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Hi Shawn, I just wanted to say I feel your pain. My son was also born with a blockage (he is now 2 1/2 years old). We also had no family history of cf and we also have three other children who are 100% healthy. When they told us there was a chance the baby would have cystic fibrosis we were like...

Hi! I have a 2 1/2 year old son with cf. We are getting ready to paint the inside of our house so that we can put it up for sale. Does anyone know if it is o.k. for him to be in the house while we are painting? And if not then how long does he need to stay out of the house after we are finished...

Hi! I have a 2 1/2 year old son with cf. We are getting ready to paint the inside of our house so that we can put it up for sale. Does anyone know if it is o.k. for him to be in the house while we are painting? And if not then how long does he need to stay out of the house after we are finished...

Hi! I have a 2 1/2 year old son with cf. We are getting ready to paint the inside of our house so that we can put it up for sale. Does anyone know if it is o.k. for him to be in the house while we are painting? And if not then how long does he need to stay out of the house after we are finished...

I also have never heard of a different kind of sweat test....do you know if it has a different name? When she was tested the first time what exactly did they do to perform the sweat test? And what kind of doctor is she seeing.....just wondering if he is a pulmonologist?

I also have never heard of a different kind of sweat test....do you know if it has a different name? When she was tested the first time what exactly did they do to perform the sweat test? And what kind of doctor is she seeing.....just wondering if he is a pulmonologist?

I also have never heard of a different kind of sweat test....do you know if it has a different name? When she was tested the first time what exactly did they do to perform the sweat test? And what kind of doctor is she seeing.....just wondering if he is a pulmonologist?

We got the same great news today!!! I am so happy and I know exactly how you feel. This is my sons third clear culture after culturing PA in the spring. Carrie

We got the same great news today!!! I am so happy and I know exactly how you feel. This is my sons third clear culture after culturing PA in the spring. Carrie

We got the same great news today!!! I am so happy and I know exactly how you feel. This is my sons third clear culture after culturing PA in the spring. Carrie

We also had trouble with one particular nurse in the NICU. We also requested that she never be assigned to our baby. She was so awful. We also had a terrible experience when our son was in the PICU at Childrens Hospital. He was on a vent and they were training someone on how to suck the vent...

We also had trouble with one particular nurse in the NICU. We also requested that she never be assigned to our baby. She was so awful. We also had a terrible experience when our son was in the PICU at Childrens Hospital. He was on a vent and they were training someone on how to suck the vent...

We also had trouble with one particular nurse in the NICU. We also requested that she never be assigned to our baby. She was so awful. We also had a terrible experience when our son was in the PICU at Childrens Hospital. He was on a vent and they were training someone on how to suck the vent...

My son will be 3 years old in December and we are just now getting the process of getting the vest started. I had to be the one to insist that he get a vest. If I wouldn't have mentioned it I dont know how long the doctor would have waited before recommending a vest. So if you want your child to...

My son will be 3 years old in December and we are just now getting the process of getting the vest started. I had to be the one to insist that he get a vest. If I wouldn't have mentioned it I dont know how long the doctor would have waited before recommending a vest. So if you want your child to...

My son will be 3 years old in December and we are just now getting the process of getting the vest started. I had to be the one to insist that he get a vest. If I wouldn't have mentioned it I dont know how long the doctor would have waited before recommending a vest. So if you want your child to...

OOPS!! I wasn't signed in..... Carrie

Hi! Well let me start by saying that I have been where you are and I know what you are goung through. My son was diagnosed with cf at two weeks of age due to meconium ileus. He is our 4th child (we have three other children without cf). We had no idea we were carriers and no family history. We...

Hey Jody! I have been wondering where you were.....I was actually going to email you today and see if everything was alright. I am so sorry to hear about your grandmother. It is so hard when a loved one passes even if they did get to live a long life. My husbands father (my father in law) passed...

Oops...I meant to sign off as Carrie