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A HUGE Thank you folks! Your quick responses are VERY MUCH appreciated! I gather that applesauce will work just fine given she has no reaction to it. Mommafirst, I hadn't thought of placing the beads on my nipples! Great idea! I'll try it for sure <img...

A HUGE Thank you folks! Your quick responses are VERY MUCH appreciated! I gather that applesauce will work just fine given she has no reaction to it. Mommafirst, I hadn't thought of placing the beads on my nipples! Great idea! I'll try it for sure <img...

A HUGE Thank you folks! Your quick responses are VERY MUCH appreciated! I gather that applesauce will work just fine given she has no reaction to it. Mommafirst, I hadn't thought of placing the beads on my nipples! Great idea! I'll try it for sure <img...

Hello All, My newborn baby girl has just been diagnosed with CF. I now have two babies with CF. My son was dx'd at 9 months old and began Creon 5 immediately. We were told to give him applesauce with his enzymes. Well, I've since moved and am seeing a new CF team for my son and just spoke...

Hello All, My newborn baby girl has just been diagnosed with CF. I now have two babies with CF. My son was dx'd at 9 months old and began Creon 5 immediately. We were told to give him applesauce with his enzymes. Well, I've since moved and am seeing a new CF team for my son and just spoke...

Hello All, My newborn baby girl has just been diagnosed with CF. I now have two babies with CF. My son was dx'd at 9 months old and began Creon 5 immediately. We were told to give him applesauce with his enzymes. Well, I've since moved and am seeing a new CF team for my son and just spoke...

Oh my goodness! I'm in love <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll have a smile on my face this entire day, what precious little people you have! Okay, time to call and schedule more baby pics for my Aidan! My husband is a sailor (he's currently on deployment) and...

Oh my goodness! I'm in love <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll have a smile on my face this entire day, what precious little people you have! Okay, time to call and schedule more baby pics for my Aidan! My husband is a sailor (he's currently on deployment) and...

Oh my goodness! I'm in love <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll have a smile on my face this entire day, what precious little people you have! Okay, time to call and schedule more baby pics for my Aidan! My husband is a sailor (he's currently on deployment) and...

Hi Renee, That is absolute MADNESS! Reading your post makes me so upset. My baby boy had to endure nearly the same treatment (or mistreatment i should say) while all along I was more and more concerned that he could have CF. I kept telling the Dr's that I was a carrier and he had so many CF...

Hi Renee, That is absolute MADNESS! Reading your post makes me so upset. My baby boy had to endure nearly the same treatment (or mistreatment i should say) while all along I was more and more concerned that he could have CF. I kept telling the Dr's that I was a carrier and he had so many CF...

Hi Renee, That is absolute MADNESS! Reading your post makes me so upset. My baby boy had to endure nearly the same treatment (or mistreatment i should say) while all along I was more and more concerned that he could have CF. I kept telling the Dr's that I was a carrier and he had so many CF...

Hi Megan, I've asked the same questions to the Doc's at the CF Clinic In Seattle (I think they're great!) regarding cord blood, and they pretty much told me that it would be useless and gave me some explanation about how studies using gene therapy have not been promising so far. I was so...

Hi Megan, I've asked the same questions to the Doc's at the CF Clinic In Seattle (I think they're great!) regarding cord blood, and they pretty much told me that it would be useless and gave me some explanation about how studies using gene therapy have not been promising so far. I was so...

Hi Megan, I've asked the same questions to the Doc's at the CF Clinic In Seattle (I think they're great!) regarding cord blood, and they pretty much told me that it would be useless and gave me some explanation about how studies using gene therapy have not been promising so far. I was so...

Hi Rubie's mom, My son Aidan has this very same issue. It seemed for his weight, age, etc. the dosage of enzymes they prescribed was not enough. The docs said once we had his dosage 'right on' this should lessen and they were right. He's now 16 months old 19 lbs 8 oz. and based on my...

Hi Rubie's mom, My son Aidan has this very same issue. It seemed for his weight, age, etc. the dosage of enzymes they prescribed was not enough. The docs said once we had his dosage 'right on' this should lessen and they were right. He's now 16 months old 19 lbs 8 oz. and based on my...

Hi Rubie's mom, My son Aidan has this very same issue. It seemed for his weight, age, etc. the dosage of enzymes they prescribed was not enough. The docs said once we had his dosage 'right on' this should lessen and they were right. He's now 16 months old 19 lbs 8 oz. and based on my...

Hi there, My 16 month old cultured for PA last CF visit and has been on inhaled TOBI antibiotics since. It seems two weeks into his TOBI treatments he started grabbing and fussing with his ears. No prior ears problems before this, but now it seems to be affecting his sleep. Last night he...

Hi there, My 16 month old cultured for PA last CF visit and has been on inhaled TOBI antibiotics since. It seems two weeks into his TOBI treatments he started grabbing and fussing with his ears. No prior ears problems before this, but now it seems to be affecting his sleep. Last night he...