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It was like a CF diagnosis all over again when I got the call. On a positive note, Max tolerated the Cipro and Tobi with no problems and the pseudo was eradicated after one cycle of treatment and it hasn't shown up again (really hoping that it stays away forever). Good luck with the new...

I always get my amazon gift cards e-mailed within a day or so. I would definitely call customer service (if it isn't in your spam folder <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maybe verify that you input your e-mail correctly??

I always get my amazon gift cards e-mailed within a day or so. I would definitely call customer service (if it isn't in your spam folder <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maybe verify that you input your e-mail correctly??

I always get my amazon gift cards e-mailed within a day or so. I would definitely call customer service (if it isn't in your spam folder <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maybe verify that you input your e-mail correctly??

Max already had to deal with the loss of Ultrase, this makes me nervous now about the fate of Zenpep.

Max already had to deal with the loss of Ultrase, this makes me nervous now about the fate of Zenpep.

Max already had to deal with the loss of Ultrase, this makes me nervous now about the fate of Zenpep.

I flew Delta earlier this year & I had no problems. I had a letter from the doctor outlining Max's diagnosis & made sure the RX labels were on the medication. In addition, the medical equipment (which included his vest & another bag w/his meds & vest accessories) did not count toward my carry-on...

I flew Delta earlier this year & I had no problems. I had a letter from the doctor outlining Max's diagnosis & made sure the RX labels were on the medication. In addition, the medical equipment (which included his vest & another bag w/his meds & vest accessories) did not count toward my carry-on...

I flew Delta earlier this year & I had no problems. I had a letter from the doctor outlining Max's diagnosis & made sure the RX labels were on the medication. In addition, the medical equipment (which included his vest & another bag w/his meds & vest accessories) did not count toward my carry-on...

When Ultrase became unavailable, we switched to Creon & were met with horrible results. Even at the maximum dosage, Max had tummy aches everyday & his multiple bm's per day were loaded with grease & never looked close to normal. After switching to Zenpep, no more tummy aches & bm's look normal...

When Ultrase became unavailable, we switched to Creon & were met with horrible results. Even at the maximum dosage, Max had tummy aches everyday & his multiple bm's per day were loaded with grease & never looked close to normal. After switching to Zenpep, no more tummy aches & bm's look normal...

When Ultrase became unavailable, we switched to Creon & were met with horrible results. Even at the maximum dosage, Max had tummy aches everyday & his multiple bm's per day were loaded with grease & never looked close to normal. After switching to Zenpep, no more tummy aches & bm's look normal...

Sounds just like Max. Won't ever keep covers on & usually wakes up sweaty - sometimes even leaving wet marks on the bed.

Sounds just like Max. Won't ever keep covers on & usually wakes up sweaty - sometimes even leaving wet marks on the bed.

Sounds just like Max. Won't ever keep covers on & usually wakes up sweaty - sometimes even leaving wet marks on the bed.

Mine stays wet too and that bothered me as well. To combat this, I remove mine and dry them in a germ guardian, where they stay until use. The germ guardian apparently doesn't get hot enough, for long enough to actually sterilize, but it does a wonderful job getting everything dry! Before the...

Mine stays wet too and that bothered me as well. To combat this, I remove mine and dry them in a germ guardian, where they stay until use. The germ guardian apparently doesn't get hot enough, for long enough to actually sterilize, but it does a wonderful job getting everything dry! Before the...

Mine stays wet too and that bothered me as well. To combat this, I remove mine and dry them in a germ guardian, where they stay until use. The germ guardian apparently doesn't get hot enough, for long enough to actually sterilize, but it does a wonderful job getting everything dry! Before the...

Liza, we have BCBS as well and that Creon is the only "preferred" enzyme per our policy. However, Creon did not work at all with Max and I wrote an appeals letter to them outlining the ill effects it was having on him, as well as the long-term health ramifications of using an enzyme that simply...