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I agree with others who have said to talk to the nurse. When is your next scheduled cliic visit? If it is weeks or months away, demand that your daughter be seen sooner if you really feel she should be. If they can't fit you in, see your family doctor and maybe they can communicate with your...

I agree with others who have said to talk to the nurse. When is your next scheduled cliic visit? If it is weeks or months away, demand that your daughter be seen sooner if you really feel she should be. If they can't fit you in, see your family doctor and maybe they can communicate with your...

My daughter finished 28 days on Tobi at the end of July. When the nurse called me with the culture results and instructions for Tobi/Cipro, I specifically asked when we should return for a repeat throat culture. The nurse told me to wait about a month, give them a call, and they would have us...

My daughter finished 28 days on Tobi at the end of July. When the nurse called me with the culture results and instructions for Tobi/Cipro, I specifically asked when we should return for a repeat throat culture. The nurse told me to wait about a month, give them a call, and they would have us...

My daughter finished 28 days on Tobi at the end of July. When the nurse called me with the culture results and instructions for Tobi/Cipro, I specifically asked when we should return for a repeat throat culture. The nurse told me to wait about a month, give them a call, and they would have us...

Just thought I would update. Our pediatrician felt the brown discoloration was due to the antibiotics (Cipro and Tobi). We were referred to an ENT, who we saw the next day, and he agreed. He prescribed Nystatin oral rinse to be used 4x daily. He also recommended rinsing with water after each...

Just thought I would update. Our pediatrician felt the brown discoloration was due to the antibiotics (Cipro and Tobi). We were referred to an ENT, who we saw the next day, and he agreed. He prescribed Nystatin oral rinse to be used 4x daily. He also recommended rinsing with water after each...

Just thought I would update. Our pediatrician felt the brown discoloration was due to the antibiotics (Cipro and Tobi). We were referred to an ENT, who we saw the next day, and he agreed. He prescribed Nystatin oral rinse to be used 4x daily. He also recommended rinsing with water after each...

Thanks for your responses. Thankfully, her tongue does not look quite as disgusting as the link Liza posted! We are seeing our family doc tomorrow to see what they can tell us. Her CF doc insists it is nothing to do with her current meds. I first noticed the brown tongue on day 5 of her...

Thanks for your responses. Thankfully, her tongue does not look quite as disgusting as the link Liza posted! We are seeing our family doc tomorrow to see what they can tell us. Her CF doc insists it is nothing to do with her current meds. I first noticed the brown tongue on day 5 of her...

Thanks for your responses. Thankfully, her tongue does not look quite as disgusting as the link Liza posted! <br /> <br />We are seeing our family doc tomorrow to see what they can tell us. Her CF doc insists it is nothing to do with her current meds. I first noticed the brown tongue on day...

My 6-year old is in the middle of a 28-day course of Tobi and Cipro for pseudomonas. About a week ago, we noticed her tongue is brown! I called her CF clinic and they said they have never seen this before as a side effect to either Tobi or Cipro. They even checked with a pharmacist about it...

My 6-year old is in the middle of a 28-day course of Tobi and Cipro for pseudomonas. About a week ago, we noticed her tongue is brown! I called her CF clinic and they said they have never seen this before as a side effect to either Tobi or Cipro. They even checked with a pharmacist about it...

My 6-year old is in the middle of a 28-day course of Tobi and Cipro for pseudomonas. About a week ago, we noticed her tongue is brown! I called her CF clinic and they said they have never seen this before as a side effect to either Tobi or Cipro. They even checked with a pharmacist about it...

I also received a response from Beth Fritsch with pretty much the same statement you described. It probably took them all this time to come up with the standard language to be used in all responses to inquiries about the enzyme issue! My daughter made the switch from Ultrase to Creon, so I...

I also received a response from Beth Fritsch with pretty much the same statement you described. It probably took them all this time to come up with the standard language to be used in all responses to inquiries about the enzyme issue! My daughter made the switch from Ultrase to Creon, so I...

I also received a response from Beth Fritsch with pretty much the same statement you described. It probably took them all this time to come up with the standard language to be used in all responses to inquiries about the enzyme issue! <br /> <br />My daughter made the switch from Ultrase to...

My daughter has been taking Ultrase MT12. Our nurse said switching to Creon will be the best option because the formulations are very similar between the two. They are not switching many of their patients to Zenpep.

My daughter has been taking Ultrase MT12. Our nurse said switching to Creon will be the best option because the formulations are very similar between the two. They are not switching many of their patients to Zenpep.

My daughter has been taking Ultrase MT12. Our nurse said switching to Creon will be the best option because the formulations are very similar between the two. They are not switching many of their patients to Zenpep.