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my 18 year old daughter (deltaf508) developed cf arthritis this past year. pain in joints and the red bumpy rash...said her throat and lungs hurt as well. her cf doc sent her to the rheumatologist who prescribed meloxicam. it is an anti-inflammatory drug (ibuprofen didn't touch her pain). if...

Call Genentech. The makers of Pulmozyme. The have a lot of different programs for assistance in this area.

Call Genentech. The makers of Pulmozyme. The have a lot of different programs for assistance in this area.

Call Genentech. The makers of Pulmozyme. The have a lot of different programs for assistance in this area.

Okay, this is what happened to us. I have two girls with CF and our family is still all in the same house. I was told by Hill Rom that they think it highly unlikely that we would ever be approved for two vest machines. I explained that I would fight Medicaid until they were covered and even...

Okay, this is what happened to us. I have two girls with CF and our family is still all in the same house. I was told by Hill Rom that they think it highly unlikely that we would ever be approved for two vest machines. I explained that I would fight Medicaid until they were covered and even...

Okay, this is what happened to us. I have two girls with CF and our family is still all in the same house. I was told by Hill Rom that they think it highly unlikely that we would ever be approved for two vest machines. I explained that I would fight Medicaid until they were covered and even...

I had to quit coming on this website for a while because it was really getting me down. I just revisted all of your posts' and I am very grateful for the information. Faith stopped culturing the Mycobacterium for a while and now she has had her third culture in the past year. We are trying...

I had to quit coming on this website for a while because it was really getting me down. I just revisted all of your posts' and I am very grateful for the information. Faith stopped culturing the Mycobacterium for a while and now she has had her third culture in the past year. We are trying...

I had to quit coming on this website for a while because it was really getting me down. I just revisted all of your posts' and I am very grateful for the information. Faith stopped culturing the Mycobacterium for a while and now she has had her third culture in the past year. We are trying...

I use the Quick Clean Micro-Steam Bag by Medela. I am not sure if the neb cup is the same thing as the cannister but that is how I clean all of our neb supplies. I put the neb cannisters, masks, and mouthpieces in the bag along with the rubber and mouth piece of the OpticChamber. I put 1/2...

My first thought was the pee issue. But that is just my problem and I don't have the CF. I really laughed hard when I read that. Made my night. I thought I might be the only one silly enough to admit that! Anyways our family has had one for three years. We have the enclosure around it and...

My girls have been taking Zithromax for about two and a half years and they have not cultured P.A. again since they started. They have cultured many other fun bugs though!

I know I am not the adult with CF. But both my girls Meghan 9 and Faith 7 do 10% HS once a day and pulmozyme once a day. They also do TOBI and Colistine every other month. One is doing very well and the other is worse off with bacteria, but the HS loosens and allows them to actually cough...

I posted on the famiy section about my 9 year old daughter about this same issue. She was a size 8 at the end of August last year and she is now in size 14. She took Pred. burst about three different times this year and Advair. When I took her to the endocronologist he said that she has not...

My girls have a friend that lives down the street and has about 20 animals in various shapes and sizes. I used to let them go play down there quite a bit until I became friends with the mother and was down there myself and found dog poop on the floor of their house that had been there for days...

My daughter Meghan has had a huge increase in weight over the past year. About 30 lbs. She has done steroids and just recently they took her off of all inhaled steroids, and changed her anxiety medication from Lexapro to Celexa. I know that Lexapro is a appetite increasing drug and she was...

Thank you Jane. After going to the adult discussions I did go to this website and it is very helpful. Michelle it is good to hear that you are seeking help in Denver because that is our clinic so she will be in good hands from the sounds of it. I will post as I am updated about her condition...

What our your child's symptoms, and have they been treated? It's just that I think we are heading into a whole knew world of CF now that this has come up. She is growing so many bugs and up to this point she has not had to have the mediport or a G tube. She does pulmozyme, TOBI every other...

I just read it and think it sounds very promising. Do you know how long it can take to become FDA certified if it is on a fast track program?