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Wishing you good health!

sounds like progression to me. I'd be more concerned with lung scarring though. That is the true test of progression , mucus can be cleared out. You mentioned her doing lots of vest treatments, is she coughing? So far no medicine is available to clear the congestion, just thin it and fight...

I don't know, I understand arguments from both sides. He probably didn't think you had a lung condition, just maybe sick. If you're sick the general consensus would be to stay home and get better as to not contaminate others'. Living with the disease myself I've struggled with how much my...

Cf is normally detected using a sweat test (collects the amount of salt in your sweat). 1.) Doctors can test for those organisms by doing a sputum culture( the greener, the better. Try to cough hard enough to get the ssputum from deep within your lungs). if nothing shows up they can also do a...

Now we are getting somewhere. Life experiences are interesting that way, they can drastically change your perception on a multitude of issues ranging from political views to social issues. I'm sorry you had such a crummy experience with smokers, that must have been really dicficult. My...

Thank you this was very informative. I was going to state this before but wanted to be careful about giving misinformation . An agency I worked at hired people formally on social security who then transitioned to working full of part time. If I remember correctly they were given a trial period...

So I guess I'm going to be on the other end of the spectrum because I know/ am friendly towards smokers. Of course, I'm never around when they do it. After talking with them I found this is a true addiction. Bottom line, it messes with your brain. Most smokers know the health risks and want to...

Unemployment might be good. I'd just be cautious of what you have to pay back once you start working again, be it unemployment or disability.

Thank you all for your replies, and believingjesus prayers always appreciated. Sorry it took me so long to reply, I'm the type of person who usually tries to reflect on responses before posting. Thank you for sharing your personal experiences, it really does help and give me more to think...

The changes in how I'm feeling overall since my last hospital stay feel drastic, however right now my numbers don't really reflect that. I'm the past usually what would happen would be I would suddenly get sick with something (cold, flu, whatever), cough a ton, get to my couch out of breath...

First let me state I hope you find the support you need, whether it be on here or somewhere else in your life. Now I am going to respond to this post in the best way I know how. Please only respond if and when you feel ready. I'll start off by addressing your concern about how you felt...

I applied a few years back on my own and was denied. If I applied again I would probably go the route you are going and talk with the CF legal team. After I got denied I applied with California's DoR as well and found a job. As far as adding on another diagnosis I would say only do it if you...

I agree with the above posters.Having a transplant is a very scary decision, then to add on the impact on the family and I can see how it can be so overwhelming. For your eldest daughter, I'd focus on the positive aspects of transplantation and maybe share some success stories. Ultimately it...

Not much more to add but yes, I think you and anyone else who wants to post is welcome here. If something is way out of left field (internet trolls) then we have good forum moderators to address that. When posting I try to be as informative as I can and try not to take things too personally. I...

Yes, exacerbations can be hospital stays or flare up of CF symptoms. To aboveall, I do want approval based on real science, and if the evidence is lacking maybe we should invest in something that works better. As people have already mentioned, this drug is expensive and I believe we should get...

Eh I'd have to go with Ethan here on this one. Its one of those things where you're telling the community to buy it before you try it. Only a small amount of people actually know what it's like to be in the trial, and an even smaller amount to be on active drug. How disappointing would it be...

Well my post was more in response as to why it may be delayed. I'd say go straight to the source. Shoot an email to the study coordinators in those areas and they may be able to give you a more accurate timeline

I started my career a few years ago part time due to budgeting, however since then I've had numerous opportunities to go full time but had to turn them all down. First let me state that I really value what my company does so this makes sense For me, two things went into my decision. 1.) Will...

Have to remember it is still just a study, if they had exciting news we would of probably heard testimonials by now. Scientifically speaking they go for safety first, then effectiveness. I bet they are even more cautious with children since they are not done developing yet.

Tough one. My largest lung function increases were after hospital stays as well. With lung function you have to keep in mind two things, the clogging/ blocking of the airways and lung scarring. Once you get an infection both of these occur, however hospital stays (if they are long enough)...