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Just going to say, we get our MCT oil at our pharmacy - it cost me $52 for a big jug of it but it lasts a long time. We try to spray it on most of my son's food and he never knows. We are having a hard time getting our son to gain weight too! Good luck!

Just going to say, we get our MCT oil at our pharmacy - it cost me $52 for a big jug of it but it lasts a long time. We try to spray it on most of my son's food and he never knows. We are having a hard time getting our son to gain weight too! Good luck!

Just going to say, we get our MCT oil at our pharmacy - it cost me $52 for a big jug of it but it lasts a long time. We try to spray it on most of my son's food and he never knows. We are having a hard time getting our son to gain weight too! Good luck!

We have not started HTS, but I will be sure to ask my pulm next visit. My son does vest for 30min 2x a day and we do albuterol 2x a day and pulmozyme 1x a day since he was 7 months old. He got his vest at 10 months old. Jack has been really healthy since we added the vest/nebs together...

We have not started HTS, but I will be sure to ask my pulm next visit. My son does vest for 30min 2x a day and we do albuterol 2x a day and pulmozyme 1x a day since he was 7 months old. He got his vest at 10 months old. Jack has been really healthy since we added the vest/nebs together...

We have not started HTS, but I will be sure to ask my pulm next visit. My son does vest for 30min 2x a day and we do albuterol 2x a day and pulmozyme 1x a day since he was 7 months old. He got his vest at 10 months old. Jack has been really healthy since we added the vest/nebs together...

thanks do you have a link to your blog? There are so many out there! So far today at work, I have done nothing but read blogs! We have a name from last year - Captain Jack's Crew, but I need some cute design..

thanks do you have a link to your blog? There are so many out there! So far today at work, I have done nothing but read blogs! We have a name from last year - Captain Jack's Crew, but I need some cute design..

thanks do you have a link to your blog? There are so many out there! So far today at work, I have done nothing but read blogs! We have a name from last year - Captain Jack's Crew, but I need some cute design..

I am would like to create a shirt design in honor of my son to be used for the CF bowl-a-thon and Great Strides walk. I have been looking online and don't really like the ones I have seen cafepress.com and have been trying to look through people's blogs to find a hidden shirt somewhere, but it...

I am would like to create a shirt design in honor of my son to be used for the CF bowl-a-thon and Great Strides walk. I have been looking online and don't really like the ones I have seen cafepress.com and have been trying to look through people's blogs to find a hidden shirt somewhere, but it...

I am would like to create a shirt design in honor of my son to be used for the CF bowl-a-thon and Great Strides walk. I have been looking online and don't really like the ones I have seen cafepress.com and have been trying to look through people's blogs to find a hidden shirt somewhere, but it...

Contact Hill-Rom - you will be able to complete a Patient Application for Financial Obligation Waiver and there is a chance if you qualify that they will pay for a portion, or even all of the costs associated with the vest. They want you to have what you need for your child. My husband lost...

Contact Hill-Rom - you will be able to complete a Patient Application for Financial Obligation Waiver and there is a chance if you qualify that they will pay for a portion, or even all of the costs associated with the vest. They want you to have what you need for your child. My husband lost...

Contact Hill-Rom - you will be able to complete a Patient Application for Financial Obligation Waiver and there is a chance if you qualify that they will pay for a portion, or even all of the costs associated with the vest. They want you to have what you need for your child. My husband lost...

It might not matter if you have a higher price because the idea of PAN is that they take care of the entire cost - at least that is what is happening for us. My husband and I both work and have decent incomes so we even qualified, which was awesome. I can only use it toward Pulm, but I think...

It might not matter if you have a higher price because the idea of PAN is that they take care of the entire cost - at least that is what is happening for us. My husband and I both work and have decent incomes so we even qualified, which was awesome. I can only use it toward Pulm, but I think...

It might not matter if you have a higher price because the idea of PAN is that they take care of the entire cost - at least that is what is happening for us. My husband and I both work and have decent incomes so we even qualified, which was awesome. I can only use it toward Pulm, but I think...

Carrie - Are you aware of the Patient Access Network Foundation? We applied and got a $5,000 grant to cover Jack's pulmozyme for the year. My co-pay is only $100 a month so we definitely don't need $5,000, but I am told they just put what we don't use back in the pot at the end of the year...

Carrie - Are you aware of the Patient Access Network Foundation? We applied and got a $5,000 grant to cover Jack's pulmozyme for the year. My co-pay is only $100 a month so we definitely don't need $5,000, but I am told they just put what we don't use back in the pot at the end of the year...