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    Montage

    Great pictures and love the music! <br /> <br />Sandra, mom to Sara, 7 w/CF
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    Great Strides Video

    Tonya, love your video!! Your kids are both so beautiful! Sandra
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    Great Strides Video

    Tonya, love your video!! Your kids are both so beautiful! Sandra
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    Great Strides Video

    Tonya, love your video!! Your kids are both so beautiful! <br /> <br />Sandra
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    Those who fake having CF :(

    OMG, that is just so incredibly horrible!! Reporting her to mods on forums is the best way to go, but on Facebook, I think I would start posting comments on her wall or commenting on her status updates. I would try to "out" her to her Facebook friends. Any of them that I know personally, I...
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    Those who fake having CF :(

    OMG, that is just so incredibly horrible!! Reporting her to mods on forums is the best way to go, but on Facebook, I think I would start posting comments on her wall or commenting on her status updates. I would try to "out" her to her Facebook friends. Any of them that I know personally, I...
  7. A

    Those who fake having CF :(

    OMG, that is just so incredibly horrible!! <br /> <br />Reporting her to mods on forums is the best way to go, but on Facebook, I think I would start posting comments on her wall or commenting on her status updates. I would try to "out" her to her Facebook friends. Any of them that I know...
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    Inaccurate Facebook Postings

    I noticed the same thing yesterday! There was also a string of comments about treatments people use and I noticed big differences in how pulmozyme is used. Some people said their docs tell them to do it an hour or more before vest . . . I had never heard this before. Another person said...
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    Inaccurate Facebook Postings

    I noticed the same thing yesterday! There was also a string of comments about treatments people use and I noticed big differences in how pulmozyme is used. Some people said their docs tell them to do it an hour or more before vest . . . I had never heard this before. Another person said...
  10. A

    Inaccurate Facebook Postings

    I noticed the same thing yesterday! <br /> <br />There was also a string of comments about treatments people use and I noticed big differences in how pulmozyme is used. Some people said their docs tell them to do it an hour or more before vest . . . I had never heard this before. Another...
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    Preventative measures for lung health

    We went to an accredited cf center upon diagnosis when my daughter was 18 months old. The doctors there have been in practice for 20+ years treating cf patients. At our first visit, we were told that we would eventually do CPT and get a vest. At every visit thereafter, I always asked when...
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    Preventative measures for lung health

    We went to an accredited cf center upon diagnosis when my daughter was 18 months old. The doctors there have been in practice for 20+ years treating cf patients. At our first visit, we were told that we would eventually do CPT and get a vest. At every visit thereafter, I always asked when...
  13. A

    Preventative measures for lung health

    We went to an accredited cf center upon diagnosis when my daughter was 18 months old. The doctors there have been in practice for 20+ years treating cf patients. <br /> <br />At our first visit, we were told that we would eventually do CPT and get a vest. At every visit thereafter, I always...
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    Pseudomonas - protocol for follow up culture

    I would like to avoid the every other month indefinitely path, if at all possible, which is why I would think it would be helpful to culture a month after finishing Tobi and get started on it again if PA is still lurking in there. This was the second time my daughter cultured PA - first time...
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    Pseudomonas - protocol for follow up culture

    I would like to avoid the every other month indefinitely path, if at all possible, which is why I would think it would be helpful to culture a month after finishing Tobi and get started on it again if PA is still lurking in there. This was the second time my daughter cultured PA - first time...
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    Pseudomonas - protocol for follow up culture

    I would like to avoid the every other month indefinitely path, if at all possible, which is why I would think it would be helpful to culture a month after finishing Tobi and get started on it again if PA is still lurking in there. This was the second time my daughter cultured PA - first time...
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    Pseudomonas - protocol for follow up culture

    Thank you both for your replies, they do help! I have often wondered why we only culture every three months, especially if a culture comes back with something. I want to know more frequently than every three months . . to me, every two months would be a happy medium. Of course, that brings...
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    Pseudomonas - protocol for follow up culture

    Thank you both for your replies, they do help! I have often wondered why we only culture every three months, especially if a culture comes back with something. I want to know more frequently than every three months . . to me, every two months would be a happy medium. Of course, that brings...
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    Pseudomonas - protocol for follow up culture

    Thank you both for your replies, they do help! <br /> <br />I have often wondered why we only culture every three months, especially if a culture comes back with something. I want to know more frequently than every three months . . to me, every two months would be a happy medium. Of course...
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    in need of help PLEASE

    I agree with others who have said to talk to the nurse. When is your next scheduled cliic visit? If it is weeks or months away, demand that your daughter be seen sooner if you really feel she should be. If they can't fit you in, see your family doctor and maybe they can communicate with your...
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