Search results

  1. H

    Hypertonic Saline

    Hey! Yes, that is our Maggie. I know, I love her thighs, too. She has lost her budda belly as she is growing so long. But the thighs remain! She lets us just pour the enzymes in her mouth...she takes 3 capsules one right after the other that way. One of the benefits of starting enzymes at...
  2. H

    Hypertonic Saline

    Hey! Yes, that is our Maggie. I know, I love her thighs, too. She has lost her budda belly as she is growing so long. But the thighs remain! She lets us just pour the enzymes in her mouth...she takes 3 capsules one right after the other that way. One of the benefits of starting enzymes at...
  3. H

    Hypertonic Saline

    Hey! Yes, that is our Maggie. I know, I love her thighs, too. She has lost her budda belly as she is growing so long. But the thighs remain! She lets us just pour the enzymes in her mouth...she takes 3 capsules one right after the other that way. One of the benefits of starting enzymes at...
  4. H

    Hypertonic Saline

    My 8 month old daughter just had an Infant PFT last week. At the same time, they gave her HTS to see how she would tolerate it. She did great. So, we will be starting HTS. She has been on Pulmozyme since she was 3 weeks old. Pulmozyme and HTS do work on two different things going on in the...
  5. H

    Hypertonic Saline

    My 8 month old daughter just had an Infant PFT last week. At the same time, they gave her HTS to see how she would tolerate it. She did great. So, we will be starting HTS. She has been on Pulmozyme since she was 3 weeks old. Pulmozyme and HTS do work on two different things going on in the...
  6. H

    Hypertonic Saline

    My 8 month old daughter just had an Infant PFT last week. At the same time, they gave her HTS to see how she would tolerate it. She did great. So, we will be starting HTS. She has been on Pulmozyme since she was 3 weeks old. Pulmozyme and HTS do work on two different things going on in the...
  7. H

    Denied Pulmozyme

    Hello! I have a 6 month old with CF and I just happen to work at Genentech which manufactures Pulmozyme. Here is a link that may help you: http://www.pulmozyme.com/patient/3_0_services_for_patients_and_families.jsp There is the Genentech Endowmnent for Cystic Fibrosis that is there help...
  8. H

    Denied Pulmozyme

    Hello! I have a 6 month old with CF and I just happen to work at Genentech which manufactures Pulmozyme. Here is a link that may help you: http://www.pulmozyme.com/patient/3_0_services_for_patients_and_families.jsp There is the Genentech Endowmnent for Cystic Fibrosis that is there help...
  9. H

    Denied Pulmozyme

    Hello! I have a 6 month old with CF and I just happen to work at Genentech which manufactures Pulmozyme. Here is a link that may help you: http://www.pulmozyme.com/patient/3_0_services_for_patients_and_families.jsp There is the Genentech Endowmnent for Cystic Fibrosis that is there help...
  10. H

    www.6500redroses.com

    Hello! My name is Holly Bendz and I have a 6 month old daughter (Maggie-Faye) with Cystic Fibrosis. My husband has started a photography project to raise money for Cystic Fibrosis Research, Inc. You don't have to donate to be a part of the project (especially if you are dealing with the cost of...
  11. H

    www.6500redroses.com

    Hello! My name is Holly Bendz and I have a 6 month old daughter (Maggie-Faye) with Cystic Fibrosis. My husband has started a photography project to raise money for Cystic Fibrosis Research, Inc. You don't have to donate to be a part of the project (especially if you are dealing with the cost of...
  12. H

    www.6500redroses.com

    Hello! My name is Holly Bendz and I have a 6 month old daughter (Maggie-Faye) with Cystic Fibrosis. My husband has started a photography project to raise money for Cystic Fibrosis Research, Inc. You don't have to donate to be a part of the project (especially if you are dealing with the cost of...
  13. H

    www.6500redroses.com

    Hello! My name is Holly Bendz and I have a 6 month old daughter (Maggie-Faye) with Cystic Fibrosis. My husband has started a photography project to raise money for Cystic Fibrosis Research, Inc. You don't have to donate to be a part of the project (especially if you are dealing with the cost of...
  14. H

    www.6500redroses.com

    Hello! My name is Holly Bendz and I have a 6 month old daughter (Maggie-Faye) with Cystic Fibrosis. My husband has started a photography project to raise money for Cystic Fibrosis Research, Inc. You don't have to donate to be a part of the project (especially if you are dealing with the cost of...
  15. H

    www.6500redroses.com

    Hello! My name is Holly Bendz and I have a 6 month old daughter (Maggie-Faye) with Cystic Fibrosis. My husband has started a photography project to raise money for Cystic Fibrosis Research, Inc. You don't have to donate to be a part of the project (especially if you are dealing with the cost of...
  16. H

    www.6500redroses.com

    Hello! We need your help! We go to the CF Clinic at Lucille Packard Hospital in Palo Alto, CA. (Dr. Moss who is the head of the clinic was referenced in another posting recently). Well, the hospital wants to promote the 6500redroses project! However, before they involve the media and do a...
  17. H

    www.6500redroses.com

    Hello! We need your help! We go to the CF Clinic at Lucille Packard Hospital in Palo Alto, CA. (Dr. Moss who is the head of the clinic was referenced in another posting recently). Well, the hospital wants to promote the 6500redroses project! However, before they involve the media and do a...
  18. H

    www.6500redroses.com

    Hello! We need your help! We go to the CF Clinic at Lucille Packard Hospital in Palo Alto, CA. (Dr. Moss who is the head of the clinic was referenced in another posting recently). Well, the hospital wants to promote the 6500redroses project! However, before they involve the media and do a...
  19. H

    www.6500redroses.com

    Oh, Julie! That is WONDERFUL!! We look forward to receiving the photo(s)! Maggie-Faye will be 6 months March 3rd. Can you believe how quickly time flies now? Congratulations on the triplets!! Holly
  20. H

    www.6500redroses.com

    Oh, Julie! That is WONDERFUL!! We look forward to receiving the photo(s)! Maggie-Faye will be 6 months March 3rd. Can you believe how quickly time flies now? Congratulations on the triplets!! Holly
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