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never mind - I found it on skinit.com site.

Can someone tell me how to get these?

I have a 13 year old daughter who was diagnosed at the age of 5. My e-mail is khavice@woh.rr.com. I am also on FB.

I have a 13 year old daughter who was diagnosed at the age of 5. My e-mail is khavice@woh.rr.com. I am also on FB.

I just craved orange juice. Lots and lots of OJ. Not salt though.

I just craved orange juice. Lots and lots of OJ. Not salt though.

Sheli - I totally get where you are coming from. My daughter had 2 tune ups last year and that was really unusual for us. Kept thinking "What aren't we doing?" Doctor and social worker at clinic really helped me. It's a monster of a disease and sometimes can get the better of you. We all...

Sheli - I totally get where you are coming from. My daughter had 2 tune ups last year and that was really unusual for us. Kept thinking "What aren't we doing?" Doctor and social worker at clinic really helped me. It's a monster of a disease and sometimes can get the better of you. We all...

My daughter has been on Prevacid since she was diagnosed 7 years ago. The docs tell us that it helps her enzymes work better. Haven't really researched it and I guess I assumed it was standard?

My daughter has been on Prevacid since she was diagnosed 7 years ago. The docs tell us that it helps her enzymes work better. Haven't really researched it and I guess I assumed it was standard?

My daughter has been on Prevacid since she was diagnosed 7 years ago. The docs tell us that it helps her enzymes work better. Haven't really researched it and I guess I assumed it was standard?

We also have the Hill Rom vest. I cannot comment on the other one as we have never used it. I will second what was said about Hill Rom's customer service. It's awesome. Since we paid the original amount, we haven't had to pay for anything else. Vests, hoses, replacement units, shipping...

We also have the Hill Rom vest. I cannot comment on the other one as we have never used it. I will second what was said about Hill Rom's customer service. It's awesome. Since we paid the original amount, we haven't had to pay for anything else. Vests, hoses, replacement units, shipping...

We also have the Hill Rom vest. I cannot comment on the other one as we have never used it. I will second what was said about Hill Rom's customer service. It's awesome. Since we paid the original amount, we haven't had to pay for anything else. Vests, hoses, replacement units, shipping...

Okay - I must not have been on this site when this first went around, but I just have to add...<div>When you are so excited about your daughter's first solid bowel movement, that you tell everyone and consider it appropriate dinner conversation (with people outside your family). BTW, she only...

Okay - I must not have been on this site when this first went around, but I just have to add...When you are so excited about your daughter's first solid bowel movement, that you tell everyone and consider it appropriate dinner conversation (with people outside your family). BTW, she only ever...

Okay - I must not have been on this site when this first went around, but I just have to add...When you are so excited about your daughter's first solid bowel movement, that you tell everyone and consider it appropriate dinner conversation (with people outside your family). BTW, she only ever...

I agree with Heather. A lot of people in my family/life just asked. You will get insensitive questions, so be prepared for that. However, most people are just curious. When we started fund raising (about 8 months after diagnosis), the first letter we sent out had a lot of information about...

I agree with Heather. A lot of people in my family/life just asked. You will get insensitive questions, so be prepared for that. However, most people are just curious. When we started fund raising (about 8 months after diagnosis), the first letter we sent out had a lot of information about...

I agree with Heather. A lot of people in my family/life just asked. You will get insensitive questions, so be prepared for that. However, most people are just curious. When we started fund raising (about 8 months after diagnosis), the first letter we sent out had a lot of information about...