Sports Organization Discriminating against my daughter w/CF

Mom2Brinly · Oct 19, 2011

I posted this in adults too....
I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****) local Football Little league cheerleading team. 
This is the deal and actual kicker- the head cheer coach WAS (due to this incident i cannot even look at her) a FRIEND! She is FULLY aware of Brinly's CF and her 7year old is a good friend of Brinly's they even sent balloons to her in the hospital just a month ago!! Brinly has had a very rough year with 3 hospital admins and every one knows that her health is the upmost important. Last Sat. she was hungary so i brought her subway to the game. They are to cheer on the sidelines for 3 hours with one break at halftime. BUT because Brinly needs extra calories( we are looking into getting a G-tube if she doesn't gain weight and she is on cyproheptadine which makes her eat!) I brought her a sandwich to eat. I pulled her out and told the (x) friend/coach that she needed to eat something. I then on Monday morning got the rudiest email stating that if Brinly does not follow the rules that she will basically not be able to particiate in cheering!!! 
Does anyone know if there is a law or advacate to use as a ground for my daughthers defense?? Brinly LOVES cheerleading and we have followed every rule except for the fact that she requires extra breaks, snacks and drinks during game. I have been very discreet and Brinly has even given me a "signal" to bring her snack or drink when she needs one while cheering! She has a 504 that the school follows but as per her #@#@ coach said "this is a private teams organization's rules" She is NOT bending at all and has taken this cheerleading to the extreme!
What would you guys do???
 
Thanks so much-
Blythe 
mom to Brinly cf

Mom2Brinly · Oct 19, 2011

I posted this in adults too....
I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****)local Football Little league cheerleading team. 
This is the deal and actual kicker- the head cheer coachWAS (due to this incident i cannot even look at her) a FRIEND! She is FULLY aware of Brinly's CF and her 7year old is a good friend of Brinly's they even sent balloons to her in the hospital justa month ago!! Brinly has had a very rough year with 3 hospital admins and every one knows that her health is the upmost important. Last Sat. she was hungary so i brought her subway to the game. They are to cheer on the sidelines for 3 hours with one break at halftime. BUT because Brinly needs extra calories( we are looking into getting a G-tube if she doesn't gain weight and she is on cyproheptadine which makes her eat!) I brought her a sandwich to eat. I pulled her out and told the (x)friend/coach that she needed to eat something. I then on Monday morning got the rudiest email stating that if Brinly does not follow the rules that she will basically not be able to particiate in cheering!!! 
Does anyone know if there is a law or advacate to use as a ground for my daughthers defense?? Brinly LOVES cheerleading and we have followed every rule except for the fact that she requires extra breaks, snacks and drinks during game. I have been very discreet and Brinly has even given me a "signal" to bring her snack or drink when she needs one while cheering! She has a 504 that the school follows but as per her #@#@coach said "this is a private teamsorganization's rules" She is NOT bending at all and has taken this cheerleading to the extreme!
What would you guys do???

Thanks so much-
Blythe 
mom to Brinly cf

Mom2Brinly · Oct 19, 2011

I posted this in adults too....
 I just cannot believe this! My daughter 7 years old is on a PAID (YES...I have paid $400.00 for her to cheer and to get this *****)local Football Little league cheerleading team. 
This is the deal and actual kicker- the head cheer coachWAS (due to this incident i cannot even look at her) a FRIEND! She is FULLY aware of Brinly's CF and her 7year old is a good friend of Brinly's they even sent balloons to her in the hospital justa month ago!! Brinly has had a very rough year with 3 hospital admins and every one knows that her health is the upmost important. Last Sat. she was hungary so i brought her subway to the game. They are to cheer on the sidelines for 3 hours with one break at halftime. BUT because Brinly needs extra calories( we are looking into getting a G-tube if she doesn't gain weight and she is on cyproheptadine which makes her eat!) I brought her a sandwich to eat. I pulled her out and told the (x)friend/coach that she needed to eat something. I then on Monday morning got the rudiest email stating that if Brinly does not follow the rules that she will basically not be able to particiate in cheering!!! 
Does anyone know if there is a law or advacate to use as a ground for my daughthers defense?? Brinly LOVES cheerleading and we have followed every rule except for the fact that she requires extra breaks, snacks and drinks during game. I have been very discreet and Brinly has even given me a "signal" to bring her snack or drink when she needs one while cheering! She has a 504 that the school follows but as per her #@#@coach said "this is a private teamsorganization's rules" She is NOT bending at all and has taken this cheerleading to the extreme!
What would you guys do???

