Search results

  1. K

    any thoughts on this please?

    I agree I would definately not give up until I got furthur testing. My son's sweat test numbers were 109 and 104. You can't give up when it comes to your kids. I would try to find a CF center and talk to someone there!
  2. K

    any thoughts on this please?

    I agree I would definately not give up until I got furthur testing. My son's sweat test numbers were 109 and 104. You can't give up when it comes to your kids. I would try to find a CF center and talk to someone there!
  3. K

    How many times a day do you do CPT for your child?

    We do Trevor's CPT 2x a day and then 4x when sick. His doc has always said a little CPT will never hurt so anytime I feel it's needed, go ahead and do it! Sometimes he sounds like if he could just have one good cough it would clear it out especially after he eats. So sometimes I do it more...
  4. K

    How many times a day do you do CPT for your child?

    We do Trevor's CPT 2x a day and then 4x when sick. His doc has always said a little CPT will never hurt so anytime I feel it's needed, go ahead and do it! Sometimes he sounds like if he could just have one good cough it would clear it out especially after he eats. So sometimes I do it more...
  5. K

    How many times a day do you do CPT for your child?

    We do Trevor's CPT 2x a day and then 4x when sick. His doc has always said a little CPT will never hurt so anytime I feel it's needed, go ahead and do it! Sometimes he sounds like if he could just have one good cough it would clear it out especially after he eats. So sometimes I do it more...
  6. K

    How many times a day do you do CPT for your child?

    We do Trevor's CPT 2x a day and then 4x when sick. His doc has always said a little CPT will never hurt so anytime I feel it's needed, go ahead and do it! Sometimes he sounds like if he could just have one good cough it would clear it out especially after he eats. So sometimes I do it more...
  7. K

    How many times a day do you do CPT for your child?

    We do Trevor's CPT 2x a day and then 4x when sick. His doc has always said a little CPT will never hurt so anytime I feel it's needed, go ahead and do it! Sometimes he sounds like if he could just have one good cough it would clear it out especially after he eats. So sometimes I do it more...
  8. K

    Prenatal diagnosis for CF

    My son Trevor was diagnosed when he was about a month old. We knew we were both carriers, but never in a million years did we ever think he would get it. I guess it was one of those "it will never happen to me things". We had level 2 ultrasound to check for the spot in the bowel, but they...
  9. K

    Prenatal diagnosis for CF

    My son Trevor was diagnosed when he was about a month old. We knew we were both carriers, but never in a million years did we ever think he would get it. I guess it was one of those "it will never happen to me things". We had level 2 ultrasound to check for the spot in the bowel, but they...
  10. K

    Prenatal diagnosis for CF

    My son Trevor was diagnosed when he was about a month old. We knew we were both carriers, but never in a million years did we ever think he would get it. I guess it was one of those "it will never happen to me things". We had level 2 ultrasound to check for the spot in the bowel, but they...
  11. K

    Prenatal diagnosis for CF

    My son Trevor was diagnosed when he was about a month old. We knew we were both carriers, but never in a million years did we ever think he would get it. I guess it was one of those "it will never happen to me things". We had level 2 ultrasound to check for the spot in the bowel, but they...
  12. K

    Prenatal diagnosis for CF

    My son Trevor was diagnosed when he was about a month old. We knew we were both carriers, but never in a million years did we ever think he would get it. I guess it was one of those "it will never happen to me things". We had level 2 ultrasound to check for the spot in the bowel, but they...
  13. K

    Coughing Cousin

    We had this same exact issue this year!. We decided this year that we were not leaving the house so that the kids could actually play with their toys and not have to rush out the door. So somehow this turned into me making dinner and having everyone at our house..which is fine. I don't mind...
  14. K

    Coughing Cousin

    We had this same exact issue this year!. We decided this year that we were not leaving the house so that the kids could actually play with their toys and not have to rush out the door. So somehow this turned into me making dinner and having everyone at our house..which is fine. I don't mind...
  15. K

    Coughing Cousin

    We had this same exact issue this year!. We decided this year that we were not leaving the house so that the kids could actually play with their toys and not have to rush out the door. So somehow this turned into me making dinner and having everyone at our house..which is fine. I don't mind...
  16. K

    Coughing Cousin

    We had this same exact issue this year!. We decided this year that we were not leaving the house so that the kids could actually play with their toys and not have to rush out the door. So somehow this turned into me making dinner and having everyone at our house..which is fine. I don't mind...
  17. K

    Coughing Cousin

    We had this same exact issue this year!. We decided this year that we were not leaving the house so that the kids could actually play with their toys and not have to rush out the door. So somehow this turned into me making dinner and having everyone at our house..which is fine. I don't mind...
  18. K

    just curious

    In Delaware, there is a program. However, it is hit or miss on whether you get accepted or not. For example, our social worker was telling us about a family that has 2 children with CF. One was accepted and one was denied. We are currently working on getting it so that no matter what all...
  19. K

    just curious

    In Delaware, there is a program. However, it is hit or miss on whether you get accepted or not. For example, our social worker was telling us about a family that has 2 children with CF. One was accepted and one was denied. We are currently working on getting it so that no matter what all...
  20. K

    just curious

    In Delaware, there is a program. However, it is hit or miss on whether you get accepted or not. For example, our social worker was telling us about a family that has 2 children with CF. One was accepted and one was denied. We are currently working on getting it so that no matter what all...
Top