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What are the symptoms and how is it diagosned (ex. x-ray, catscan)? Thanks

I have seen several people post about their child having an intussusception....what the heck is that and how do you treat it? Thanks Carrie

I have been reading some of the posts on here regarding enzymes and when they are given. Who all takes them before meals and who takes them after meals? I give them to my son before meals and snacks. This is what I was told to do when he was diagnosed and we were getting "cf educated". Just...

My 2 1/2 year old son cultured PA (non mucoid also) a few months back. We did the Tobi for 28 days and then he cultured negative and no further treatment was done. I also hate how all clinics are different........you would think they would all go by the same guidelines....it drives me crazy...

Hey!! Just wanted to update....we got back from the doctor about an hour ago. Anyway when we got in the doctors office Sawyer threw up again first thing when the nurse was in there. So then the doctor comes in and checks him out. Says that his lungs sound clear and his belly feels normal but he...

Hi! My son also had the meconium ileus. He had surgery and had the stomas as well. They reattached him when he was 5 weeks old and he was in the hospital a total of 9 weeks. We were about an hour away from the hospital, it was Christmas time and we have 3 other children....needless to say it was...

Well I thought things were going better but Sawyer just threw up again! So off to the doctor we go. They agreed to see him at clinic. So I will update when we get back home. Please say a prayer for him...I am so nervous about this. Thanks Carrie

That is so awesome!! My son also has a sensitve gag reflex and I am also thinking it will be a long time before he will swallow his enzymes (he is 2 1/2). Maybe he will prove me wrong as well!! Good for you and your daugher....it will make things so much easier!!! Carrie

Jody....I forgot to mention that we did finally make it to the allergy doctor. His test came back that he is allergic to milk (which we new), eggs, beef, and chicken!! She told me that he could continue eating the beef and chicken since he has been eating it in the past with no reaction. She...

I called the doctor and they told me to give him another day and try giving him clear liquids only. Well he decided he was hungry yesterday and ate some baked potato and some junior mints. He also drank pretty good yesterday. So he did not throw up all day yesterday until he got choked last...

Thanks Guys!! That makes me feel better!! Carrie

I am concerned about a family member that occasionally shows symptoms of cf. Is excessive sweating a symptom? I know that salty sweat is a symptom. I dont know if hers is salty...I just know that she sweats more than any child I have seen. Thanks Carrie

No he is not running a fever. He is also already on Prevacid for acid reflux. So I am just clueless as to what could be the problem. Guess I will know more tomorrow. Thanks for the replies! Carrie

Can someone please tell me what this sounds like? My 2 1/2 year old son has been throwing up occasionally the last few days. He is taking fluids pretty good but cannot keep anything solid down as of today. He is pooping normally. He has also been complaining of being tired the last few days. He...

Megan, I am going to definitely talk to my son's doc at the next appt. which is in September about the vest. Thanks so much for your help. Also do you know if they can do mucomyst and pulmozyme or is it one or the other? Thanks

Megan, Thanks so much for all the info. No we do not have a vest. I asked about the vest at our last visit and the doc didn't seem to think he needed it. We do chest pt by hand twice a day. I am going to look into the vest by Dr. Warwick though...after all I do have the final say in my son's...

Amy, I know all about the mutations and how everyone's cf is different even with the same two mutations. I was just curious as to what Megan was doing to make her son gain weight so well. I am definitely not "hanging my hat" on anyone else's experience...just trying to get ideas. Carrie

Megan, One more question....My son is also double delta....how did you get your son to be overweight? My son takes his enzymes and we are constantly getting him to eat. He is still only in 25th percentile for weight and height. If Dr. Warwick does not think they need to be on a high fat diet...

Megan, What is it that Dr. Warwick suggested that your other doctors do not agree with? My son just started pulmozyme 2 months ago and now I am wondering if that was the best idea or not. Do you know why it is that Dr. Warwick does not like or use the pulmozyme? I am going to talk with my sons...

How many of you have heard of Dr. Warwick and how many have actually been able to have a clinic visit with him? I would love to be able to take my son to him but we live 1,000 miles away from Minnesota!! So for those of you that have seen him what does he suggest and what is it that makes the...