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  1. R

    Has anyone done the ISIS trial?

    My daughter has been on Hypertonic Saline since around 16 months. She was asked to do the ISIS study by her clinic, but I refuse take her off it. It's a blind study, so we wouldn't know if she were getting the HS or placebo. I saw a bigger difference in Reagan starting HS than when she began the...
  2. R

    Has anyone done the ISIS trial?

    My daughter has been on Hypertonic Saline since around 16 months. She was asked to do the ISIS study by her clinic, but I refuse take her off it. It's a blind study, so we wouldn't know if she were getting the HS or placebo. I saw a bigger difference in Reagan starting HS than when she began the...
  3. R

    Frustrated

    It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give...
  4. R

    Frustrated

    It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give...
  5. R

    Frustrated

    It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give...
  6. R

    Frustrated

    It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give...
  7. R

    Frustrated

    It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give...
  8. R

    EMILY WON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    That's awesome! Yay Emily!
  9. R

    EMILY WON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    That's awesome! Yay Emily!
  10. R

    EMILY WON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    That's awesome! Yay Emily!
  11. R

    EMILY WON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    That's awesome! Yay Emily!
  12. R

    EMILY WON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    That's awesome! Yay Emily!
  13. R

    What else can I give the enzymes in??

    Here is a list that Reagans nutritionist gave me...Reagan hates applesauce. *apple juice *apricots (pureed) *banana (mashed) *geletin dessert *honey (not for children less than 1 year old) *jelly/jam *ketchup *orange juice *orange marmalade *peaches (pureed) *pears (pureed) *prunes (juice or...
  14. R

    What else can I give the enzymes in??

    Here is a list that Reagans nutritionist gave me...Reagan hates applesauce. *apple juice *apricots (pureed) *banana (mashed) *geletin dessert *honey (not for children less than 1 year old) *jelly/jam *ketchup *orange juice *orange marmalade *peaches (pureed) *pears (pureed) *prunes (juice or...
  15. R

    What else can I give the enzymes in??

    Here is a list that Reagans nutritionist gave me...Reagan hates applesauce. *apple juice *apricots (pureed) *banana (mashed) *geletin dessert *honey (not for children less than 1 year old) *jelly/jam *ketchup *orange juice *orange marmalade *peaches (pureed) *pears (pureed) *prunes (juice or...
  16. R

    What else can I give the enzymes in??

    Here is a list that Reagans nutritionist gave me...Reagan hates applesauce. *apple juice *apricots (pureed) *banana (mashed) *geletin dessert *honey (not for children less than 1 year old) *jelly/jam *ketchup *orange juice *orange marmalade *peaches (pureed) *pears (pureed) *prunes (juice or...
  17. R

    What else can I give the enzymes in??

    Here is a list that Reagans nutritionist gave me...Reagan hates applesauce. <br /> <br />*apple juice <br />*apricots (pureed) <br />*banana (mashed) <br />*geletin dessert <br />*honey (not for children less than 1 year old) <br />*jelly/jam <br />*ketchup <br />*orange juice <br />*orange...
  18. R

    our vest is broken

    We had the same problem with Reagans vest this week, only hers did have a visible hole where air was coming out. Hill-Rom was great!! They overnighted us a new vest and tubes as well. I hope your little one is feeling better soon!!
  19. R

    our vest is broken

    We had the same problem with Reagans vest this week, only hers did have a visible hole where air was coming out. Hill-Rom was great!! They overnighted us a new vest and tubes as well. I hope your little one is feeling better soon!!
  20. R

    our vest is broken

    We had the same problem with Reagans vest this week, only hers did have a visible hole where air was coming out. Hill-Rom was great!! They overnighted us a new vest and tubes as well. I hope your little one is feeling better soon!!
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