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"Truth is, a lot of CFers who currently receive them probably shouldn't" Are you kidding me? How do you know this as the truth? Ever CF case in different With stacks of ENDLESS PILLS, breathing treatments, IV antibiotics with side effects and trying to cram that in at the same time while...

I get the exact same thing on albuterol/ventolin/salbutamol, mostly increased anxiety, jittery feeling, I get tremors to, and sometimes faster heartbeat. It's b/c albuterol is a stimulate, it opens up the airways by the same way your natural adrenaline does, ( the fight or flight hormone )...

* By the way, just cause your MRSA is not sensitive to Septra , -don't always mean forever, it will probably sensitive again, mine has been on and off, Sometimes I use it, sometimes I don't, just for your FYI. :)

If I have to pick my favorite antibiotics it is probably Tetracycline class, With some side effects but I can live with it. Miniocycline, - Unbelievable dizziness / balance screwed up, you feel your a walking drunk all the time on this one, but it works, just don't do anything too hard while...

Hmm, unless its really flaring up in there, I actually wouldn't worry about it, just do you treatments and watch it. "Streptococcus Agalactiae" or more commonly known as 'Beta-strep Group B' kinda just sits in the lungs there, especially for little kids with CF and babies I believe, but i'm...

I have been on ceftazadime, and I seem ok on it, very good drug I should say. I was put on it the first time as well, and didn't notice any side effects. It is scary being put on any drugs period- ones you haven't been on before or even ones you have been, - because sometimes the same...

I am currently on for treatment of MAC also,- I am on 8 months and going strong, but it has been hard. I have taken oral drugs only at this time, but if my cultures keep coming back clean, I might be free from IVs. 3 months is way WAY to short for MAC treatment, You should be seeing a...

This is am embarrassing topic here, but I am going to ask- sorry for the grossness... Do any of you CFers on here have problems with toilets in your home/work / where ever you are in general? I' ll be honest, probably out of ever 1-2 weeks, I am ALWAYS blocking my own toilet, I try...

If I have ever forgot- * if * or what I more likly do is I didn't time them correctly or ate too much fat in meal- the pain is really terrible, you have to just wait until it goes away, I find laying down can make it feel 'better', rubbing/ messaging your tummy helps alot to, -Also, drinking...

This is very good news! I can NOT AT ALL tolerate oral Levaquin,or any fluoroquinolones for that matter. Levaquin is a very scary drug for me, makes me a nervous wreck, joint pain/cracking, terrible insomnia, don't feel my normal self-all the horrible symptoms of toxicity. It would be...

Have they checked for NTM/ MAC? I got this before diagnosed with NTM, They would just randomly come and go, low grade range 99 + , and like you I would feel yucky.

Are you growing any Mycobacterium complex? Ever since I stared growing that, I notice my sputum has really tasted gross and had a musty odor to it and become green to almost a greenish-brown, esp in the morning since it sitting there all night. I haven't had PA, but I do know that famously...

I think it should be totally fine doing nebs at the office, I would however DEF. bring Lysol spray/ wipes with you and spray some of the stuff you'll be working on before starting a treatment- and spray the room before you do it, so you don't inhale a cold virus or weird bacteria from peoples...

I think it should be totally fine doing nebs at the office, I would however DEF. bring Lysol spray/ wipes with you and spray some of the stuff you'll be working on before starting a treatment- and spray the room before you do it, so you don't inhale a cold virus or weird bacteria from peoples...

Yea, that is that MAC,/ Mycobacterium , esp when its flaring up, -I never really got "full blown" nights sweats where it was gross, ( as of yet , *gulp, -tap wood,-), but when I did seem to have it, - I would wake up suddenly feeling 'too hot' at night, and take off my pjs.... although I...

Yea, that is that MAC,/ Mycobacterium , esp when its flaring up, -I never really got "full blown" nights sweats where it was gross, ( as of yet , *gulp, -tap wood,-), but when I did seem to have it, - I would wake up suddenly feeling 'too hot' at night, and take off my pjs.... although I...