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  1. K

    Another damaging misdiagnosis...

    I am so sorry to hear about your daughter. Something similar (although not quite as tramatic) happened to Kenzie when she was younger. I hope she is feeling better and jumping around soon...............
  2. K

    Am I bad person?

    Especially when they are smaller and you are doing so much all the time it does get overwhelming and the worry makes you sick, but everyday we find new strength and our children are the srongest people I have ever seen. People just don't understand how it is to be in our position, how could...
  3. K

    Am I bad person?

    Especially when they are smaller and you are doing so much all the time it does get overwhelming and the worry makes you sick, but everyday we find new strength and our children are the srongest people I have ever seen. People just don't understand how it is to be in our position, how could...
  4. K

    Am I bad person?

    Especially when they are smaller and you are doing so much all the time it does get overwhelming and the worry makes you sick, but everyday we find new strength and our children are the srongest people I have ever seen. People just don't understand how it is to be in our position, how could...
  5. K

    Am I bad person?

    Especially when they are smaller and you are doing so much all the time it does get overwhelming and the worry makes you sick, but everyday we find new strength and our children are the srongest people I have ever seen. People just don't understand how it is to be in our position, how could...
  6. K

    Am I bad person?

    Especially when they are smaller and you are doing so much all the time it does get overwhelming and the worry makes you sick, but everyday we find new strength and our children are the srongest people I have ever seen. People just don't understand how it is to be in our position, how could...
  7. K

    Question on when I might start using a.m. nebs?

    We do xopenex and Hypertonic Saline in the am, Xopenex and pulmozyme around 3:30 in the afternoon and Xopenex and Hypertonic Saline in pm. Every other month we do Tobi in the am and pm nebs, We also are doing the vest with the nebs.
  8. K

    Question on when I might start using a.m. nebs?

    We do xopenex and Hypertonic Saline in the am, Xopenex and pulmozyme around 3:30 in the afternoon and Xopenex and Hypertonic Saline in pm. Every other month we do Tobi in the am and pm nebs, We also are doing the vest with the nebs.
  9. K

    Question on when I might start using a.m. nebs?

    We do xopenex and Hypertonic Saline in the am, Xopenex and pulmozyme around 3:30 in the afternoon and Xopenex and Hypertonic Saline in pm. Every other month we do Tobi in the am and pm nebs, We also are doing the vest with the nebs.
  10. K

    Question on when I might start using a.m. nebs?

    We do xopenex and Hypertonic Saline in the am, Xopenex and pulmozyme around 3:30 in the afternoon and Xopenex and Hypertonic Saline in pm. Every other month we do Tobi in the am and pm nebs, We also are doing the vest with the nebs.
  11. K

    Question on when I might start using a.m. nebs?

    We do xopenex and Hypertonic Saline in the am, Xopenex and pulmozyme around 3:30 in the afternoon and Xopenex and Hypertonic Saline in pm. Every other month we do Tobi in the am and pm nebs, We also are doing the vest with the nebs.
  12. K

    new to this forum---many questions

    Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3...
  13. K

    new to this forum---many questions

    Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3...
  14. K

    new to this forum---many questions

    Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3...
  15. K

    new to this forum---many questions

    Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3...
  16. K

    new to this forum---many questions

    Thats exactly it. Mackenzie coughed a little more than usual last night and for some reason set off this anxiety attack in me that I could not control. I asked her if she was ok and got the normal "yeah, fine!" We have had a lot of smoke in our area from the California fires for the last 3...
  17. K

    new to this forum---many questions

    Thanks for your reply, I never realized how nice it would be to hear from someone who could totally understand what I was going through. What releif that I am not alone. I should have found this forum years ago. I got my daughter to join a month ago but she has not been on since. I'm glad...
  18. K

    new to this forum---many questions

    Thanks for your reply, I never realized how nice it would be to hear from someone who could totally understand what I was going through. What releif that I am not alone. I should have found this forum years ago. I got my daughter to join a month ago but she has not been on since. I'm glad...
  19. K

    new to this forum---many questions

    Thanks for your reply, I never realized how nice it would be to hear from someone who could totally understand what I was going through. What releif that I am not alone. I should have found this forum years ago. I got my daughter to join a month ago but she has not been on since. I'm glad...
  20. K

    new to this forum---many questions

    Thanks for your reply, I never realized how nice it would be to hear from someone who could totally understand what I was going through. What releif that I am not alone. I should have found this forum years ago. I got my daughter to join a month ago but she has not been on since. I'm glad...
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