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  1. K

    How do you know it is time for a vest?

    Trevor will be one in July and just got his vest. He does pretty good with it. We have only had it for a few days. He does it twice a day for 15 mins at a time. I love it because I feel like it is so much more effective than me doing manual CPT. Our clinic said that they recommend them...
  2. K

    added cals for 11 mo. old

    My son Trevor was in the 75th percentile when he was diagnosed. He is now 11 months and 19lbs and has dropped down to the 25th percentile. He usually gets baby food for breakfast, lunch and usually dinner. He does great with the baby food and I use the Beach Nut, it is about 120 cals a jar...
  3. K

    added cals for 11 mo. old

    My son Trevor was in the 75th percentile when he was diagnosed. He is now 11 months and 19lbs and has dropped down to the 25th percentile. He usually gets baby food for breakfast, lunch and usually dinner. He does great with the baby food and I use the Beach Nut, it is about 120 cals a jar...
  4. K

    added cals for 11 mo. old

    My son Trevor was in the 75th percentile when he was diagnosed. He is now 11 months and 19lbs and has dropped down to the 25th percentile. He usually gets baby food for breakfast, lunch and usually dinner. He does great with the baby food and I use the Beach Nut, it is about 120 cals a jar...
  5. K

    Why do so many Cfers have Reflux?

    Trevor has been on Prilosec since diagnosis. He is actually getting read to have a gastric emptying milk scan done as well. He has been junky all winter and his doc is wondering if it is being caused by his reflux and not a viral or bacterial thing. Increased nebs and antibiotics don't seem...
  6. K

    Why do so many Cfers have Reflux?

    Trevor has been on Prilosec since diagnosis. He is actually getting read to have a gastric emptying milk scan done as well. He has been junky all winter and his doc is wondering if it is being caused by his reflux and not a viral or bacterial thing. Increased nebs and antibiotics don't seem...
  7. K

    Why do so many Cfers have Reflux?

    Trevor has been on Prilosec since diagnosis. He is actually getting read to have a gastric emptying milk scan done as well. He has been junky all winter and his doc is wondering if it is being caused by his reflux and not a viral or bacterial thing. Increased nebs and antibiotics don't seem...
  8. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  9. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  10. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  11. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  12. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  13. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  14. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  15. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  16. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  17. K

    How many enzymes do you take

    Trevor takes 1 Creon 6 before meals (bottle or food). I do add extra formula to the bottles for added calories. And I use mostly Beach Nut baby food because of the calories. We have never had any stool issues other than soft and sticky...and VERY smelly! I think that is the lowest dose. His...
  18. K

    any thoughts on this please?

    I agree I would definately not give up until I got furthur testing. My son's sweat test numbers were 109 and 104. You can't give up when it comes to your kids. I would try to find a CF center and talk to someone there!
  19. K

    any thoughts on this please?

    I agree I would definately not give up until I got furthur testing. My son's sweat test numbers were 109 and 104. You can't give up when it comes to your kids. I would try to find a CF center and talk to someone there!
  20. K

    any thoughts on this please?

    I agree I would definately not give up until I got furthur testing. My son's sweat test numbers were 109 and 104. You can't give up when it comes to your kids. I would try to find a CF center and talk to someone there!
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