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I give my son his Pulmozyme at night. I used to give it to him in the AM. In the hospital they always do it early in the morning. Just recently he cultured psuedomonas, and I noticed that he was having a hard time breathing while he was sleeping, and he was having awful coughing fits that were...

My son is 2 feet tall, and he weighs 11 pounds. He's only 10 months old, but he is still really small.

No problem. I am glad that I could help clear up your questions. All the kids with RSS have a very distinct look. I personally think they are very cute.

I would love to share my unique story about my son and his crazy chromosomes. He is definately a rare one. But, whatever happens, I would love to see something about CF. I think it is so important that people are aware of this disease, and the amazing people that live with it everyday. Good luck!!

Russell-Silver Dwarfism has nothing to do with CF. It is just like any other form of dwarfism. My son was born with it, and he was diagnosed about 2 months after he was diagnosed with CF. It is genetic. This particular type of dwarfism comes from the number 7 chromosome. That is also the...

They have given him a perscription for cipro (sp?) and tobi. I won't be able to get either one until tomorrow, but I do not have the correct attachment for the tobi on the nebulizer. That probably won't be here until Thursday. He still has a fever and I beginning to get really worried. The RN at...

that's because we are all the doctors around the world put together into 1 incredible knowledgable website.

Well, I talked to his CF doctor this morning. He has cultured psuedomonas. So we are going to treat that, do you think I should still try to get a chest xray? He was puking up 7up looking stuff. That's exactly what I thought it looked like. But about the fever. I have been giving him Tylenol...

Well, we got the results back today that my son does have psuedomonas. So what does this mean? Will he be hospitalized? He has had a fever of 102* since 8pm last night. I am waiting to hear back from his doctor.

My son has been sick with a nasty cough for 10 days now. He is on cephalexin and just finished up his RX for steriods. Then last night, all of a sudden he got a fever of 102*. He was up all night coughing and choking and puking. Then he started doing this thing that was really wierd. He was...

That is awesome. I think sometimes we underestimate kids. Good for them!

My son had a central line and it was wonderful. They can give them IV meds and also draw blood from them. So even though you dread punching another hole in him, hopefully it will be the last one for a long time. I was so thankful that during my son's last hospital stay that instead of drawing...

My 10 month old son has a g-tube. I was very nervous at the first thoughts about doing it, but I decided to just do it and get it over with. It was by far the best decision. I love it. We have not had any complications. Of course my son isn't as active as yours, but if he is in need of calories...

I was asked today to write the obituary for this little girl. Has anyone ever had to write one? I feel like there is nothing in the world that I can write that would be good enough. You can't put into words how special your children are.

My son would sweat really bad at night. We found out that do to his pancreatic insufficiency he was severly hypoglycemic, and it was worse at night, because he was sleeping through the night and not waking up to feed. He is on continous feed 22 hours a day (he has a g-tube), and he doesn't have...

I have a smoking related etiquette question. This morning I took my 2 children to the parade in town. I have a four year old and a 10 month old. My 10 month old has CF. The man sitting right next to us was a smoker. In the 2 hours that we were sitting there, he probably smoked 10 cigarettes. How...

I agree with the original poster. Always in the back of my mind there was the thougt that someday I would loose my son. It recently became more real to me, when my 4 week old niece passed away this last Tuesday. My family is grieving this horrible lose, and I see how torn apart her mother is...

I know just how you feel about no light at the end of the tunnel. My son was diagnosed on 2/14/05. He was 3 1/2 months old. Since then he has been hospitalized at least once a month. Staying in for as long as 3 weeks. It's very easy to get discouraged and lose faith, but you have to be strong...

My daughter was 10 pounds even when she was born. She doesn't have CF. My son was 5 pounds 10 ounces when he was born. He does have CF. He also has a form of dwarfism they is contributing to him being so small. But, just thought I would share their weights.

My son has been getting throat cultures just about every time that we go to the clinic. Partly because strep throat has been floating around our family. Luckily neither one of my kids have gotten it. He isn't congested at all. In fact, during the day, he is pretty much his normal self, only just...