Search results

Carrie - Are you aware of the Patient Access Network Foundation? We applied and got a $5,000 grant to cover Jack's pulmozyme for the year. My co-pay is only $100 a month so we definitely don't need $5,000, but I am told they just put what we don't use back in the pot at the end of the year...

I just spoke to a rep at Axcan Pharma and they are very hopeful that Ultrase will be approved by the FDA within weeks, not months. I really hope that is true, but we will deal with it. I am just glad Jack is older and taking enzymes super easily now - I just remember months ago how hard...

I just spoke to a rep at Axcan Pharma and they are very hopeful that Ultrase will be approved by the FDA within weeks, not months. I really hope that is true, but we will deal with it. I am just glad Jack is older and taking enzymes super easily now - I just remember months ago how hard...

I just spoke to a rep at Axcan Pharma and they are very hopeful that Ultrase will be approved by the FDA within weeks, not months. I really hope that is true, but we will deal with it. I am just glad Jack is older and taking enzymes super easily now - I just remember months ago how hard...

I would love to stockpile the pills, but I can only order them around the same time each month and now that we are starting table food, we use more enzymes so we are pretty much going through them all each month. We just started with Ultrase MT12 in February and before that we were on Pancrease...

I would love to stockpile the pills, but I can only order them around the same time each month and now that we are starting table food, we use more enzymes so we are pretty much going through them all each month. We just started with Ultrase MT12 in February and before that we were on Pancrease...

I would love to stockpile the pills, but I can only order them around the same time each month and now that we are starting table food, we use more enzymes so we are pretty much going through them all each month. We just started with Ultrase MT12 in February and before that we were on Pancrease...

I haven't been on here in a while, but was wondering about two things so thought I would just ask "the experts"! First off - my son got his vest at 10 months - my pulm said as soon as he measured 17" he could get it and he measured 17.5" - it is fabulous and we love it! Just wondering if...

I haven't been on here in a while, but was wondering about two things so thought I would just ask "the experts"! First off - my son got his vest at 10 months - my pulm said as soon as he measured 17" he could get it and he measured 17.5" - it is fabulous and we love it! Just wondering if...

I haven't been on here in a while, but was wondering about two things so thought I would just ask "the experts"! <br /> <br />First off - my son got his vest at 10 months - my pulm said as soon as he measured 17" he could get it and he measured 17.5" - it is fabulous and we love it! Just...

My son is almost 5 months old and is on enzymes, iron, vitamins, and just switched from zantec to prevacid and CPT 2x a day for 15 minutes. He cultured a bacteria last month and is gone now and this month cultured a staph arius (or something like that). He is being treated again with Bactrum...

My son is almost 5 months old and is on enzymes, iron, vitamins, and just switched from zantec to prevacid and CPT 2x a day for 15 minutes. He cultured a bacteria last month and is gone now and this month cultured a staph arius (or something like that). He is being treated again with Bactrum...

My son is almost 5 months old and is on enzymes, iron, vitamins, and just switched from zantec to prevacid and CPT 2x a day for 15 minutes. He cultured a bacteria last month and is gone now and this month cultured a staph arius (or something like that). He is being treated again with Bactrum...

My son is almost 5 months old and is on enzymes, iron, vitamins, and just switched from zantec to prevacid and CPT 2x a day for 15 minutes. He cultured a bacteria last month and is gone now and this month cultured a staph arius (or something like that). He is being treated again with Bactrum...

My son is almost 5 months old and is on enzymes, iron, vitamins, and just switched from zantec to prevacid and CPT 2x a day for 15 minutes. He cultured a bacteria last month and is gone now and this month cultured a staph arius (or something like that). He is being treated again with Bactrum...

Congrats on the birth of your new babies. My little Jack is 4 months old and we found out during pregnancy that he had CF so we did have some time to take it all in. Jack is pure joy! We give him enzymes (which are sometimes challenging!), vitamins, iron, zantec and do his chest PT twice a...

Congrats on the birth of your new babies. My little Jack is 4 months old and we found out during pregnancy that he had CF so we did have some time to take it all in. Jack is pure joy! We give him enzymes (which are sometimes challenging!), vitamins, iron, zantec and do his chest PT twice a...

Congrats on the birth of your new babies. My little Jack is 4 months old and we found out during pregnancy that he had CF so we did have some time to take it all in. Jack is pure joy! We give him enzymes (which are sometimes challenging!), vitamins, iron, zantec and do his chest PT twice a...

Congrats on the birth of your new babies. My little Jack is 4 months old and we found out during pregnancy that he had CF so we did have some time to take it all in. Jack is pure joy! We give him enzymes (which are sometimes challenging!), vitamins, iron, zantec and do his chest PT twice a...

Congrats on the birth of your new babies. My little Jack is 4 months old and we found out during pregnancy that he had CF so we did have some time to take it all in. Jack is pure joy! We give him enzymes (which are sometimes challenging!), vitamins, iron, zantec and do his chest PT twice a...