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  1. R

    Crazy tired and caffeine doesn't help

    I have been tired for many years so I've been used to it. But lately, it has gotten a little worse. I don't like it because I have classes that I take Monday-Friday so I don't have the time to sleep all day anymore since I have to study and such. Also, I had a double lung and liver transplant...
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    Enlarged spleen and low platelets

    Yes!! I have this exact same problem. My liver and spleen were so big that I looked 8 months pregnant before my transplant. It has been almost 14 months since my double lung and liver transplant. My liver isn't big anymore (since it's a new liver) but my spleen is somewhat big and I still...
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    Sinus issues: I can't smell anything

    I also cannot smell (or taste) and it has been that way for about 7 years now. I have had a few sinus surgeries and one was just a month ago but I still can't smell or taste. I also had a transplant over a year ago and that didn't help it either. I'm on a ton of meds (like Prednisone) which...
  4. R

    Ringworm after transplant

    Nevermind, I'm taking her back tomorrow :(...
  5. R

    Ringworm after transplant

    So I got a double lung and liver transplant last November 2012. I recently got a cat for my birthday in September. We found out she has ringworm though. We have been giving her medicine but it seems to be getting worse. I know ringworm is super contagious so I'm wondering if I should take...
  6. R

    I want to become vegan but I need to gain weight

    Ah, I don't like avocados but I don't mind chick peas. I was thinking of soy protein powder too. Haven't heard of brewers yeast but I'll have to try that, thanks!
  7. R

    I want to become vegan but I need to gain weight

    Yea, I think I'll be eating a lot of peanut butter, bread, nuts, and maybe I'll make some protein shakes with soy milk or something. Thanks!
  8. R

    I want to become vegan but I need to gain weight

    Yikes, this is going to be more difficult than I thought. Thankfully I live in Houston (a major city) so I'll have more restaurant and grocery options. Thank you so much for all of the info and tips!
  9. R

    I want to become vegan but I need to gain weight

    So I've done a lot research on how animals are treated in the meat and dairy farms and it is pretty despicable. Therefor, I want to become vegan but I also need to gain weight. I'm 95 lbs and I'm 5'2''. Is anyone else vegan? Does anyone know a good way to gain weight while being vegan?
  10. R

    new lungs

    I got my transplant at the end of November but I also got a liver along with lungs. It's definitely awesome being able to walk more without getting out of breath with oxygen.
  11. R

    Can I go to the lake after transplant?

    Thank you everyone for your input and advice. I guess I won't be selling my jet ski :). But of course I'll be careful when I do go in the water.
  12. R

    Can I go to the lake after transplant?

    This may seem like a dumb question but I have to ask it anyways. Will it be a bad idea to go out on the lake after a double lung and liver transplant? I'm talking about after 6 months, a year or more afterwards. I'm asking because I don't know if I should sell my jet ski or if I can ever use...
  13. R

    how to meet/talk to other cf people

    Awesome...i'll be there
  14. R

    how to meet/talk to other cf people

    Ok, thank you so much for the ideas. I've been in the chat before but I was the only one in the chat room lol... I probably wouldn't meet people in real life either though.
  15. R

    how to meet/talk to other cf people

    This may seem like a stupid question considering this is a forum where you talk to other CFers and their families.But what is the best way to meet and talk to other CFers? I stay at home almost every day and I'm sooo bored. Thankfully I have a sister (with cf) and a fiance (without cf) and my...
  16. R

    Iv abx and kidneys...rising creatine levels

    I've had issues with my creatine levels while on iv antibiotics also...the solution for me has been a liter of water through iv. Now, everytime I have to have iv antibiotics (usually for 3 weeks) I always have a liter of water each day also.
  17. R

    ENZYMES

    I'm taking Creon 12,000 also. If I eat a whole meal then I take 5 pills. I used to take 3, then 4, but now 5 pills. I've been taking Creon for yeaaars and it seems to work pretty well.
  18. R

    Advair

    I've been on it for a few years but I've never noticed a difference. I thought it was kind of pointless so I stopped taking it and then when my cf doctor found out, she asked me to go back on it.
  19. R

    Can't quit coughing

    When I get to the point that I cough so much that I'm extremely exhausted and throw up...then I take Hydromet syrup. Yes, it's cough medicine that suppresses your cough but it helps for when you need to sleep and not throw up your food. Good luck <img...
  20. R

    Can't quit coughing

    When I get to the point that I cough so much that I'm extremely exhausted and throw up...then I take Hydromet syrup. Yes, it's cough medicine that suppresses your cough but it helps for when you need to sleep and not throw up your food. Good luck <img...
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