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My daughter got hers at five months and it was the best decision. She is a very slow weight gainer, so with out the tube I am sure that she wouldn't be here. She also has double DF508

My daughter got hers at five months and it was the best decision. She is a very slow weight gainer, so with out the tube I am sure that she wouldn't be here. She also has double DF508

My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...

My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...

My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...

My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...

My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...

My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...

She has never been a real good sleeper, it is not that her sleep is disrupted it is that she won't go to sleep. On an average she sleeps between 4-5 hours daily. her o2 sats run between 90 and 94. I have tried not letting her take naps and that didn't make a difference. If she takes an hour nap...

She has never been a real good sleeper, it is not that her sleep is disrupted it is that she won't go to sleep. On an average she sleeps between 4-5 hours daily. her o2 sats run between 90 and 94. I have tried not letting her take naps and that didn't make a difference. If she takes an hour nap...

She has never been a real good sleeper, it is not that her sleep is disrupted it is that she won't go to sleep. On an average she sleeps between 4-5 hours daily. her o2 sats run between 90 and 94. I have tried not letting her take naps and that didn't make a difference. If she takes an hour nap...

My 3year old daughter is not a sleeper at all, we have to give her medicine most of the time to help her sleep. I was wondering if anybody else with CF kids has this problem and what they do. Also, she had just in the last month or so started complaning of leg pain. Most of the time I can rub...

My 3year old daughter is not a sleeper at all, we have to give her medicine most of the time to help her sleep. I was wondering if anybody else with CF kids has this problem and what they do. Also, she had just in the last month or so started complaning of leg pain. Most of the time I can rub...

My 3year old daughter is not a sleeper at all, we have to give her medicine most of the time to help her sleep. I was wondering if anybody else with CF kids has this problem and what they do. Also, she had just in the last month or so started complaning of leg pain. Most of the time I can rub...

My daughter was diagnoses at 5months, and had a G-tube placed a few days later,3 years later it was the best thing I could have done. She is a on and off again eater and refuses to drink her milk. With the tube I don't have to worry about her eating enough to keep her weight up. She had...

My daughter was diagnoses at 5months, and had a G-tube placed a few days later,3 years later it was the best thing I could have done. She is a on and off again eater and refuses to drink her milk. With the tube I don't have to worry about her eating enough to keep her weight up. She had...

My daughter was diagnoses at 5months, and had a G-tube placed a few days later,3 years later it was the best thing I could have done. She is a on and off again eater and refuses to drink her milk. With the tube I don't have to worry about her eating enough to keep her weight up. She had...