Thanks so much-
Blythe 
mom to Brinly cf

Treble · Oct 19, 2011

Find out who owns the team and take it to those people. If she owns the team tho, then... Theres nothing you really can do about it.

Treble · Oct 19, 2011

Find out who owns the team and take it to those people. If she owns the team tho, then... Theres nothing you really can do about it.

Treble · Oct 19, 2011

Find out who owns the team and take it to those people. If she owns the team tho, then... Theres nothing you really can do about it.

just1more · Oct 19, 2011

<div class="FTQUOTE"><begin quote>Originally posted by: Treble Find out who owns the team and take it to those people. If she owns the team tho, then... Theres nothing you really can do about it.</end quote></div> 
 
Sorry but this is not correct.
 
I would contact the owner of the team/program. However, you do have a pretty large stick. CF more than qualifies as a disability and making reasonable accomdations is a requirement for most organizations that are non-profit (which I expect the youth football league is).
 
I would start off nice, but don't be afraid to advocate for your daughter as there is NO justification for discriminating against a child due to CF.
 
She is correct that they are not bound by the 504 as it is only for schools; however, Federal law is not limited by the fact they they are a 'private' organization. Ask the Boy Scouts how that works when their policy contradicts federal law!
Good luck.

just1more · Oct 19, 2011

<div class="FTQUOTE"><begin quote>Originally posted by: Treble Find out who owns the team and take it to those people. If she owns the team tho, then... Theres nothing you really can do about it.</end quote> 

Sorry but this is not correct.

I would contact the owner of the team/program. However, you do have a pretty large stick. CF more than qualifies as a disability and making reasonable accomdations is a requirement for most organizations thatare non-profit (which I expect the youth football league is).

I would start off nice, but don't be afraid to advocate for your daughter as there is NO justification for discriminating against a child due to CF.

She is correct that they are not bound by the 504 as it is only for schools; however, Federal law is not limited by the fact they they are a 'private' organization. Ask the Boy Scouts how that works when their policy contradicts federal law!
Good luck.

just1more · Oct 19, 2011

<div class="FTQUOTE"><begin quote>Originally posted by: Treble Find out who owns the team and take it to those people. If she owns the team tho, then... Theres nothing you really can do about it.</end quote> 

Sorry but this is not correct.

I would contact the owner of the team/program. However, you do have a pretty large stick. CF more than qualifies as a disability and making reasonable accomdations is a requirement for most organizations thatare non-profit (which I expect the youth football league is).

I would start off nice, but don't be afraid to advocate for your daughter as there is NO justification for discriminating against a child due to CF.

She is correct that they are not bound by the 504 as it is only for schools; however, Federal law is not limited by the fact they they are a 'private' organization. Ask the Boy Scouts how that works when their policy contradicts federal law!
 Good luck.

Rebjane · Oct 19, 2011

I would be upset as well. Your daughter is 7 and cheering for 3 hours. That is a long time. She definately; NEEDS extra fluids breaks and to eat. I totally agree with you.

I would first talk to your friend. Calmly, explain that CF kids need extra calories; salt ,fluid. It essential to their well-being. a good example would be: Would you not allow a diabetic to have a snack or check their blood sugar? It's the same thing.

It's up to you how much you want to push...But in my opinion it would be very bad PR for this organization to give you a hard time.

