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    CF patient story on NY Med tonight

    NY Med on ABC at 10p EST. Show features stories of actual patients in NY hospitals. Tonight's show includes a CF patient. FYI if anyone wants to tune in.
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    What song do you relate your CF fight to

    Jack Ingram. Keep On Keepin On.
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    Just for fun but CF related - Real things doctors have said to me in the hospital

    Hospital food service was leaving my food tray outside the door instead of bringing them into the room. I voiced my complaint to the dr. His reply: "This isn't a hotel."
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    Just for fun but CF related - Real things doctors have said to me in the hospital

    Hospital food service was leaving my food tray outside the door instead of bringing them into the room. I voiced my complaint to the dr. His reply: "This isn't a hotel."
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    Feeling overwhelmed and questioning everything

    Pulmozyme 1x day. 7% hts 1x day. Vest 1x day. A couple months ago I was exercising 3x a week. Didn't result in pft increase. I walk my dog but since the hospital stay I haven't restarted regular exercising. My energy just seems drained. I used to be able to mow our lawn front and back and the...
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    Feeling overwhelmed and questioning everything

    Pulmozyme 1x day. 7% hts 1x day. Vest 1x day. A couple months ago I was exercising 3x a week. Didn't result in pft increase. I walk my dog but since the hospital stay I haven't restarted regular exercising. My energy just seems drained. I used to be able to mow our lawn front and back and the...
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    Feeling overwhelmed and questioning everything

    Pulmozyme 1x day. 7% hts 1x day. Vest 1x day. A couple months ago I was exercising 3x a week. Didn't result in pft increase. I walk my dog but since the hospital stay I haven't restarted regular exercising. My energy just seems drained. I used to be able to mow our lawn front and back and the...
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    Feeling overwhelmed and questioning everything

    I recently did 2 weeks in patient clean out. My pfts are lower now than before I went in the hospital. I've spent all evening looking at various compressors. Reading the meds available through foundation care. Wondering if I should be taking more nebs. If I am being aggressive enough w my...
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    Feeling overwhelmed and questioning everything

    I recently did 2 weeks in patient clean out. My pfts are lower now than before I went in the hospital. I've spent all evening looking at various compressors. Reading the meds available through foundation care. Wondering if I should be taking more nebs. If I am being aggressive enough w my...
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    Feeling overwhelmed and questioning everything

    I recently did 2 weeks in patient clean out. My pfts are lower now than before I went in the hospital. I've spent all evening looking at various compressors. Reading the meds available through foundation care. Wondering if I should be taking more nebs. If I am being aggressive enough w my...
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    What brand is your nebulizer compressor?

    My 11 year old Pari machine needed replacing. I was told I would receive Pari and they sent Evo which is louder than the machine I had. Tell me what you know about compressors. Thanks!
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    What brand is your nebulizer compressor?

    My 11 year old Pari machine needed replacing. I was told I would receive Pari and they sent Evo which is louder than the machine I had. Tell me what you know about compressors. Thanks!
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    What brand is your nebulizer compressor?

    My 11 year old Pari machine needed replacing. I was told I would receive Pari and they sent Evo which is louder than the machine I had. Tell me what you know about compressors. Thanks!
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    hospital stay vs. home iv's

    I always do the 2 weeks in hospital. If I'm sick enough to require iv's, I want the 4x per day manual cpt. It works the best.
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    hospital stay vs. home iv's

    I always do the 2 weeks in hospital. If I'm sick enough to require iv's, I want the 4x per day manual cpt. It works the best.
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    hospital stay vs. home iv's

    I always do the 2 weeks in hospital. If I'm sick enough to require iv's, I want the 4x per day manual cpt. It works the best.
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    Flying w the vest

    So I understand from other posts that the vest does not count as a carry on, I can have it in addition to the carry on bag and personal item. Do I need to do anything special in advance to let the airline know I will have this extra item? It's my first time flying with the vest and I'm just...
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    Flying w the vest

    So I understand from other posts that the vest does not count as a carry on, I can have it in addition to the carry on bag and personal item. Do I need to do anything special in advance to let the airline know I will have this extra item? It's my first time flying with the vest and I'm just...
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    Flying w the vest

    So I understand from other posts that the vest does not count as a carry on, I can have it in addition to the carry on bag and personal item. Do I need to do anything special in advance to let the airline know I will have this extra item? It's my first time flying with the vest and I'm just...
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    Picc line at home or in hospital

    I choose inpatient so I can get 4x per day manual cpt. For me, it's more effective than the vest, and if I'm doing picc meds for 2 weeks I want to get the most out of my clean out.
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