Search results

  1. D

    Oxygen problem

    Omg, Jennifer... I have talked to you a couple of times, but it has been a couple of years. I was reading all of your testing stuff nad am still a little speechless. Are you at USC in cali? I didn't think you lived in Calif, but I guess maybe you moved. i am on O2 full time, I get the...
  2. D

    Oxygen problem

    Omg, Jennifer... I have talked to you a couple of times, but it has been a couple of years. I was reading all of your testing stuff nad am still a little speechless. Are you at USC in cali? I didn't think you lived in Calif, but I guess maybe you moved. i am on O2 full time, I get the...
  3. D

    Oxygen problem

    Omg, Jennifer... <br /> I have talked to you a couple of times, but it has been a couple of years. <br /> I was reading all of your testing stuff nad am still a little speechless. <br /> Are you at USC in cali? I didn't think you lived in Calif, but I guess maybe you moved. <br /> i am on O2...
  4. D

    Getting very down about transplant

    Well I just wanted to say a couple words of encouragement. I have been listed for 17 months and counting. I am a hard match because of resisitant antibodies in my blood. With that being said, I am still very hopeful. I knew going into this it could be a two year wait. So a few things I say to...
  5. D

    Getting very down about transplant

    Well I just wanted to say a couple words of encouragement. I have been listed for 17 months and counting. I am a hard match because of resisitant antibodies in my blood. With that being said, I am still very hopeful. I knew going into this it could be a two year wait. So a few things I say to...
  6. D

    Getting very down about transplant

    Well I just wanted to say a couple words of encouragement. I have been listed for 17 months and counting. I am a hard match because of resisitant antibodies in my blood. With that being said, I am still very hopeful. I knew going into this it could be a two year wait. So a few things I say to...
  7. D

    Getting very down about transplant

    Well I just wanted to say a couple words of encouragement. I have been listed for 17 months and counting. I am a hard match because of resisitant antibodies in my blood. With that being said, I am still very hopeful. I knew going into this it could be a two year wait. So a few things I say to...
  8. D

    Getting very down about transplant

    Well I just wanted to say a couple words of encouragement. I have been listed for 17 months and counting. I am a hard match because of resisitant antibodies in my blood. With that being said, I am still very hopeful. I knew going into this it could be a two year wait. So a few things I say to...
  9. D

    Oxygen dependence

    Wow, what a great question. I was put on o2 about 2 years ago, only at night. I was really heitant, because I did not want to become dependant on it. Then I realized it wasn't becoming dependant, it was needing it. I would feel so much better when I would give my body what it was needing. If...
  10. D

    Oxygen dependence

    Wow, what a great question. I was put on o2 about 2 years ago, only at night. I was really heitant, because I did not want to become dependant on it. Then I realized it wasn't becoming dependant, it was needing it. I would feel so much better when I would give my body what it was needing. If...
  11. D

    Oxygen dependence

    Wow, what a great question. I was put on o2 about 2 years ago, only at night. I was really heitant, because I did not want to become dependant on it. Then I realized it wasn't becoming dependant, it was needing it. I would feel so much better when I would give my body what it was needing. If...
  12. D

    Oxygen dependence

    Wow, what a great question. I was put on o2 about 2 years ago, only at night. I was really heitant, because I did not want to become dependant on it. Then I realized it wasn't becoming dependant, it was needing it. I would feel so much better when I would give my body what it was needing. If...
  13. D

    Oxygen dependence

    Wow, what a great question. <br />I was put on o2 about 2 years ago, only at night. I was really heitant, because I did not want to become dependant on it. Then I realized it wasn't becoming dependant, it was needing it. I would feel so much better when I would give my body what it was needing...
  14. D

    Anyone in Orange County, California?

    Hi Natalie I am an adult cystic, now going to usc. But I spent 20 years with CHOC. Really longer, but 20 of it was regular care. I was very happy with some docs,and very unhappy with others. I will not bad mouth anybody, but I had my share of difficulties. I always thought their dietitions...
  15. D

    Anyone in Orange County, California?

    Hi Natalie I am an adult cystic, now going to usc. But I spent 20 years with CHOC. Really longer, but 20 of it was regular care. I was very happy with some docs,and very unhappy with others. I will not bad mouth anybody, but I had my share of difficulties. I always thought their dietitions...
  16. D

    Anyone in Orange County, California?

    Hi Natalie I am an adult cystic, now going to usc. But I spent 20 years with CHOC. Really longer, but 20 of it was regular care. I was very happy with some docs,and very unhappy with others. I will not bad mouth anybody, but I had my share of difficulties. I always thought their dietitions...
  17. D

    Anyone in Orange County, California?

    Hi Natalie I am an adult cystic, now going to usc. But I spent 20 years with CHOC. Really longer, but 20 of it was regular care. I was very happy with some docs,and very unhappy with others. I will not bad mouth anybody, but I had my share of difficulties. I always thought their dietitions...
  18. D

    Anyone in Orange County, California?

    Hi Natalie <br /> I am an adult cystic, now going to usc. But I spent 20 years with CHOC. Really longer, but 20 of it was regular care. I was very happy with some docs,and very unhappy with others. I will not bad mouth anybody, but I had my share of difficulties. I always thought their...
  19. D

    totally freaking out....

    Well I will tell from my experience, I have 3 children and was on anti-biotics through all three. Odviously in a perfect situation you would not want to use any, but you are not in that situation and you have to out weigh the pros and cons of the drugs. I was on many meds that were not approved...
  20. D

    totally freaking out....

    Well I will tell from my experience, I have 3 children and was on anti-biotics through all three. Odviously in a perfect situation you would not want to use any, but you are not in that situation and you have to out weigh the pros and cons of the drugs. I was on many meds that were not approved...
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