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My names Patty. I'm a 23 yr old girl. Lived in Texas my whole life. I'm 5'2 and around 100 lbs. Diagnosed with cf before I was born. Older sister also has cf. Diagnosed with cfrd at age 14. I've had liver problems since I was about 10 yrs old. Currently on the transplant list for a double lung...

I can't seem to get rid of the horrible smell/taste lately. Even when I can't taste food, I can still taste/smell the mucus from my lungs. This is one of the big reasons why I hate kissing my fiance...I know he can smell it also but is just too nice to say anything. My mom and I were talking...

I can't seem to get rid of the horrible smell/taste lately. Even when I can't taste food, I can still taste/smell the mucus from my lungs. This is one of the big reasons why I hate kissing my fiance...I know he can smell it also but is just too nice to say anything. My mom and I were talking...

That is some very helpful information <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you so much!

That is some very helpful information <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you so much!

I'm looking into getting a portable oxygen concentrator for when I get out of the house (which is kind of rare but I'd like to do it more often). My problem is that most of them only give out the oxygen if you inhale through your nose. My breaths are pretty shallow, therefore I usually don't get...

I'm looking into getting a portable oxygen concentrator for when I get out of the house (which is kind of rare but I'd like to do it more often). My problem is that most of them only give out the oxygen if you inhale through your nose. My breaths are pretty shallow, therefore I usually don't get...

Sue, I'm in the exact same situation and it is sooo annoying! I feel totally worthless and useless. I want a hobby really bad but I have no idea which one to persue. Ideally, I'd like to do something that could help others (especially animals) or at least make money off of it. The only thing...

Sue, I'm in the exact same situation and it is sooo annoying! I feel totally worthless and useless. I want a hobby really bad but I have no idea which one to persue. Ideally, I'd like to do something that could help others (especially animals) or at least make money off of it. The only thing...

When I'm on home iv's I can sleep for 18 hours a day easy but I try not to. Sometimes I take naps for at least 30 minutes but usually longer. When I'm in the hospital I have a very different schedule. I wake up at about 7 am because you have to order food within a specific time. But I always...

When I'm on home iv's I can sleep for 18 hours a day easy but I try not to. Sometimes I take naps for at least 30 minutes but usually longer. When I'm in the hospital I have a very different schedule. I wake up at about 7 am because you have to order food within a specific time. But I always...

Ohh thats interesting, I haven't heard of a cf patient getting a liver without lungs. But that's good that you didn't need them. And yes, they are going to do my liver and lungs at the same time. They said that as my lung functions get worse, my liver will get worse also. Yep, so I'm just...

Ohh thats interesting, I haven't heard of a cf patient getting a liver without lungs. But that's good that you didn't need them. And yes, they are going to do my liver and lungs at the same time. They said that as my lung functions get worse, my liver will get worse also. Yep, so I'm just...

I actually did research this stuff on Google and still couldn't find much information on it. But thank you so much Lisa for all of that info. I'm just curious though, did you also have a double lung transplant since you have cf? That may seem like a stupid question but your profile didn't...

I actually did research this stuff on Google and still couldn't find much information on it. But thank you so much Lisa for all of that info. I'm just curious though, did you also have a double lung transplant since you have cf? That may seem like a stupid question but your profile didn't...

I don't mind any questions. I was diagnosed with CF before I was born actually. My older sister and I have the same mutation but for some reason I started to have liver problems when I was around 9 years old and she has no liver problems thankfully. When I was about 17 my liver really started...

I don't mind any questions. I was diagnosed with CF before I was born actually. My older sister and I have the same mutation but for some reason I started to have liver problems when I was around 9 years old and she has no liver problems thankfully. When I was about 17 my liver really started...

That's a good one, thank you.

That's a good one, thank you.

I posted this a few days ago but my post got transferred to the "Transplants" board and I only got one response. Anyways...<span style="font-size: small;">I'm on the list for a double lung and liver transplant. I was wondering if there is a list of things that a transplant patient cannot do or...