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  1. J

    History of Cystic Fibrosis

    I never questioned the compentence of the staff based on the comment. It just sounded funny to me. We are at a hospital with an accredited CF clinic and we've been very happy with her treatment here. The staff have been wonderful about wearing masks, gloves, etc. when coming into her room...
  2. J

    History of Cystic Fibrosis

    I never questioned the compentence of the staff based on the comment. It just sounded funny to me. We are at a hospital with an accredited CF clinic and we've been very happy with her treatment here. The staff have been wonderful about wearing masks, gloves, etc. when coming into her room...
  3. J

    History of Cystic Fibrosis

    I never questioned the compentence of the staff based on the comment. It just sounded funny to me. We are at a hospital with an accredited CF clinic and we've been very happy with her treatment here. The staff have been wonderful about wearing masks, gloves, etc. when coming into her room...
  4. J

    History of Cystic Fibrosis

    My DD is in the hospital for a kidney infection. This is only her second hospitalization (the first was for mis-diagnosed Type 1 diabetes.) She went in Monday night and we're keeping our fingers crossed that they will release her tomorrow. I was struck by several mentions from Nurses or...
  5. J

    History of Cystic Fibrosis

    My DD is in the hospital for a kidney infection. This is only her second hospitalization (the first was for mis-diagnosed Type 1 diabetes.) She went in Monday night and we're keeping our fingers crossed that they will release her tomorrow. I was struck by several mentions from Nurses or...
  6. J

    History of Cystic Fibrosis

    My DD is in the hospital for a kidney infection. This is only her second hospitalization (the first was for mis-diagnosed Type 1 diabetes.) She went in Monday night and we're keeping our fingers crossed that they will release her tomorrow. <br /> <br />I was struck by several mentions from...
  7. J

    I wonder

    Some people with CF are pancreatic sufficient and do not have weight problems. I wouldn't rule out CF based on weight. There are over 1300 known mutations that cause CF. You should get the full Ambry panel. Have you had the sweat test?
  8. J

    I wonder

    Some people with CF are pancreatic sufficient and do not have weight problems. I wouldn't rule out CF based on weight. There are over 1300 known mutations that cause CF. You should get the full Ambry panel. Have you had the sweat test?
  9. J

    I wonder

    Some people with CF are pancreatic sufficient and do not have weight problems. I wouldn't rule out CF based on weight. There are over 1300 known mutations that cause CF. You should get the full Ambry panel. Have you had the sweat test?
  10. J

    can we talk poop?

    Both of my non-CFers started having constipation issues when they were around 2 years old. I think because they started drinking less milk. My CFer has never had constipation problems. It could be she is just changing her drinking and eating as she gets older and is not drinking enough liquids.
  11. J

    can we talk poop?

    Both of my non-CFers started having constipation issues when they were around 2 years old. I think because they started drinking less milk. My CFer has never had constipation problems. It could be she is just changing her drinking and eating as she gets older and is not drinking enough liquids.
  12. J

    can we talk poop?

    Both of my non-CFers started having constipation issues when they were around 2 years old. I think because they started drinking less milk. My CFer has never had constipation problems. It could be she is just changing her drinking and eating as she gets older and is not drinking enough liquids.
  13. J

    Breastfeeding troubles

    Just want to add that Vitamin D helps you absorb calcium better. Make sure that either the Calcium supplement you take also contains Vitamin D or you take a Vitamin D supplement with the Calcium.
  14. J

    Breastfeeding troubles

    Just want to add that Vitamin D helps you absorb calcium better. Make sure that either the Calcium supplement you take also contains Vitamin D or you take a Vitamin D supplement with the Calcium.
  15. J

    Breastfeeding troubles

    Just want to add that Vitamin D helps you absorb calcium better. Make sure that either the Calcium supplement you take also contains Vitamin D or you take a Vitamin D supplement with the Calcium.
  16. J

    Breastfeeding troubles

    I am so glad your dd is doing better. I breastfed my CF DD for 2 1/2 years. She was allergic to both milk and soy. I had to cut out all dairy and soy during that time. We couldn't have any processed foods or eat at restaurants. I lost a lot of weight without even trying even though I ate...
  17. J

    Breastfeeding troubles

    I am so glad your dd is doing better. I breastfed my CF DD for 2 1/2 years. She was allergic to both milk and soy. I had to cut out all dairy and soy during that time. We couldn't have any processed foods or eat at restaurants. I lost a lot of weight without even trying even though I ate...
  18. J

    Breastfeeding troubles

    I am so glad your dd is doing better. I breastfed my CF DD for 2 1/2 years. She was allergic to both milk and soy. I had to cut out all dairy and soy during that time. We couldn't have any processed foods or eat at restaurants. I lost a lot of weight without even trying even though I ate...
  19. J

    CF children in school

    We have also had a lot of problems with our dd and eating though things seem to be much better now. We also had a nurse at school who insisted that all medications had to be administered in the Nurse's office. We were adamant that she not be required to run to the nurse's office where sick...
  20. J

    CF children in school

    We have also had a lot of problems with our dd and eating though things seem to be much better now. We also had a nurse at school who insisted that all medications had to be administered in the Nurse's office. We were adamant that she not be required to run to the nurse's office where sick...
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