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  1. K

    Sports Organization Discriminating against my daughter w/CF

    <P>Bill - I believe you are comparing apples and oranges.  She can physically do the cheering, she just needs a snack to get through the 1 1/2 hours of physical activity.  </P> <P>If my daughter (with CF) wanted to try the 40 yard dash I would encourage her to train her best and do it.  If she...
  2. K

    Sports Organization Discriminating against my daughter w/CF

    <P>Bill - I believe you are comparing apples and oranges. She can physically do the cheering, she just needs a snack to get through the 1 1/2 hours of physical activity. </P> <P>If my daughter (with CF) wanted to try the 40 yard dash I would encourage her to train her best and do it. If she...
  3. K

    Sports Organization Discriminating against my daughter w/CF

    <P>Bill - I believe you are comparing apples and oranges. She can physically do the cheering, she just needs a snack to get through the 1 1/2 hours of physical activity. </P> <P>If my daughter (with CF) wanted to try the 40 yard dash I would encourage her to train her best and do it. If she...
  4. K

    Calling all Tween Parents

    My daughter (who is 12) saw me on this site last night and wanted to know if she could get on it and find some CF kids her age to chat with.  <div>While I am glad that she wants to make friends with other kids who will understand what she is going through, I don't think giving her full access to...
  5. K

    Calling all Tween Parents

    My daughter (who is 12) saw me on this site last night and wanted to know if she could get on it and find some CF kids her age to chat with. While I am glad that she wants to make friends with other kids who will understand what she is going through, I don't think giving her full access to...
  6. K

    Calling all Tween Parents

    My daughter (who is 12) saw me on this site last night and wanted to know if she could get on it and find some CF kids her age to chat with. While I am glad that she wants to make friends with other kids who will understand what she is going through, I don't think giving her full access to...
  7. K

    second opinion about treatment

    First I am sorry about your diagnosis.  CF is a monster but is manageable.  My daughter was diagnosed at the age of 5 and that was 7 years ago.  She is happy, healthy and has even taken up the French horn.  <div>AH does have some lung involvement and the doctors were very aggressive with her...
  8. K

    second opinion about treatment

    First I am sorry about your diagnosis. CF is a monster but is manageable. My daughter was diagnosed at the age of 5 and that was 7 years ago. She is happy, healthy and has even taken up the French horn. AH does have some lung involvement and the doctors were very aggressive with her treatments...
  9. K

    second opinion about treatment

    First I am sorry about your diagnosis. CF is a monster but is manageable. My daughter was diagnosed at the age of 5 and that was 7 years ago. She is happy, healthy and has even taken up the French horn. AH does have some lung involvement and the doctors were very aggressive with her treatments...
  10. K

    second opinion about treatment

    First I am sorry about your diagnosis.  CF is a monster but is manageable.  My daughter was diagnosed at the age of 5 and that was 7 years ago.  She is happy, healthy and has even taken up the French horn.  <div>AH does have some lung involvement and the doctors were very aggressive with her...
  11. K

    second opinion about treatment

    First I am sorry about your diagnosis. CF is a monster but is manageable. My daughter was diagnosed at the age of 5 and that was 7 years ago. She is happy, healthy and has even taken up the French horn. AH does have some lung involvement and the doctors were very aggressive with her treatments...
  12. K

    second opinion about treatment

    First I am sorry about your diagnosis. CF is a monster but is manageable. My daughter was diagnosed at the age of 5 and that was 7 years ago. She is happy, healthy and has even taken up the French horn. AH does have some lung involvement and the doctors were very aggressive with her treatments...
  13. K

    Suspected CF-looking for information

    <P>Please understand that I was in no way suggesting that there was any urgency to her condition.  She's gone 16 years and been just fine.  I was saying that as a mom you might feel better to "get the ball rolling".  I am sorry if I made you feel worried in any way.  </P> <P>When CF was...
  14. K

    Suspected CF-looking for information

    <P>Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. </P> <P>When CF was suggested to...
  15. K

    Suspected CF-looking for information

    <P><BR>Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. </P> <P>When CF was...
  16. K

    Suspected CF-looking for information

    My question is why do you have to wait until the 25th for the sweat test? Even if they can't get her into the clinic until then, you should be able to have the test before then. At least that would give you a tentative answer. I know that a sweat test is not 100% conclusive. But I also think...
  17. K

    Suspected CF-looking for information

    My question is why do you have to wait until the 25th for the sweat test? Even if they can't get her into the clinic until then, you should be able to have the test before then. At least that would give you a tentative answer. I know that a sweat test is not 100% conclusive. But I also think...
  18. K

    Suspected CF-looking for information

    My question is why do you have to wait until the 25th for the sweat test? Even if they can't get her into the clinic until then, you should be able to have the test before then. At least that would give you a tentative answer. I know that a sweat test is not 100% conclusive. But I also think...
  19. K

    Underweight?

    My story is so much like JENNYC's it's kind of scary. My daughter's even named Abby... weird. Anyway, our clinic got us in the day after diagnosis and then had Abby in the hospital the day after that for her first clean out and a battery of tests. That was 7 years ago when she was dx at 5...
  20. K

    Underweight?

    My story is so much like JENNYC's it's kind of scary. My daughter's even named Abby... weird. Anyway, our clinic got us in the day after diagnosis and then had Abby in the hospital the day after that for her first clean out and a battery of tests. That was 7 years ago when she was dx at 5...
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