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I'm glad you will be "free" soon. I know IVs are a huge drag, even when done at home. I would just encourage you to get really (overly, even) practive about finding alternatives. Antibiotics are great, but they can do a lot of damage to your body as well. Have you tried anything out of the...

Hey Mel and Purple Angel!You both are having quite a time of things, though differently. I sympathize! I know we all have a different ride, but I have gone through periods where it seemed like everything was falling apart and just kept falling apart. In my teens and early 20s I had about 5 or 6...

To Jody and the Pregnant Mama!Pregnant Mama: I just want to say that I can totally relate. When I was pregnant, I knew that breastfeeding was best, but when I thought about actually doing it I was really uncomfortable. I was always so se*ually sensetive in the breast area that I really thought...

WinAce, that was amazing. Very touching. So transparent. Thank you for sharing.

Have you tried or thought about making your own saline? That is what has been recommended to me. It is cheapest and you can make it quite concentrated. I'll try to find the recipe if you want it.

I posted much of how I clean on the "safe cleaning products" (or something to that effect) thread here on the families side. I do not use chemicals if there is any alternative. The dust can be aggravating, but I have found a regular mask like you buy at the store or a bandana do fine. I also...

To the Anonymous poster who had the CF-related stillbirth:I would email you privately but, I can't, so...I want to commend you for your convictions and your faith. It is rare and precious to see a family who truly trusts God with their lives. It is no easy thing to do, but I can very much relate...

<blockquote>Quote<br><hr><i>Originally posted by: <b>ClashPunk82</b></i>Just out of curiousity how hard is it for a woman with CF to get pregnant?<hr></blockquote><A href="http://www.geocities.com/MurrensNatureMama">www.geocities.com/MurrensNatureMama</A> is a website built to address that sort...

I am allergic to heparin, so I flush with saline. I still only flush once a month and have never had a clotting problem. My port is 8 years old. I miscounted, when I posted earlier.It workes kind of like an electrical outlet, Melissa, in that the outlet is always there, but you don't always have...

Amen and Amen!We have an anti-child, anti-family culture. Think of it. We are pressured to give our tiny babies to baby-sitters at least once a week for time with husband (as if tiny babies really interupt a conversation or a nice walk together), then our toddlers need to be in Mother's Day Out...

<P>When pregnant, I discontinued my anti-depressant, sleep med, and Prilosec. I took a substitute for Prilosec through the first two trimesters and then restarted Prilosec in the third on the advice of my docs. When breastfeeding I was able to take all the regular maintenance meds I needed. I...

I do not distribute Reliv, but my distributor is awesome and I'd be thrilled for you to use her. Her name is Betty Freeman (<A href="mailto:bcfreeme@aol.com">bcfreeme@aol.com</A>). She isn't huge about email, but does check it. If you would like her phone numbers I'd be happy to share them in a...

Usually, but by no means always, thrush can be seen as white bumps or a whitish coating on the inside of the cheeks and/or tongue as well as the throat. It can get onto the lips and cause a reddish ring around the lips (it appears to be chapped, as from licking the lips too much) and/or the...

I think an aspect of support that has not been studied, nor has it been employed in any sort of deliberate fashion, is that of mentorship. I think that many young people with CF have a hard time transitioning from pediatric care and from being cared for to being the primary responsible party in...

<P>All of these moms have said such wonderful insightful things. I can't really add anything to that except to say that, like Emily (though I didn't have meconium ileus) I had a rather rough start as a baby. I wasn't diagnosed until I was 7 months and at that time I was in such shabby condition...

Yes it is possible to pass along a live vaccine to an immuno-compromised individual. It is less likely with a shot (IM - intramuscular) than with something like the FluMist inhaled vaccine.As to the risks of vaccination...each disease has its own risk considerations and each vaccine has risks...

I know that I'm not Julie, but I thought I could contribute so...Having CF, I have tried numerous shakes (Boost, Ensure, Carnation even Slimfast, but as a between meals snack not meal replacement). None of them made a bit of difference. However, I started taking Reliv 2 1/2 years ago and it has...

You can look up the side effects for TOBI or they might be inserted with your meds. The most common side-effects are hoarsenesss and tinnitis (buzzing or ringing in your ears). In the hospital they have a special nebulizer that has filters on the different out-flow openings. Using this neb helps...

I have had my port for 7 years (?) and haven't had any problems with it. I was never warned against contact sports. I love it. No more digging around for veins, no more infiltrations or blown veins. No burning from harsh antibiotics. I really put up a fight against getting one initially, but...

I grew up with several sets of siblings and know several adults who have siblings with CF. They never had complications of cross-infection. I grew up spending the night with friends who had CF and being around them in the hospital and all sorts of situations and we never had an incident of...