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  1. J

    Is there any other CF talk sites

    Hello all, I am new to this and I was wondering if anyone knew of differant CF sites that people can talk to other people about CF. I am a mom with a 16 year old son w/cf. If anyone can help me I would very much appreciate it . God Bless Becca mom of Justin w/cf melissa 20 no/cf
  2. J

    GETTING TO KNOW EVERYONE

    Hi everyone I am also new to this forum but here goes My name is Becca I own my own business. My husband Larry is a truck driver. I have a 20 year old daughter Melissa no/cf she is a charmer. My sons name is Justin or JR for what his friends call him. He is 16. He is an active young man...
  3. J

    i didnt mean to.......................

    Seana, Don't be sorry for saying how you feel if that is your feeling. you should be able to express them that is what this site is for. CFers and parents alike should feel free to express themselves without fear of being bashed. I am a parent of a cfer myself. Life is to short for all of us...
  4. J

    in response to post...to adult CFers....please read

    Seana, reading your story was like reading my own life... when my son was born he came down with a bad cold that never went away. the doc said do a sweet test it came back not able to tell he was to young at the time. The docs said just a bad cold don't worry about it. I took him to 15 diff...
  5. J

    HEY IF YOU NEED TO 'SPILL YOUR GUTS ABOUT C.F.' POST IT HERE AND I'LL TRY TO HELP.

    You know I can be at my most stressed, depressed, on the verg of tears and I can find people that can still make me laugh.. Thanks guys for the laugh you all gave me tonight....In one week my son might be going back in the hospital. Thanks Becca
  6. J

    Question about symptom my step-son is having

    I also question why they gave him flonase. My son takes that for polups in his nose but never for his chest. He takes albuteral and flovent for air way clearance. He has had headachs when he plays to hard and doesn't watch things like rest, water and even salt intake. The pain could be any...
  7. J

    Problem with pharmacy

    I had trouble getting my sons pulmozyme from a wal mart pharmacy. they told me that they could not order it anymore because he was the only one they had that takes it and it cost to much. I switched to Wal greens and have had no problems getting it. They even send me an email letting me know it...
  8. J

    turning blue

    My sons nails turned blue during this last school year. A teacher noticed and brought it to my attention. I took him right away to the docs and they put him in the hospital for two weeks. Lung function was down but his o2 wasn't go figure. Don't take any chances find out what is up real soon for...
  9. J

    Help

    I am sorry to hear about the trouble you and your son are having health wise. My son also suffers with aspergillas trouble. He almost died in 97 from the highest count the docs had seen. It took them 3 weeks to find out what it was. He is also on the itraconazole meds. What they also put him on...
  10. J

    please, can anyone relate?

    Crystal.... I can't relate in a way to what you feel being married to a CFer. I am a mom of a 16 yr old CFer. What I can tell you is I know what losing a husband feels like. My husband died 6 yrs ago in a auto accident. I know that one day I might lose my son to but you need to let go of the...
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