Search results

  1. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    YAY I figured it out <img src="i/expressions/face-icon-small-wink.gif" border="0">
  2. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    YAY I figured it out <img src="i/expressions/face-icon-small-wink.gif" border="0">
  3. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Lauren, thanks so much for your reply, it's so awesome to hear from actual people living with CF. This morning Erin asked me if we could go on this website again. I can't beleive I hadnt done it earlier. There are so many inspiring, intelligent, remarkable people here, with so much to offer...
  4. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Lauren, thanks so much for your reply, it's so awesome to hear from actual people living with CF. This morning Erin asked me if we could go on this website again. I can't beleive I hadnt done it earlier. There are so many inspiring, intelligent, remarkable people here, with so much to offer...
  5. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Lauren, thanks so much for your reply, it's so awesome to hear from actual people living with CF. This morning Erin asked me if we could go on this website again. I can't beleive I hadnt done it earlier. There are so many inspiring, intelligent, remarkable people here, with so much to offer...
  6. B

    Clinic visit precautions

    At our clinic they have very good precautionary steps, they also strictly enforce them. From the moment she enters the building she puts on a mask and foams her hands, through each step of the visit, i.e. pulmonary function tests/doctor visit she cleans her hands. The rooms are also set up...
  7. B

    Clinic visit precautions

    At our clinic they have very good precautionary steps, they also strictly enforce them. From the moment she enters the building she puts on a mask and foams her hands, through each step of the visit, i.e. pulmonary function tests/doctor visit she cleans her hands. The rooms are also set up...
  8. B

    Clinic visit precautions

    At our clinic they have very good precautionary steps, they also strictly enforce them. From the moment she enters the building she puts on a mask and foams her hands, through each step of the visit, i.e. pulmonary function tests/doctor visit she cleans her hands. The rooms are also set up...
  9. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    amysmom, that is how i have been thinking up to this point. Erin tends to be a tad dramatic (nothing like her mother) haha and I know she would take this to a point far past what it could be. I think everyone is different and putting an 'average age' on the disease is a number. Like i told my...
  10. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    amysmom, that is how i have been thinking up to this point. Erin tends to be a tad dramatic (nothing like her mother) haha and I know she would take this to a point far past what it could be. I think everyone is different and putting an 'average age' on the disease is a number. Like i told my...
  11. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    amysmom, that is how i have been thinking up to this point. Erin tends to be a tad dramatic (nothing like her mother) haha and I know she would take this to a point far past what it could be. I think everyone is different and putting an 'average age' on the disease is a number. Like i told my...
  12. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Thank you so much for your advice, this is definately a talk i have not been looking forward to, Erin is an old soul and I know she'll be fine, it's just so hard as a parent to have to do. x thanks again x Nichole
  13. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Thank you so much for your advice, this is definately a talk i have not been looking forward to, Erin is an old soul and I know she'll be fine, it's just so hard as a parent to have to do. x thanks again x Nichole
  14. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Thank you so much for your advice, this is definately a talk i have not been looking forward to, Erin is an old soul and I know she'll be fine, it's just so hard as a parent to have to do. x thanks again x Nichole
  15. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Hi, I love these boards and giving advice to new parents in giving them hope. Now myself I have a question. Erin my 11 yr old with CF is starting to ask more questions, i've been on this website with her and showed her how other kids suffer and strive with CF. I'm afriad of her seeing the...
  16. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Hi, I love these boards and giving advice to new parents in giving them hope. Now myself I have a question. Erin my 11 yr old with CF is starting to ask more questions, i've been on this website with her and showed her how other kids suffer and strive with CF. I'm afriad of her seeing the...
  17. B

    How do you tell your 11yr old (going on20) about her disease i the future?

    Hi, I love these boards and giving advice to new parents in giving them hope. Now myself I have a question. Erin my 11 yr old with CF is starting to ask more questions, i've been on this website with her and showed her how other kids suffer and strive with CF. I'm afriad of her seeing the...
  18. B

    44/43 sweat test results.......lots of questions???????

    Carrie, Isn't it amazing how much you learn from looking things up. I don't know why but the only thing I ever knew about Erin (technically) when she was diagnosed was her sweat score which was in the 60's i believe, maybe it was the way the doctor brought us into the disease, it was more how...
  19. B

    44/43 sweat test results.......lots of questions???????

    Carrie, Isn't it amazing how much you learn from looking things up. I don't know why but the only thing I ever knew about Erin (technically) when she was diagnosed was her sweat score which was in the 60's i believe, maybe it was the way the doctor brought us into the disease, it was more how...
  20. B

    44/43 sweat test results.......lots of questions???????

    Carrie, Isn't it amazing how much you learn from looking things up. I don't know why but the only thing I ever knew about Erin (technically) when she was diagnosed was her sweat score which was in the 60's i believe, maybe it was the way the doctor brought us into the disease, it was more how...
Top