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I actually agree with you on the bronchoscopy, I HATED getting my first one done and I was 21, but mine was due because of a bout of bad hemoptysis, so my Dr. wanted to look in there. Turns out there wasn't anything of significance ( they didn't even pick up any mycobacteria at the time! ) ...

How do you guys feel when you wake up in the morning with CF? -I mean cough and congestion wise? Some days I feel PURE GARBAGE waking up in the morning, just laying in dry stringy rotten mucus and post nasal drip nastiness, with wheezing, and just to sit up a chore and to move JUST SUCKS...

I can't agree more on the sinus rinses! I have been doing sinus rinses for the last 3 years now with a special pik machine. My Dr runs CT scans on my sinus ever year, first year my sinus were really getting blocked up and 'gnarly' with time and with all that going on I started getting...

Yes, that could work well! I recommended getting though a good big one, like from brook-stone, or check out Amazon or ebay. One that has alot of vibration and and heavy, don't buy a cheap one "light", will not go the job done. It breaks my heart when CFers have no insurance and your medical...

I used a special irrigating machine, called "Gosslan Hydro Pulse,". It's expensive about $80.00-$85.00, but works exceptionally well for keeping everything clean up there the results are EXCELLENT. I used to have the same problem with ear pain and clogged feeling from using the Neli -Med bottle...

Ok here is mine; 1. Iphone, Ipad, Imac, Ipad mini, Ibuds, anything with apples and "I" 2. Sugar-soft vanilla cherry body scrub and wash 3. Colorful pj's, nightgowns and crazy colored socks. 4. Cheese spray-in-a-can 5. Secret night time only bag of lonely chocolates 6. Daily Union Jack...

Having an out of whack gut can REALLY contribute to nausea and throwing up , get some nice yogurts and probiotics and starting taking those. Or even with your meds, I recommended having a few saltine crackers so you not on empty stomach. When I took doxy for the first few days fine I was fit...

I agree with what scarecrow says; don't stop until you speak with your dr. Don't panic if any antibiotic doesn't 'work' after only 2-3 days, that's barely enough time for it to kick in. If she has heavy mucus flow then there's ALOT of bacteria to be killed off, and these buggers will fight til...

Just to say, please don't get 'sugar' and "carbs" mixed up, that's a bad diabetic myth and seriously confusing for some. It COMPLETELY confused me when I was diagnosed because I like everyone else thought actual "sugar" was the problem and took me time to understand. Anything with "Carbs"...

HAHHAHAHAH! Some of these are very funny and thank you everyone for putting your liners in ! I love it, its great to laugh and hope you loosen up some junk in the process. I am thinking about starting my own blog with some CF humor in it, I will be posting more humor soon, . (NEB)

From your profile, do you go to Hopkins? Did you do a albuterol treatment before these attacks? I once got so dizzy from albuterol, and my heart beating fast I though I was dying, maybe some kind of reaction? Yea with B-12/ Niacin, watch out out for flush if you take too much, its not...

Man, I can't agree enough, I sent you a PM,

Yes you are absolutely right, once CFRD sets in there not really any way to stop it, because of the damage to the pancreas. By what I said, "I got myself into trouble by ignoring it", I meant perhaps in the early stages of mine, I could have helped preserve some beta-cell pancreas insulin...

Everyone, PLEASE CALL, ! I will be, ! We are making our voices heard, We did something that worked, don't give up!

I got CFRD when I was 17, I started getting symptoms very very slowly months before, but I ignored it like I did with my lungs, the thirst turn slowly from a little bit, to the point I needed to drink constant fluids, to peeing on myself, and my final crash of unbelievable 69 lbs for a 5'4...

I remember taking streptomycin before going to sleep once, and I suddenly woke up, my arms and hands were totally numb and face, my heart was beating fast, and ' a rush' type feeling came over me -like you, my walking was loopy and drunk and I felt strange, it eventually passed but very-very...

Steven, great point out and I couldn't agree more, and was actually thinking the same thing, Antibiotics are our forefront fight and honestly they are the real thing that has made leaps in not only other diseases of history but CF dramatically, and to finish them only 2/3 with treatment is...

Stephen, I know that fact VERY WELL thank you-, and I was only using a bit of humor, please don't take it seriously, You need to laugh at the little things, esp. in CF world, we are very unique as group of people. Yes, im poking fun at CF treatments in playful way, not hurtful, that's my way.

I was just wondering if there are any CFer's out there who try to keep their fat intake to very low limit despite having a excellent weight and maximizing their enzyme doses? No matter how much I try, I can not absorb anything with a heavy fat content, pizza, cream, heavy ice cream, any heavy...

:D Here we go........! CF treatments are like my mother in law, - She's always watching me, in my business and up my a$$! CF treatments are like a bad dream, I hope to wake up one day and not have to do e'm !!! CF treatments are like trains, planes, and automobiles ...... they keep on...