Search results

  1. M

    FDA VX-770

    I just read the article and was surprised that the initial approval is seeking it for patients ages 6 and over. I hadn't realized that my son, who is just about to turn 4, will not be able to take advantage of it! I had thought that they had already seen improvements in the younger age groups.
  2. M

    FDA VX-770

    I just read the article and was surprised that the initial approval is seeking it for patients ages 6 and over. I hadn't realized that my son, who is just about to turn 4, will not be able to take advantage of it! I had thought that they had already seen improvements in the younger age groups.
  3. M

    FDA VX-770

    I just read the article and was surprised that the initial approval is seeking it for patients ages 6 and over. I hadn't realized that my son, who is just about to turn 4, will not be able to take advantage of it! I had thought that they had already seen improvements in the younger age groups.
  4. M

    chickens and cf

    We have lots of chickens too (44 to be exact - although most of them are too young to lay). The fresh eggs are great and it's been a wonderful experience for the children. We just use common sense when it comes to Max = well, really, all of us. We wash our hands after holding them and Max would...
  5. M

    chickens and cf

    We have lots of chickens too (44 to be exact - although most of them are too young to lay). The fresh eggs are great and it's been a wonderful experience for the children. We just use common sense when it comes to Max = well, really, all of us. We wash our hands after holding them and Max would...
  6. M

    chickens and cf

    We have lots of chickens too (44 to be exact - although most of them are too young to lay). The fresh eggs are great and it's been a wonderful experience for the children. We just use common sense when it comes to Max = well, really, all of us. We wash our hands after holding them and Max would...
  7. M

    Received the new shipment of CF awareness bracelets!!!

    Hi Jada. I got the bracelets in the mail today. They are awesome! I even got my husband to wear one! I am sure that the kids will love them too once the get home from school! Thanks so much for having these made.
  8. M

    Received the new shipment of CF awareness bracelets!!!

    Hi Jada. I got the bracelets in the mail today. They are awesome! I even got my husband to wear one! I am sure that the kids will love them too once the get home from school! Thanks so much for having these made.
  9. M

    Received the new shipment of CF awareness bracelets!!!

    Hi Jada. I got the bracelets in the mail today. They are awesome! I even got my husband to wear one! I am sure that the kids will love them too once the get home from school! Thanks so much for having these made.
  10. M

    Received the new shipment of CF awareness bracelets!!!

    These are awesome. I am sticking my check in the mail tomorrow. Can't wait to wear it!
  11. M

    Received the new shipment of CF awareness bracelets!!!

    These are awesome. I am sticking my check in the mail tomorrow. Can't wait to wear it!
  12. M

    Received the new shipment of CF awareness bracelets!!!

    These are awesome. I am sticking my check in the mail tomorrow. Can't wait to wear it!
  13. M

    order of medications

    I do Max's morning vest followed by Pulmozyme and then in the evening, Xopenex and then 20 minutes later do the hypertonic saline while vesting. I had never been told that they shouldn't be used during the same treatment. Geez - it'd be nice if all of the clinics were on the same page ... or...
  14. M

    order of medications

    I do Max's morning vest followed by Pulmozyme and then in the evening, Xopenex and then 20 minutes later do the hypertonic saline while vesting. I had never been told that they shouldn't be used during the same treatment. Geez - it'd be nice if all of the clinics were on the same page ... or...
  15. M

    order of medications

    I do Max's morning vest followed by Pulmozyme and then in the evening, Xopenex and then 20 minutes later do the hypertonic saline while vesting. I had never been told that they shouldn't be used during the same treatment. Geez - it'd be nice if all of the clinics were on the same page ... or...
  16. M

    this winter season is terrible!

    I'm not even the one with cf in the family & I've been sick since November (3rd cough in a row). Luckily Max as avoided all but this last one.
  17. M

    this winter season is terrible!

    I'm not even the one with cf in the family & I've been sick since November (3rd cough in a row). Luckily Max as avoided all but this last one.
  18. M

    this winter season is terrible!

    I'm not even the one with cf in the family & I've been sick since November (3rd cough in a row). Luckily Max as avoided all but this last one.
  19. M

    Pseudomomas

    It was like a CF diagnosis all over again when I got the call. On a positive note, Max tolerated the Cipro and Tobi with no problems and the pseudo was eradicated after one cycle of treatment and it hasn't shown up again (really hoping that it stays away forever). Good luck with the new...
  20. M

    Pseudomomas

    It was like a CF diagnosis all over again when I got the call. On a positive note, Max tolerated the Cipro and Tobi with no problems and the pseudo was eradicated after one cycle of treatment and it hasn't shown up again (really hoping that it stays away forever). Good luck with the new...
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