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I have also sent an email to the FDA. If you are on Facebook, check out the Cystic Fibrosis Foundation page. I saw some comments posted there with additional comments. I am sure someone at the CFF monitors that page and who knows, maybe they are keeping a tally of the number of people upset...

I have also sent an email to the FDA. If you are on Facebook, check out the Cystic Fibrosis Foundation page. I saw some comments posted there with additional comments. I am sure someone at the CFF monitors that page and who knows, maybe they are keeping a tally of the number of people upset...

I have also sent an email to the FDA. <br /> <br />If you are on Facebook, check out the Cystic Fibrosis Foundation page. I saw some comments posted there with additional comments. I am sure someone at the CFF monitors that page and who knows, maybe they are keeping a tally of the number of...

Our clinic said that our insurance would no longer cover Ultrase even if the pharmacy was able to get it. I don't know what the cost would be without insurance, but I am certain it would be more than we could afford right now. We'll be switching to Creon if our current supply runs out before...

Our clinic said that our insurance would no longer cover Ultrase even if the pharmacy was able to get it. I don't know what the cost would be without insurance, but I am certain it would be more than we could afford right now. We'll be switching to Creon if our current supply runs out before...

Our clinic said that our insurance would no longer cover Ultrase even if the pharmacy was able to get it. I don't know what the cost would be without insurance, but I am certain it would be more than we could afford right now. We'll be switching to Creon if our current supply runs out before...

Tammy - we'll be giving Zyrtec a try this season and hope that it helps! jackmommy -- thanks for answering the question about gentamicin. They are checking blood levels every week and we also run it over 30 minutes. I am not sure when, but there was mention of having her hearing tested at...

Tammy - we'll be giving Zyrtec a try this season and hope that it helps! jackmommy -- thanks for answering the question about gentamicin. They are checking blood levels every week and we also run it over 30 minutes. I am not sure when, but there was mention of having her hearing tested at...

Tammy - we'll be giving Zyrtec a try this season and hope that it helps! jackmommy -- thanks for answering the question about gentamicin. They are checking blood levels every week and we also run it over 30 minutes. I am not sure when, but there was mention of having her hearing tested at...

Tammy - we'll be giving Zyrtec a try this season and hope that it helps! jackmommy -- thanks for answering the question about gentamicin. They are checking blood levels every week and we also run it over 30 minutes. I am not sure when, but there was mention of having her hearing tested at...

Tammy - we'll be giving Zyrtec a try this season and hope that it helps! <br /> <br />jackmommy -- thanks for answering the question about gentamicin. They are checking blood levels every week and we also run it over 30 minutes. I am not sure when, but there was mention of having her hearing...

Tammy, I am wondering if allergies are playing a role in my daughters situation as well. We haven't done any allergy testing but this time last year she was having issues when the weather started getting warmer and she was outside more. We are in Michigan and I am hearing that the pollen...

Tammy, I am wondering if allergies are playing a role in my daughters situation as well. We haven't done any allergy testing but this time last year she was having issues when the weather started getting warmer and she was outside more. We are in Michigan and I am hearing that the pollen...

Tammy, I am wondering if allergies are playing a role in my daughters situation as well. We haven't done any allergy testing but this time last year she was having issues when the weather started getting warmer and she was outside more. We are in Michigan and I am hearing that the pollen...

Tammy, I am wondering if allergies are playing a role in my daughters situation as well. We haven't done any allergy testing but this time last year she was having issues when the weather started getting warmer and she was outside more. We are in Michigan and I am hearing that the pollen...

Tammy, I am wondering if allergies are playing a role in my daughters situation as well. We haven't done any allergy testing but this time last year she was having issues when the weather started getting warmer and she was outside more. We are in Michigan and I am hearing that the pollen...

I don't see what the problem would have been with doing PFTs while she was in the hospital. We were there, with not much to do but treatments and finding things to occupy her, so really, what harm could it have done to at least do one or two PFTs while there? We walked around the hospital...

I don't see what the problem would have been with doing PFTs while she was in the hospital. We were there, with not much to do but treatments and finding things to occupy her, so really, what harm could it have done to at least do one or two PFTs while there? We walked around the hospital...

I don't see what the problem would have been with doing PFTs while she was in the hospital. We were there, with not much to do but treatments and finding things to occupy her, so really, what harm could it have done to at least do one or two PFTs while there? We walked around the hospital...

I don't see what the problem would have been with doing PFTs while she was in the hospital. We were there, with not much to do but treatments and finding things to occupy her, so really, what harm could it have done to at least do one or two PFTs while there? We walked around the hospital...