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This post got completely away from the original person, who posted why they don't do their treatments, instead of giving support and tips on how incorporate compliance. Gosh, CFers and doing treatments VS. those who don't, is like an Evolution- Creation Fox NEWS debate here ! ********Bangs...

kmhbeauty - "My cystic fibrosis doctor tells me to exercise and do hyp saline, that's it, theres not much more he can tell me to do because Ive only ever cultured staph." I also culture Staph bacteria, never PA so far, but my lungs are running at %76-%80 on a good day with daily hard work...

I just want to point these facts out and a study I read about, As there seems to be some mis-information and myths going around. Your body DOES NOT become "depended " on general CF run-of-the-mill meds, pulmozyme antibiotics, inhalers, vitamins ,and PT, vest, YES- you probably feel bad when...

Dude,- even though your lung function is good and you feel ok, You still have CF- You not doing your treatments is FOOLISH and DANGEROUS, it not cool, and it NOT keeping in control of CF. You need to start treatments, like TODAY like by little, don't wait before its too late. CF is no joke...

I always spit my mucus out whenever I can when appropriate, even when I was little, I was encourage to. I carry small disposable cups with me in my car, about the house, or when out, discretely and hygienically of course. Usually just when times I am more productive, Like an exacerbation or...

Yes, exactly ! If I take that stuff,- try lay down with some very relaxing music, something like classical, or meditation music to try and be calm, the sleep lost is what got me, I can only sleep a max of 3 hrs on the stuff, try go for a nap during the day, or when you feel tried, and just try...

I haven't really heard much about drugs for the really very rare mutation like your son's, but drugs for class 3-4, and nonsense sets of mutations like my weird one "17-17->1A-G " which makes NOTHING/ not even a protein. There is one drug called 'ATALAUREN' that seems very promising on these...

Yes, double check with the pharmacist or Dr, also, try take it hrs apart, I wouldn't take at the same time, so you don't mixed them. I personally can't take Levaquin, at all, I start seeing things crawling on my walls at night and Halle Berry Style paranoia sets in when laying awake, :O

Everyone needs to send these, I have sent mine in, EVERYONE- Send yours in as well ! I haven't heard anything, received anything or if anything has been decided or changes, We need to PRAY (VEST)

Hehe, well, we've got something in common :) - Oh and ya can-ne beat a Scot -Printer, :) Especially one with CF, :D

The SSA, interviewed me, interview my doctors, TOOK MONTH'S, reviewing my medical history, MY PAST work history, so obviously their criteria was met,. The SSA knows that my Dr recommends the gym sessions for me as a part of my treatment plan, and they still saw me for my disability.

"Even if you do get SS and SSI, why would you be opposed to an annual review in order to continue assistance? Do you consider it to be a lifetime annuity? " I never said anything about being opposed to any reviews by the SSA Bill, What I am STRONGLY opposing the SSA to reclassify and change...

"There are people, some who are CF patients out here, who get SS Disability and SSI, who go to the gym everyday. " Yes there is some Bill, perhaps to KEEP their lungs healthy as possible, to keep out of the hospital, AND to PROLONG their life AND FEEL Better. Sitting in office all day or other...

Call the President Phone Numbers Comments: 202-456-1111 Switchboard: 202-456-1414 The White House 1600 Pennsylvania Avenue NW Washington, DC 20500

The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 ! Call the President Phone Numbers Comments: 202-456-1111 Switchboard: 202-456-1414 !

Also, for the number of CF patients this country has, are FAR lower by the HUGE ratio of the REAL people who take a chunk of SSA, unwed mothers, WICC program recipients, illegal immigrants, these people can work especially- with in the minority groups, as Selme34 said LAZINESS and the USA...

Well not everyone can, and I think SSA needs to know that, not have a ' ONE SIZE' fits all approach, that's wrong.

I sent you a PM, if you don't mind, -

Are you coughing more then usual? Maybe try more CPT, vest, airway clearance,?? Being short of breath can be indication of something going on, even before mucus is being produced!

Tell me about it....Try explaining when you have shoot yourself with needles at the table and pricking your finger til it bleeds...while trying to manage your mind in a mist of fog from hypoglycemia...! hehe (VEST)