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  1. D

    Anyone dx d/t a positive newborn screen?

    Noah was dx at birth. Tested due to my wife fiding out she was a carrier through a blood screen at like 15 weeks pregnant. then I was found otu to also be a carrier. So they tested Noah upon delivery. He had no symptoms and still don't, although he was immediately put on some hefty meds and...
  2. D

    So much that I want to say...

    It's crazy that they deny our kids these shots. Noah not only has CF but was born 5 weeks premature. His Pediatrician said she's seen many kids with far less need for these shots, get approved very quickly. For Noah, they've been denying him for 5 months <img...
  3. D

    So much that I want to say...

    It's crazy that they deny our kids these shots. Noah not only has CF but was born 5 weeks premature. His Pediatrician said she's seen many kids with far less need for these shots, get approved very quickly. For Noah, they've been denying him for 5 months <img...
  4. D

    So much that I want to say...

    It's crazy that they deny our kids these shots. Noah not only has CF but was born 5 weeks premature. His Pediatrician said she's seen many kids with far less need for these shots, get approved very quickly. For Noah, they've been denying him for 5 months <img...
  5. D

    So much that I want to say...

    Thanks everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just wanted to say that Noah is double delta as well. At the moment we are trying really hard (been trying since September) to get our insurace to cover RSV shots. They've refused several times and we are in our...
  6. D

    So much that I want to say...

    Thanks everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just wanted to say that Noah is double delta as well. At the moment we are trying really hard (been trying since September) to get our insurace to cover RSV shots. They've refused several times and we are in our...
  7. D

    So much that I want to say...

    Thanks everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just wanted to say that Noah is double delta as well. At the moment we are trying really hard (been trying since September) to get our insurace to cover RSV shots. They've refused several times and we are in our...
  8. D

    New to the game

    Hiya Jason! Welcome from another newbie <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have much time (bombarded at work) but I MUST comment on this! <div class="FTQUOTE"><begin quote>Thomas weighed 18lbs, 4oz and was deemed by his cf docs as indistinguishable from any...
  9. D

    New to the game

    Hiya Jason! Welcome from another newbie <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have much time (bombarded at work) but I MUST comment on this! <div class="FTQUOTE"><begin quote>Thomas weighed 18lbs, 4oz and was deemed by his cf docs as indistinguishable from any...
  10. D

    New to the game

    Hiya Jason! Welcome from another newbie <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have much time (bombarded at work) but I MUST comment on this! <div class="FTQUOTE"><begin quote>Thomas weighed 18lbs, 4oz and was deemed by his cf docs as indistinguishable from any...
  11. D

    So much that I want to say...

    Both would be nice! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I was simply thinking about the "big brother and little sister" thing. You know? Brother's kind of feel a level of protection and responsibility for little sisters <img...
  12. D

    So much that I want to say...

    Both would be nice! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I was simply thinking about the "big brother and little sister" thing. You know? Brother's kind of feel a level of protection and responsibility for little sisters <img...
  13. D

    So much that I want to say...

    Both would be nice! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I was simply thinking about the "big brother and little sister" thing. You know? Brother's kind of feel a level of protection and responsibility for little sisters <img...
  14. D

    So much that I want to say...

    Thank you Charl72 for the kind words! It's a pleasure to meet you! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm honored to have found this place, truly a blessing! Your daughters are very lucky to have you! <img src="i/expressions/heart.gif" border="0"> I'm anxious to learn...
  15. D

    So much that I want to say...

    Thank you Charl72 for the kind words! It's a pleasure to meet you! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm honored to have found this place, truly a blessing! Your daughters are very lucky to have you! <img src="i/expressions/heart.gif" border="0"> I'm anxious to learn...
  16. D

    So much that I want to say...

    Thank you Charl72 for the kind words! It's a pleasure to meet you! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm honored to have found this place, truly a blessing! Your daughters are very lucky to have you! <img src="i/expressions/heart.gif" border="0"> I'm anxious to learn...
  17. D

    ACV

    Heya folks! What do you all think of this? I know that if I mix 4oz of ACV (Apple Cider Vinegar) with a pint of water and sip it throughout the day, it's completely thins the mucus in my lungs (I don't have CF, my newborn son does, but they think I have a ploymorphism and suffered from a lot of...
  18. D

    ACV

    Heya folks! What do you all think of this? I know that if I mix 4oz of ACV (Apple Cider Vinegar) with a pint of water and sip it throughout the day, it's completely thins the mucus in my lungs (I don't have CF, my newborn son does, but they think I have a ploymorphism and suffered from a lot of...
  19. D

    ACV

    Heya folks! What do you all think of this? I know that if I mix 4oz of ACV (Apple Cider Vinegar) with a pint of water and sip it throughout the day, it's completely thins the mucus in my lungs (I don't have CF, my newborn son does, but they think I have a ploymorphism and suffered from a lot of...
  20. D

    So much that I want to say...

    Hiya Myboy! Thanks! That's so awesome to hear that your son is doing great! Thank you so much for responding <img src="i/expressions/face-icon-small-smile.gif" border="0"> We're very thankful for the early diagnosis. He's on Creon5 (was 1/2 capsule, now it's a full) before meals, Zantac (2x...
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