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Gee your full of optimism aren't you. Yes we all know that we have to continue to take care of ourselves, he just wants to know what new technologies would make this disease more manageable than it current is today. While "technically" you may be right (Then again, who is to say a...

I can see both points of view (and please tell me if I'm wrong in my statements from either side): Jeanne feels she has worked on this for so long and doesn't want this site to be a fan-base build-up for some other destination she has no part in. It is her website at the top of the Google...

Personally I think Obama has done alot for the CF community. The big question is will you put your faith in the almighty dollar, or people. Both can be good, both can be evil. For me, it is too early to predict. The OP's arguement isn't exactly new, but it changes your perspective when you see...

Pretty much what they said. Mine has been anywhere from 88% to 99%, and I know this because I did get a pulse ox (go to your local sports store like REI). The 88% was after a pretty hard work-out right after a hospital stay, and I get 99s at moderately active times of the day. As far as...

Pretty much what they said. Mine has been anywhere from 88% to 99%, and I know this because I did get a pulse ox (go to your local sports store like REI). The 88% was after a pretty hard work-out right after a hospital stay, and I get 99s at moderately active times of the day. As far as...

Since you have a Bachelor's might as well put it to good use before you go on SSI if you can help it. I agree with Rmotion, SSI income is considerably lower than most jobs out there, especially with your degree. We kind of get the short end the straw being broke and sick lol. After I got...

Since you have a Bachelor's might as well put it to good use before you go on SSI if you can help it. I agree with Rmotion, SSI income is considerably lower than most jobs out there, especially with your degree. We kind of get the short end the straw being broke and sick lol. After I got...

My parents used to do it toowhen I was sleeping too with a mask on and I hated it, so when I was a little bit older I was given a choice to do it with the mask or with the nebs. It still wasn't my favorite but Iturned on the T.V to my favorite shows and picked the neb option instead. i also...

My parents used to do it toowhen I was sleeping too with a mask on and I hated it, so when I was a little bit older I was given a choice to do it with the mask or with the nebs. It still wasn't my favorite but Iturned on the T.V to my favorite shows and picked the neb option instead. i also...

I understand completely, most people just don't get it. What I tend to do is go to the gym late at night, like 11:30 pm, and work out then. It really is the most effective way for me to get the damn stuff out, and least painful if you know what I mean. When I get done swimming and hop in the...

I understand completely, most people just don't get it. What I tend to do is go to the gym late at night, like 11:30 pm, and work out then. It really is the most effective way for me to get the damn stuff out, and least painful if you know what I mean. When I get done swimming and hop in the...

I grew up doing competitive swimming as well and had that same feeling of tightness/breathlessness the first time I got in after a fewyearsoff. The feeling lastedfor a few days every time I got into the pool but eventually went away. Something about swimming just makes it so much easier to cough...

ugh it took the first sentence out of like 3 paragraphs I wrote and double posted it. Anyways to sum it up: don't focus too much onoxygen after exercising, it is natural for them to go down with any pulmonary disease.If your concerned it might go down too low get a pulse-ox from REI, the added...

ugh it took the first sentence out of like 3 paragraphs I wrote and double posted it. Anyways to sum it up: don't focus too much onoxygen after exercising, it is natural for them to go down with any pulmonary disease.If your concerned it might go down too low get a pulse-ox from REI, the added...

What is your FEV1 and sats after hospitalization? That may be the best way to determine what is permanent and what can be improved as to your specific situation. <strong></strong> <strong></strong><strong></strong>

What is your FEV1 and sats after hospitalization? That may be the best way to determine what is permanent and what can be improved as to your specific situation. <strong></strong> <strong></strong><strong></strong>

Your lung function is a little under 60%. I too applied for disability a while ago with a slightly lower lung function and was declined. Since then I went through DoR and obtained a part-time job which keeps me more motivated to keep myself healthy. At least your one step ahead of the game...

Your lung function is a little under 60%. I too applied for disability a while ago with a slightly lower lung function and was declined. Since then I went through DoR and obtained a part-time job which keeps me more motivated to keep myself healthy. At least your one step ahead of the game...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Now before you all start yelling at me I also have CF and I completely understand your concerns, expecially when your lung functions are so low and you are...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Now before you all start yelling at me I also have CF and I completely understand your concerns, expecially when your lung functions are so low and you are...