Rebjane · Oct 19, 2011

I would be upset as well. Your daughter is 7 and cheering for 3 hours. That is a long time. She definately; NEEDS extra fluids breaks and to eat. I totally agree with you.

I would first talk to your friend. Calmly, explain that CF kids need extra calories; salt ,fluid. It essential to their well-being. a good example would be: Would you not allow a diabetic to have a snack or check their blood sugar? It's the same thing.

It's up to you how much you want to push...But in my opinion it would be very bad PR for this organization to give you a hard time.

Rebjane · Oct 19, 2011

I would be upset as well. Your daughter is 7 and cheering for 3 hours. That is a long time. She definately; NEEDS extra fluids breaks and to eat. I totally agree with you.
 
 I would first talk to your friend. Calmly, explain that CF kids need extra calories; salt ,fluid. It essential to their well-being. a good example would be: Would you not allow a diabetic to have a snack or check their blood sugar? It's the same thing.
 
 It's up to you how much you want to push...But in my opinion it would be very bad PR for this organization to give you a hard time.

Printer · Oct 19, 2011

Let me see if I understand this situation and how far it could go. Lets say that we have a high school freshman, with CF, who loves track and wants to run the 40 yard dash. He or she has tried many times to run the 40 yards but experiences breathing problems every time. Should the school (and the athletic district) add a 20 yard dash to the track meets, or maybe a 10 yard dash?

Let her eat before, at half time and after the game. If this dosen't work there are other things that she can do.

Bill

Printer · Oct 19, 2011

Let me see if I understand this situation and how far it could go. Lets say that we have a high school freshman, with CF, who loves track and wants to run the 40 yard dash. He or she has tried many times to run the 40 yards but experiences breathing problems every time. Should the school (and the athletic district) add a 20 yard dash to the track meets, or maybe a 10 yard dash?

Let her eat before, at half time and after the game. If this dosen't work there are other things that she can do.

Bill

Printer · Oct 19, 2011

Let me see if I understand this situation and how far it could go. Lets say that we have a high school freshman, with CF, who loves track and wants to run the 40 yard dash. He or she has tried many times to run the 40 yards but experiences breathing problems every time. Should the school (and the athletic district) add a 20 yard dash to the track meets, or maybe a 10 yard dash?
 
 Let her eat before, at half time and after the game. If this dosen't work there are other things that she can do.
 
 Bill

khavice · Oct 19, 2011

Bill - I believe you are comparing apples and oranges. She can physically do the cheering, she just needs a snack to get through the 1 1/2 hours of physical activity. 
If my daughter (with CF) wanted to try the 40 yard dash I would encourage her to train her best and do it. If she could not finish a race when it came time to compete, then so be it. But no coach should tell her she can't be on the track team.

khavice · Oct 19, 2011

Bill - I believe you are comparing apples and oranges. She can physically do the cheering, she just needs a snack to get through the 1 1/2 hours of physical activity. 
If my daughter (with CF) wanted to try the 40 yard dash I would encourage her to train her best and do it. If she could not finish a race when it came time to compete, then so be it. But no coach should tell her she can't be on the track team.

khavice · Oct 19, 2011

Bill - I believe you are comparing apples and oranges. She can physically do the cheering, she just needs a snack to get through the 1 1/2 hours of physical activity. 
If my daughter (with CF) wanted to try the 40 yard dash I would encourage her to train her best and do it. If she could not finish a race when it came time to compete, then so be it. But no coach should tell her she can't be on the track team.

Printer · Oct 19, 2011

khavice:

What I heard was that she can't physically do the cheering. She needs a snack in order to cheer. Maybe apples and oranges would be the answer.

Bill

Printer · Oct 19, 2011

khavice:

What I heard was that she can't physically do the cheering. She needs a snack in order to cheer. Maybe apples and oranges would be the answer.

Bill

Sports Organization Discriminating against my daughter w/CF

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