pancreas than lungs) and the other child has classic, dx at birth CF. DS is a year older and they have no classes together and rarely bump into each other. However, they...
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    Two CFers in same musical

    Hi--We have always known there is another teen at DS's school with CF. DS is the atypical kind (late dx; more effects on pancreas than lungs) and the other child has classic, dx at birth CF. DS is a year older and they have no classes together and rarely bump into each other. <br /> <br...
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    enzymes in hospital

    Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital. True? Adam was also asking if he would have his...
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    enzymes in hospital

    Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital. True? Adam was also asking if he would have his...
  7. A

    enzymes in hospital

    Hi--Another pretty simple question about hospital stays.... Pre-op called yesterday and said to pack a bag. So--as I am figuring out what all needs to be packed, I am assuming all his meds (including zenpep) would be provided by the hospital. <br /> <br />True? Adam was also asking if he would...
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    Overwhelming fatigue

    Well, I just need a bit of a vent. DS is so overwhelmingly fatigued. He has only been to one day of school since last Wed. It takes a toll on him because he is such a school-lover. He is in his 10th day of cipro and seems to be getting worse in terms of the fatigue although he is finally...
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    Overwhelming fatigue

    Well, I just need a bit of a vent. DS is so overwhelmingly fatigued. He has only been to one day of school since last Wed. It takes a toll on him because he is such a school-lover. He is in his 10th day of cipro and seems to be getting worse in terms of the fatigue although he is finally...
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    Overwhelming fatigue

    Well, I just need a bit of a vent. DS is so overwhelmingly fatigued. He has only been to one day of school since last Wed. It takes a toll on him because he is such a school-lover. He is in his 10th day of cipro and seems to be getting worse in terms of the fatigue although he is finally...
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    First hospitalization

    Thanks for all the good advice! Here's hoping we don't have to use it this time!!
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    First hospitalization

    Thanks for all the good advice! Here's hoping we don't have to use it this time!!
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    First hospitalization

    Thanks for all the good advice! Here's hoping we don't have to use it this time!!
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    First hospitalization

    Hi-- Just trying to figure out the logistics if DS is admitted next week after his bronchoscopy since this will be his first hospitalization for IVs. I will need to stay in Baltimore with him--we are about 1.5 hours from Hopkins. Parents--do you stay in hotels, kid's rooms, or where? Is it...
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    First hospitalization

    Hi-- Just trying to figure out the logistics if DS is admitted next week after his bronchoscopy since this will be his first hospitalization for IVs. I will need to stay in Baltimore with him--we are about 1.5 hours from Hopkins. Parents--do you stay in hotels, kid's rooms, or where? Is it...
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    First hospitalization

    Hi-- <br /> <br />Just trying to figure out the logistics if DS is admitted next week after his bronchoscopy since this will be his first hospitalization for IVs. <br /> <br />I will need to stay in Baltimore with him--we are about 1.5 hours from Hopkins. Parents--do you stay in hotels, kid's...
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    IV Meds and School

    Thanks everyone.
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    IV Meds and School

    Thanks everyone.
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    IV Meds and School

    Thanks everyone.
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    IV Meds and School

    WE are, for the first time, facing the possibility of IV meds next month after a bronchoscopy. When on home IVs, with a three times a day dose, can kids go to school? DS is in 10th grade--not sure what to expect if he needs to do the whole IV thing?
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