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My daughter will be 2 in June. She was diagnosed with Cystic Fibrosis when she was a month old. Her father took off and i've been living with my mom. She's basically been like a second parent. She DRIVES ME NUTS!! Everything she reads, she freaks out about. She believes that everything is...

My daughter will be 2 in June. She was diagnosed with Cystic Fibrosis when she was a month old. Her father took off and i've been living with my mom. She's basically been like a second parent. She DRIVES ME NUTS!! Everything she reads, she freaks out about. She believes that everything is...

My daughter will be 2 in June. She was diagnosed with Cystic Fibrosis when she was a month old. Her father took off and i've been living with my mom. She's basically been like a second parent. She DRIVES ME NUTS!! Everything she reads, she freaks out about. She believes that everything is...

Thank you guys all so much for your care and concern!! Its been a couple days erin had a pretty good day yesterday and she had an awesome day today!! So i think she's feeling much better! There is a possibility that what was going on could have been gas or cramps becaue she did scrunch her...

Hey Everybody... The past couple of days with Erin have been extremely rough!! She is crying more often than not and it's not just crying she is SCREAMING. She really seems like she's in pain. She coughs so bad that she'll make herself choke and then she cries more because I'm sure THAT makes...

thank you everyone!! I havent decided to move yet, and i really didn't WANT to move but you guys helped me a bunch. I'll talk to Erin's doctor's and see what they have to say. Thanks again!!

I'm not sure if it's true or not becauseyou know, online websites lie a lot and you can't trust anything on them... I heard that it is statistically true that a person with Cystic Fibrosis does better and lives longer in warmer climates... you know, basically outside of new england... down...

Hey Everybody... Erin is doing great, she's getting big and she'll be off her tobi for a little while in 3 more days. I made her a website and feel free to check it out!! It has pictures of her, updates, and other stuff... here it is... <a target=new class=ftalternatingbarlinklarge...

Hi Leah... i can relate to your problem... while erin was in the hospital...her father would come up and visit once or twice a week. however, he would never do her treatments EVER for me... and when he visited HER and he would never stay longer than an hour and a half. Whereas... i couldn't...

congrats Jen!! Erin waited about 5 days before she had her first bowel movement and i was never so happy about seeing poop in my life!! now... she poops all the time (lol) and honestly, it still makes me happy when she does!! Becuase of the whole colostomy and operation, and waiting.... I'll...

I've been considering the glyconutrients for Erin. Of course, I plan on talking to her doctors and everything first but with all the research I've done on it... I haven't heard anything bad. Just good. But I have a question. As you know, she has psedomonas... is the glyconutrients supposed...

I've been considering the glyconutrients for Erin. Of course, I plan on talking to her doctors and everything first but with all the research I've done on it... I haven't heard anything bad. Just good. But I have a question. As you know, she has psedomonas... is the glyconutrients supposed...

no problem!! <img src="i/expressions/face-icon-small-blush.gif" border="0">)

lol i know, that little one has quite the personality!!

lol thankyou. i just think i'm in BIG trouble when she gets older lol

This is my sweet little Erin guys! Enjoy the pics! <a target=new class=ftalternatingbarlinklarge href="http://www.angelfire.com/magic2/l_leavitt/Erin.html">http://www.angelfire.com/magic2/l_leavitt/Erin.html</a>

you go to portland too?

First Time Inahler... As you know, Erin is on Albuteral and Tobi for her pseudomonas. She was taking both by nebulizer. They just switched her Albuteral and are having me give it to her through an inhaler. (2 puffs) i am SOOOO Nervous about doing them because unlike the nebulizer they want me...

my daughter has it and she is treated twice a day w/ albuteral and tobi.

oh the smelliness doesn't bother me at all. yes they've played w/ her dosage they have not tried to switch the brand yet and they've tried to switch her formuka but right now she's on enfamil ar which is the added rice and when they tried taking her off that, she threw up. the added rice helps...