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    baby names

    We named our now 3 year old son, Sawyer. I think it is so cute and different. I didn't know anyone named that until after he was born of course. Now I personally know 2 other babies named Sawyer and have heard it used while out in public. I also like the name Owen (which was our second choice)...
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    What would Christmas be without

    My 3 year old loves this movie.....one problem though....he says "Oh fudge" now and also likes to reinact the scene where Ralphie is beating up the bully. So I am glad it is time to put this movie up until next year. Anyway it's a great Christmas Classic!! Carrie
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    What would Christmas be without

    My 3 year old loves this movie.....one problem though....he says "Oh fudge" now and also likes to reinact the scene where Ralphie is beating up the bully. So I am glad it is time to put this movie up until next year. Anyway it's a great Christmas Classic!! Carrie
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    What would Christmas be without

    My 3 year old loves this movie.....one problem though....he says "Oh fudge" now and also likes to reinact the scene where Ralphie is beating up the bully. So I am glad it is time to put this movie up until next year. Anyway it's a great Christmas Classic!! Carrie
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    newly diagnosed 7month old son

    Hi! There is no way to tell how severe or not your child will be by a sweat test or a genetic test for that matter. Even siblings with the same exact two mutations can have very different degrees of cf. I am so sorry to hear of your sons diagnosis. I know how hard it is.....but you will get lots...
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    newly diagnosed 7month old son

    Hi! There is no way to tell how severe or not your child will be by a sweat test or a genetic test for that matter. Even siblings with the same exact two mutations can have very different degrees of cf. I am so sorry to hear of your sons diagnosis. I know how hard it is.....but you will get lots...
  7. D

    newly diagnosed 7month old son

    Hi! There is no way to tell how severe or not your child will be by a sweat test or a genetic test for that matter. Even siblings with the same exact two mutations can have very different degrees of cf. I am so sorry to hear of your sons diagnosis. I know how hard it is.....but you will get lots...
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    Just joing....with lots & lots of ???'s

    Laura, Hi Again! We live in Alabama so we are not too far from you guys. Anyway my son was started on the Albuterol as soon as he was diagnosed (at two weeks). He was not presenting any lung issues it was just for preventative measures. I am sure if you asked though you would get very different...
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    Just joing....with lots & lots of ???'s

    Laura, Hi Again! We live in Alabama so we are not too far from you guys. Anyway my son was started on the Albuterol as soon as he was diagnosed (at two weeks). He was not presenting any lung issues it was just for preventative measures. I am sure if you asked though you would get very different...
  10. D

    Just joing....with lots & lots of ???'s

    Laura, Hi Again! We live in Alabama so we are not too far from you guys. Anyway my son was started on the Albuterol as soon as he was diagnosed (at two weeks). He was not presenting any lung issues it was just for preventative measures. I am sure if you asked though you would get very different...
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    Stuffy Nose

    My son has only been on Tobi one time for a month but during that month he had a stuffy sounding nose. He now has been stuffy sounding for a couple of weeks. I am thinking it caused from the weather this time. Carrie
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    Stuffy Nose

    My son has only been on Tobi one time for a month but during that month he had a stuffy sounding nose. He now has been stuffy sounding for a couple of weeks. I am thinking it caused from the weather this time. Carrie
  13. D

    Stuffy Nose

    My son has only been on Tobi one time for a month but during that month he had a stuffy sounding nose. He now has been stuffy sounding for a couple of weeks. I am thinking it caused from the weather this time. Carrie
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    Pregnant with questions

    Hi! When my son was born we knew he had a bowel obstruction and had been told that is was possibly cf. We also have three other children and thought there was no way our 4th child would have an genetic disease. Well we were wrong! We had a whole crew from the NICU in the delivery room when he...
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    Pregnant with questions

    Hi! When my son was born we knew he had a bowel obstruction and had been told that is was possibly cf. We also have three other children and thought there was no way our 4th child would have an genetic disease. Well we were wrong! We had a whole crew from the NICU in the delivery room when he...
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    Pregnant with questions

    Hi! When my son was born we knew he had a bowel obstruction and had been told that is was possibly cf. We also have three other children and thought there was no way our 4th child would have an genetic disease. Well we were wrong! We had a whole crew from the NICU in the delivery room when he...
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    Just joing....with lots & lots of ???'s

    Hi! My son will be 3 years old next month and he was diagnosed at 2 weeks old. He also has the delta F508 mutations. He has been on albuterol since diagnosis and various other inhaled meds during bad colds and infections. We do his chest pt twice a day (once in the morning and once before bed)...
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    Just joing....with lots & lots of ???'s

    Hi! My son will be 3 years old next month and he was diagnosed at 2 weeks old. He also has the delta F508 mutations. He has been on albuterol since diagnosis and various other inhaled meds during bad colds and infections. We do his chest pt twice a day (once in the morning and once before bed)...
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    Just joing....with lots & lots of ???'s

    Hi! My son will be 3 years old next month and he was diagnosed at 2 weeks old. He also has the delta F508 mutations. He has been on albuterol since diagnosis and various other inhaled meds during bad colds and infections. We do his chest pt twice a day (once in the morning and once before bed)...
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    New mom with 5 month old daughter w/cf

    Hi! I just wanted to let you know you are not alone!! My 2 year old son (soon to be 3 year old) was also born with a bowel obstruction. He had surgery at one day old and ended up with a colostomy bag. Then he had surgery again at 5 weeks old to put his intestines back together. I have never been...
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