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I applied for SSI for my daughter because several social workers told me I should. She was denied and the SSA gave me the specifics on who qualifies and why my daughter does not. Several people have told me I should make an appeal, and/or hire a lawyer to help me make an appeal. I have also...

I applied for SSI for my daughter because several social workers told me I should. She was denied and the SSA gave me the specifics on who qualifies and why my daughter does not. Several people have told me I should make an appeal, and/or hire a lawyer to help me make an appeal. I have also...

where do you live? I have creon 6

where do you live? I have creon 6

where do you live? <br />I have creon 6

My daughter is bottlefed, but whenever I cant get her to finish her salt bottle i add a little salt to her rice cereal. She eats it better that way.

My daughter is bottlefed, but whenever I cant get her to finish her salt bottle i add a little salt to her rice cereal. She eats it better that way.

My daughter is bottlefed, but whenever I cant get her to finish her salt bottle i add a little salt to her rice cereal. She eats it better that way.

What have his doctors said? Have they diagnosed him with anything? I dont know what tests they did for my daughter. I think just the basic newborn screening test and both mutations came up. I know that there are more extensive tests like the Ambry but if his tests came back as a carrier and your...

What have his doctors said? Have they diagnosed him with anything? I dont know what tests they did for my daughter. I think just the basic newborn screening test and both mutations came up. I know that there are more extensive tests like the Ambry but if his tests came back as a carrier and your...

What have his doctors said? Have they diagnosed him with anything? I dont know what tests they did for my daughter. I think just the basic newborn screening test and both mutations came up. I know that there are more extensive tests like the Ambry but if his tests came back as a carrier and your...

My daughter didnt get a sweat test right away... we started enzymes and she responded well and started growing. They finally did the sweat test and the numbers were 13. They retested her stool and her pancreas is now working. Even though the sweat test was really low the genetics have proved...

My daughter didnt get a sweat test right away... we started enzymes and she responded well and started growing. They finally did the sweat test and the numbers were 13. They retested her stool and her pancreas is now working. Even though the sweat test was really low the genetics have proved...

My daughter didnt get a sweat test right away... we started enzymes and she responded well and started growing. They finally did the sweat test and the numbers were 13. They retested her stool and her pancreas is now working. Even though the sweat test was really low the genetics have proved...

Thank you for your info Steve. I am very interested in genetics and having being studying CF since I was a teenager. Now that I have a daughter, and oddly enough she has CF, I want even more to go into genetic researching and study the genetic side of cf. Do you have any advice on how I can get...

Oh, Thank you. Thats good to hear. And I completely understand that this disease is progressive and will worsen over time. I am just so glad that she doesnt have to have enzymes for the time being. Thank you for your information, its good to hear other peoples experiences so I can understand...

Oh, Thank you. Thats good to hear. And I completely understand that this disease is progressive and will worsen over time. I am just so glad that she doesnt have to have enzymes for the time being. Thank you for your information, its good to hear other peoples experiences so I can understand...

Oh, Thank you. Thats good to hear. And I completely understand that this disease is progressive and will worsen over time. I am just so glad that she doesnt have to have enzymes for the time being. Thank you for your information, its good to hear other peoples experiences so I can understand...

My DD has the mutations deltaf508 and f508c. From what i've read, in some cases, the f508c mutation has been benign. That was not the case with my daughter. She had pancreatic insufficiency and was put on enzymes. The lack of sweat at 2 months old resulted in no sweat test until 4 months. The...

What do PI and PS mean? how is your dd doing now? i dont know what the numbers were for either time. I will have to ask.