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<div><font size="2" face="Arial, Helvetica, sans-serif">I'm an adult who was recently diagnosed with CF. I just had a BMD test done today. I'm 30% below what I should be for my age. I have osteoporosis. It all makes since. It's CF-related. According to a CF-BMD study, Maldigestion...

Here is the direct link from the University of Dundee:<br> <br> http://www.dundee.ac.uk/pressreleases/2006/prjuly06/cysticfibrosis.html<br> <br>

Released July 25, 2006<br> <br> Scientists have discovered a fat-controlling protein which could lead to breakthrough treatment for cystic fibrosis...<br> <br> See link:<br> <br> http://www.thisislondon.com/news/articles/PA_NEWA35887811153749011A0000?source=PA%20Feed<br> <br> Randford, 43/CF<br>

<strong>amber682</strong><br> <br> Wow, that is amazing and stressful I'm sure. Boy, I learn something every day. That's quite a situation when the mutation is so rare, it cannot be identified. Then different combinations bring about different symptoms. Then we are all biochemically different...

<b>Alyssa,<br> </b><br> That's comforting. I just cannot afford treatment at the moment. I just hope I hold it together until I can. I should be on Pulmozyme now.<br> <br> As for you daughter. I am so glad she is doing better. Keeping children on a regiment is difficult, especially when they are...

<b>Amy,<br> </b><br> Amy, you are absolutely right when you said "Issues like modifier genes, food intake, environment, compliance with meds, can affect your clinical outcome." I agree. Even androgen levels can affect CFTR expression as I discovered from the CF endocrinologist. <br> <br> I'm...

My sounds boring but I think I win for the rarest combination. Delta F-508 and P-140S. Nobody so far has it.<br> <br>  I'm in.<br> <br> Randford, 43/Male/CF

<b>Hello Everyone,<br> </b><br> I wondering what kind of health issues are there for all of us who are heterozygous for Delta F-508 and a mutation of that gene that creates CF?<br> <br> I was recently diagnosed and sInce my combination is so rare, Delta F-508 and P-140S, I'm wondering what I...

<b>lilmac7,<br> </b><br> You're an inspiration. I read about your competition. Great work! Say, I was recently diagnosed and I wonder what your issues are as well as LouLou's. My combination is so rare that only one other person on the CF database has my combination. Delta F-508 and P-140S. I...

<b>LittleDebbie,<br> </b><br> Hehe! I thought you'd like that! ;-) This is my favorite! http://www.littledebbie.com/products/SnackCakes.asp<br> <br> Thanks for the info. I see the class listing. Hey, I'm confused. How do you know what class your genes or there combination can be? I'm Delta F-508...

I'm just wondering if anyone has the combination, Delta F-508 and P-140S and what problems you may have.<br> <br> Thanks,<br> <br> <b>Randford,<br> </b>CF/43

<b>Snackcake,<br> </b><br> I have F508 and P140S. What's Class II and a Class I?<br> <br> <b>Randford<br> </b>43/CF

<b>Diane,<br> </b><br> I was diagnosed a few months ago. I'm 43. I was confused, a bit angry but what drives me is that my Nephew died last year from CF. He was 15 and had it much worse than I do. He had no chance at life and yes, most fellow students were supportive yet some gave mixed...

I love the web site! I really like the t-shirt message, "Blew my 401K on Pulmozyme and liquor." That's classic! Or "Excuse me while I beat my son." Very good. It gets people's attention.<br> <br> Thanks for the kind word about my Nephew. I created a site in his memory. www.randysnider.com He was...

Heather,<br> <br> Maybe I should move to Los Angeles! BCBS sucks. Once diagnosed, the info goes on the MIB (Medical Insurance Bureau) database. So no matter what you do or where you go, it's there. Oh well, such is life. My fear is being uninsurable and at some point, unemployable. I know they...

"mild <strong>Chipper,</strong><br> <br> Yes there are milder forms of CF. Like you, I thought you either have CF or you didn't. I'm 43 and was diagnosed two months ago. My Nephew died from it at age 15. He was homozygous for Detla-F508. That means he had two copies of the gene. I am...

Jem,<br> <br> Thanks for the information. I'm learning that CF is very complicated. I'm glad you are doing well. I'm sure your family offers much love and support. Thanks for telling me about Hypertonic Saline. $36/month is better than $1700/month. I think the CF people mean well but each clinic...

TLQ,<br> <br> August 15th will be a year. He was such a bright child. He was like a son to me. He was diagnosed a age 3. A friend and nurse kissed him and noticed that his skin tasted very salty. She immediately new what it was.<br> <br> You seem to be a strong and willing person to fight this...

I am 43 and was recently diagnosed with CF. My Nephew died last year at age 15 from CF. He was Homogygous, or had two copies of Delta F-508. I have one copy of Delta F-508 and one copy of P-140S, a rare mutation. So rare that there is only one other person on the 30,000 CF patient database that...