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  1. F

    You know you're a CF mom\dad\parent when......

    You know all the parking attendants at the hospital by name. You've called poison control to see if Pancreatic Enzymes are poisonous for dogs. You dance around the house doing "poundies" while singing the song entitled, "beat the baby, beat the baby!" Even your neighbors know more about CF...
  2. F

    You know you're a CF mom\dad\parent when......

    You know all the parking attendants at the hospital by name. You've called poison control to see if Pancreatic Enzymes are poisonous for dogs. You dance around the house doing "poundies" while singing the song entitled, "beat the baby, beat the baby!" Even your neighbors know more about CF...
  3. F

    You know you're a CF mom\dad\parent when......

    You know all the parking attendants at the hospital by name. You've called poison control to see if Pancreatic Enzymes are poisonous for dogs. You dance around the house doing "poundies" while singing the song entitled, "beat the baby, beat the baby!" Even your neighbors know more about CF...
  4. F

    Please provide some information

    Hi Wendy, All kids are salty when they sweat. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My baby who has CF is salty all the time, playing, sleeping, she always tastes like the ocean. So I wouldn't worry. I would get your son tested anyway. Don't make yourself sick over it...
  5. F

    Please provide some information

    Hi Wendy, All kids are salty when they sweat. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My baby who has CF is salty all the time, playing, sleeping, she always tastes like the ocean. So I wouldn't worry. I would get your son tested anyway. Don't make yourself sick over it...
  6. F

    Please provide some information

    Hi Wendy, All kids are salty when they sweat. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My baby who has CF is salty all the time, playing, sleeping, she always tastes like the ocean. So I wouldn't worry. I would get your son tested anyway. Don't make yourself sick over it...
  7. F

    advice please

    Shawn, Sounds like you are in good hands and with the CF Center you'll be right where you need to be!!! When my daughter was released from the hospital, I remember the first few days were the most difficult - getting used to the equipment, administering meds without a nurse, all those scary...
  8. F

    advice please

    Shawn, Sounds like you are in good hands and with the CF Center you'll be right where you need to be!!! When my daughter was released from the hospital, I remember the first few days were the most difficult - getting used to the equipment, administering meds without a nurse, all those scary...
  9. F

    advice please

    Shawn, Sounds like you are in good hands and with the CF Center you'll be right where you need to be!!! When my daughter was released from the hospital, I remember the first few days were the most difficult - getting used to the equipment, administering meds without a nurse, all those scary...
  10. F

    daughters diagnosed in 2005

    Lisa, My daughter was diagnosed over a year ago and I still have a hard time dealing with the reality of CF. It's just unfathomable to have a child with this disease, and it's not surprising you are still dealing with the emotions that come with that. I find solace in writing about it, talking...
  11. F

    daughters diagnosed in 2005

    Lisa, My daughter was diagnosed over a year ago and I still have a hard time dealing with the reality of CF. It's just unfathomable to have a child with this disease, and it's not surprising you are still dealing with the emotions that come with that. I find solace in writing about it, talking...
  12. F

    daughters diagnosed in 2005

    Lisa, My daughter was diagnosed over a year ago and I still have a hard time dealing with the reality of CF. It's just unfathomable to have a child with this disease, and it's not surprising you are still dealing with the emotions that come with that. I find solace in writing about it, talking...
  13. F

    advice please

    Shawn, We know what you're going through. The first couple months are the hardest, learning everything, adjusting to medications, and treatments. But you'll get through it and life will return to normal (not the normal you're used to, but still a normal daily life.) My daughter had a hard time...
  14. F

    advice please

    Shawn, We know what you're going through. The first couple months are the hardest, learning everything, adjusting to medications, and treatments. But you'll get through it and life will return to normal (not the normal you're used to, but still a normal daily life.) My daughter had a hard time...
  15. F

    advice please

    Shawn, We know what you're going through. The first couple months are the hardest, learning everything, adjusting to medications, and treatments. But you'll get through it and life will return to normal (not the normal you're used to, but still a normal daily life.) My daughter had a hard time...
  16. F

    To take the 1 in 4 chance?

    I agree. Adoption is a wonderful alternative. If we can afford it someday, we'd love to give our daughter a sibling. There are sooooo many amazing children out there waiting for mommies and daddies. We wanted to adopt before our daughter was born, now we have an even greater incentive. It's...
  17. F

    To take the 1 in 4 chance?

    I agree. Adoption is a wonderful alternative. If we can afford it someday, we'd love to give our daughter a sibling. There are sooooo many amazing children out there waiting for mommies and daddies. We wanted to adopt before our daughter was born, now we have an even greater incentive. It's...
  18. F

    To take the 1 in 4 chance?

    I agree. Adoption is a wonderful alternative. If we can afford it someday, we'd love to give our daughter a sibling. There are sooooo many amazing children out there waiting for mommies and daddies. We wanted to adopt before our daughter was born, now we have an even greater incentive. It's...
  19. F

    NY Times Magazine Article

    I LOVE Michael Pollan and his books; THE BOTANY OF DESIRE and THE OMNIVORE'S DILEMMA are among my favorites. He's changed the way I eat and think of food. And he's not an extremist, but honest about the industrialized food chain, and how consumers are affected. Thanks for sharing it with everyone.
  20. F

    NY Times Magazine Article

    I LOVE Michael Pollan and his books; THE BOTANY OF DESIRE and THE OMNIVORE'S DILEMMA are among my favorites. He's changed the way I eat and think of food. And he's not an extremist, but honest about the industrialized food chain, and how consumers are affected. Thanks for sharing it with everyone.
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