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I am so sorry to hear this about your daughter. I know how you feel...it is quite shocking news...my son was also 2 the first time he cultured PA. He is now 2 1/2 and has had two cultures since and has been negative both times. We did the oral cipro and inhaled Tobi. Carrie

When my son was diagnosed I heard of an African American family who had 4 children and all 4 had cf. Then when my son was in the hospital he had an African American nurse who had a child the same age as my son who also had cf. She had actually had worked on the pulmonary floor with cf children...

Hi Jody, I would be interested in this....as you already know I have the book Prescription for Nutritional Healing. I have been hesistant to try anything else after what happened with the protein but as soon as he goes to the allergy doc. next Tuesday I think I will feel better. Talk to you soon...

WOW!! Emily is from Alabama....that is where we are from too!! The doctor on the interview is actually my sons pulmonoligist at clinic! That was a total suprise. So glad I watched that. Thanks for letting us know about it! Carrie

Hi! I have the same problem with my 2 1/2 year old sons teeth. He too sometimes breathes through his mouth at night. He is going to an allergy doctor on Wednesday. I really dont know what is causing this but if I get any good info from the doc. I will let you know. Carrie

My oldest son does not have cf but he will be turning 15 next month. He has just recently started "maturing". Some boys are later than others so I would just assume he is a little on the later side. I dont really know if cf plays a factor in it or not. Carrie mom to 4 2 yr old. w/ cf

Jody, I am the same way.....I hate anything new to be added...something about it just makes me sad. It makes me want to cry even when they increase my sons enzymes (just lately increased it to 3-4). They also added pulmozyme (which I think I already told you that). It came yesterday it this huge...

My username is just my childrens first name initials and there is 4 of them....really original huh? Carrie

Well this is not really a cf related question but I am hoping someone might be able to help me. My 2 1/2 year old son (with cf) has broken out in a terrible red rash around his mouth and chin the last two times he has visited my mothers house. He has been going over there since he was born so...

a "normal Hi! I have just joined this board but have been posting some under anonymous. Anyway I think your story was very sweet. And yes I do understand what you mean by having a "normal" day. Sometimes I will call my mom and tell her we did such and such and it felt so normal. Thanks for...