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  1. V

    Meconium illeus at birth

    I had a meconium illeus at birth. My mutations are delta f508 and W1282X. When I born they noticed my stomach was enlarged so I went right into surgery. I have a long scar above my belly button going across my stomach and then a smaller one next to it. I also have a scar on my neck from where...
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    Meconium illeus at birth

    I had a meconium illeus at birth. My mutations are delta f508 and W1282X. When I born they noticed my stomach was enlarged so I went right into surgery. I have a long scar above my belly button going across my stomach and then a smaller one next to it. I also have a scar on my neck from where...
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    Fev1 not responding

    I believe that when your FEV's get low there is always a chance of bringing them back up. I'm actually at the point now where I am trying to bring mine back up as well. I'm usually at 69-70% FEV1 and recently I have been at 49%. Maybe we can hope and motivate each other. Also, keep in mind that...
  4. V

    Fev1 not responding

    I believe that when your FEV's get low there is always a chance of bringing them back up. I'm actually at the point now where I am trying to bring mine back up as well. I'm usually at 69-70% FEV1 and recently I have been at 49%. Maybe we can hope and motivate each other. Also, keep in mind that...
  5. V

    Fev1 not responding

    I believe that when your FEV's get low there is always a chance of bringing them back up. I'm actually at the point now where I am trying to bring mine back up as well. I'm usually at 69-70% FEV1 and recently I have been at 49%. Maybe we can hope and motivate each other. Also, keep in mind that...
  6. V

    Acupuncture or other methods of healing?

    Thanks for the websites Risa and Jody. Great info! And I agree with you Jody, Risa does know her stuff. I had my massage today and wow it felt wonderful. I am no longer a massage virgin hehe I guess you could say. I went to a medical day spa so the massage therapist knew what Cystic Fibrosis...
  7. V

    Acupuncture or other methods of healing?

    Thanks for the websites Risa and Jody. Great info! And I agree with you Jody, Risa does know her stuff. I had my massage today and wow it felt wonderful. I am no longer a massage virgin hehe I guess you could say. I went to a medical day spa so the massage therapist knew what Cystic Fibrosis...
  8. V

    Acupuncture or other methods of healing?

    Thanks for the websites Risa and Jody. Great info! And I agree with you Jody, Risa does know her stuff. I had my massage today and wow it felt wonderful. I am no longer a massage virgin hehe I guess you could say. I went to a medical day spa so the massage therapist knew what Cystic Fibrosis...
  9. V

    IT'S KAYLEESGRAMMA'S BIRTHDAY TODAY!!!

    I know we talked last night but again, Happy Birthday! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. V

    IT'S KAYLEESGRAMMA'S BIRTHDAY TODAY!!!

    I know we talked last night but again, Happy Birthday! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. V

    IT'S KAYLEESGRAMMA'S BIRTHDAY TODAY!!!

    I know we talked last night but again, Happy Birthday! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. V

    Acupuncture or other methods of healing?

    I'm glad to hear about all the great feedback about acupuncture and other methods of healing. After a night of coughing, I've decided to treat myself to some pampering today. I'm getting a swedish massage for the first time today including 15 minutes of reflexology which is pressure applied to...
  13. V

    Acupuncture or other methods of healing?

    I'm glad to hear about all the great feedback about acupuncture and other methods of healing. After a night of coughing, I've decided to treat myself to some pampering today. I'm getting a swedish massage for the first time today including 15 minutes of reflexology which is pressure applied to...
  14. V

    Acupuncture or other methods of healing?

    I'm glad to hear about all the great feedback about acupuncture and other methods of healing. After a night of coughing, I've decided to treat myself to some pampering today. I'm getting a swedish massage for the first time today including 15 minutes of reflexology which is pressure applied to...
  15. V

    Acupuncture or other methods of healing?

    Has anyone ever tried acupuncture as an alternative medicine to help with sinus symptoms, lung infections, asthma, and other CF related problems? For those who have, do you think it has worked? I've also read about Reiki, chiropractic, meditation, yoga, reflexology, and other forms of...
  16. V

    Acupuncture or other methods of healing?

    Has anyone ever tried acupuncture as an alternative medicine to help with sinus symptoms, lung infections, asthma, and other CF related problems? For those who have, do you think it has worked? I've also read about Reiki, chiropractic, meditation, yoga, reflexology, and other forms of...
  17. V

    Acupuncture or other methods of healing?

    Has anyone ever tried acupuncture as an alternative medicine to help with sinus symptoms, lung infections, asthma, and other CF related problems? For those who have, do you think it has worked? I've also read about Reiki, chiropractic, meditation, yoga, reflexology, and other forms of...
  18. V

    Hypertonic Saline and hemoptysis

    I am not familiar with hemoptysis, so I have some questions. Jazzymom, I noticed that you had mentioned that the saline can aggravate hemoptysis just like Pulmazyme can, but can it cause hemoptysis? What causes hemoptysis?  
  19. V

    I reached my goal...

    Wow, all muscle! Congrats! I always like to prove the doctors wrong myself. Way to go!
  20. V

    Anyone have thrush?

    Also can the thrush lead to an infection in my lungs if not treated right away?
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